202 episodes

Daily, digital coverage of the latest PF (Pulmonary Fibrosis) news and perspectives.

PF News & Perspectives Pulmonary Fibrosis News

    • Science

Daily, digital coverage of the latest PF (Pulmonary Fibrosis) news and perspectives.

    As We Emerge From the Pandemic, Mental Health Matters More Than Ever

    As We Emerge From the Pandemic, Mental Health Matters More Than Ever

    Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote on the importance of mental health, especially as the world begins to emerge from the COVID-19 pandemic.

    Charlene recently reflected on where she was one year ago at this time; when she had just begun to seriously consider a mental health leave from her career. While things are better for her now, she’s seeing the impact of the pandemic on people’s mental health every day and she wants to remind everyone that it’s important to prioritize your mental health now more than ever.

    Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

    • 4 min
    How to Make the Most of Summer Despite Pulmonary Fibrosis

    How to Make the Most of Summer Despite Pulmonary Fibrosis

    Being on supplemental oxygen doesn't mean you have to avoid the hot summer months entirely. Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall shares some useful tips about this subject.

    Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: http://pulmonaryfibrosisnews.com

    • 4 min
    FDA Accepts Priority Review Request for Tyvaso DPI

    FDA Accepts Priority Review Request for Tyvaso DPI

    Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing the review request for Tyvaso DPI to be used in patients with pulmonary arterial hypertension (PH) and PH associated with interstitial lung diseases (ILDs), including those with IPF. Tyvaso is currently approved by the Food and Drug Administration in the US, however, the examination of how an inhaled form of Tyvaso (Tyvaso DPI) might better assist patients with PH and PH-ILDs is currently under way by United Therapeutics.

    If you have ILD-induced pulmonary hypertension, have you ever spoken to your doctor about Tyvaso?

    Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

    • 5 min
    Understanding the Relationship Between Asthma and Pulmonary Fibrosis

    Understanding the Relationship Between Asthma and Pulmonary Fibrosis

    Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote trying to better understand the relationship between asthma and IPF. Prior to being told she also had asthma, Charlene thought it was uncommon for the two to be diagnosed together.

    Surprisingly, even if an IPF patient doesn’t have asthma, many use inhaled therapies such as Ventolin, to alleviate their lung disease symptoms.

    As a patient living with IPF/PF: have you ever discussed asthma or asthmatic symptoms with your doctor? If so, what was done to alleviate them?

    Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

    • 4 min
    Esbriet Slows IPF Progression Regardless of Self-reactive Antibodies

    Esbriet Slows IPF Progression Regardless of Self-reactive Antibodies

    Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a study looking at self-reactive antibodies and the effectiveness of Esbriet.

    Many times, patients with IPF have an underlying autoimmune disease which may alter the effectiveness of one of the anti-fibrotic medications used to manage IPF. This study conducted in South Korea over five years suggests that if an IPF patient doesn’t respond to Esbriet, they should be re-evaluated for an underlying autoimmune disease.

    As a patient living with IPF/PF: have you been diagnosed with an underlying autoimmune disease?

    Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

    • 5 min
    Where Do We Turn When Prescribed Therapies Aren’t Effective?

    Where Do We Turn When Prescribed Therapies Aren’t Effective?

    Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote following a week of trying to manage new medications that weren’t helpful. Charlene felt frustrated and discouraged when her prescribed therapies weren’t relieving a sudden increase in shortness of breath and writes about where to turn when new medications aren’t effective.

    Topping that list is connecting with other patients, which Charlene finds powerful and comforting; there is no greater source of information than from fellow rare disease patients.

    As a patient living with IPF/PF: where do you turn when a newly prescribed medication isn’t helpful?

    Are you interested in learning more about Pulmonary Fibrosis? If so, please visit: https://pulmonaryfibrosisnews.com

    • 5 min

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