PodcastDX is an interview based podcast series in a “peer-to-peer supportive format."
We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ailments.
Many of our guests are engaging in self-advocacy while navigating a health condition, many are complex and without a road-map to guide them along their journey they have developed their own. Sharing stories may help others avoid delays in diagnosis or treatment or just give hope to others that are listening. Sharing is empowering and has a healing quality of its own. Our podcast provides tips, hints, and support for common healthcare conditions. Our guests and our listeners are just like you- navigating the complex medical world. We hope to ease some tension we all face when confronted with a new diagnosis.
We encourage anyone wanting to share their story with our listeners to email us at PodcastDX@yahoo.com .
Winter storms and cold temperatures can be dangerous. Stay safe and healthy by planning ahead. Prepare your home and vehicles. Prepare for power outages and outdoor activity. Check on older adults.
Although winter comes as no surprise, many of us may not be ready for its arrival. If you are prepared for the hazards of winter, you are more likely to stay safe and healthy when temperatures start to fall.
Prepare Your Home Staying inside is no guarantee of safety. Take these steps pdf icon[PDF – 344 KB] to keep your home safe and warm during the winter months.
Winterize your home.
Install weather stripping, insulation, and storm windows.
Insulate water lines that run along exterior walls.
Clean out gutters and repair roof leaks.
Check your heating systems.
Have your heating system serviced professionally to make sure that it is clean, working properly, and ventilated to the outside.
Inspect and clean fireplaces and chimneys.
Have a safe alternate heating source and alternate fuels available.
If you do not have a working smoke detector, install one. Test batteries monthly and replace them twice a year.
Prevent carbon monoxide (CO) poisoning emergencies.
Install a CO detector to alert you of the presence of the deadly, odorless, colorless gas. Check or change the battery when you change your clocks in the fall and spring.
Learn the symptoms of CO poisoning: headache, dizziness, weakness, upset stomach, vomiting, chest pain, and confusion.
Get your vehicle ready for cold weather use before winter arrives.
Prepare Your Vehicle Get your vehicle ready for cold weather use before winter arrives.
Service the radiator and maintain antifreeze level.
Check your tires’ tread or, if necessary, replace tires with all-weather or snow tires.
Keep the gas tank full to avoid ice in the tank and fuel lines.
Use a wintertime formula in your windshield washer.
Prepare a winter emergency kit to keep in your car in case you become stranded. The kit should include:
Cell phone, portable charger, and extra batteries;
Items to stay warm, such as extra hats, coats, mittens, blankets, or sleeping bags;
Food and water;
Booster cables, flares, tire pump, and a bag of sand or cat litter (for traction);
Compass and maps;
Flashlight, battery-powered radio, and extra batteries;
First-aid kit; and
Plastic bags (for sanitation).
Prepare for Emergencies Be prepared for weather-related emergencies, including power outages.
Stock food that needs no cooking or refrigeration and water stored in clean containers.
Ensure that your cell phone is fully charged.
When planning travel, be aware of current and forecast weather conditions.
Keep an up-to-date emergency kit pdf icon[PDF – 6.5 MB], including:
Battery-operated devices, such as a flashlight, a National Oceanic and Atmospheric Administration (NOAA) Weather Radio, and lamps;
First-aid kit and extra medicine;
Baby items; and
Cat litter or sand for icy walkways.
Protect your family from carbon monoxide (CO).
Keep grills, camp stoves, and generators out of the house, basement and garage.
Locate generators at least 20 feet from the house.
Leave your home immediately if the CO detector sounds, and call 911.
Wear appropriate outdoor clothing: layers of light, warm clothing; windproof coat, mittens; hats; scarves; and waterproof boots.
Take Precautions Outdoors Outdoor activities can expose you to several safety hazards, but you can take these steps to prepare for them:
Wear appropriate outdoor clothing: wear a tightly woven, preferably wind-resistant coat or jacket; inner layers of light, warm clothing; mittens; hats; scarves; and waterproof boots.
Sprinkle cat litter or sand on icy patches.
Learn safety precautions to follow when outdoors.
Work slowly when doing outside chores.
Take a buddy and an emergency kit when you are pa
On today's show we are speaking once again with Sheila Ames. As you may recall, Sheila is a Registered Nurse and the founder of "Ames Alchemy Coaching" which can be found on Facebook and Instagram. Today she joins us to discus her life-long struggles with migraines.
A migraine is a headache that can cause severe throbbing pain or a pulsing sensation, usually on one side of the head. It's often accompanied by nausea, vomiting, and extreme sensitivity to light and sound. Migraine attacks can last for hours to days, and the pain can be so severe that it interferes with your daily activities.
For some people, a warning symptom known as an aura occurs before or with the headache. An aura can include visual disturbances, such as flashes of light or blind spots, or other disturbances, such as tingling on one side of the face or in an arm or leg and difficulty speaking.
Medications can help prevent some migraines and make them less painful. The right medicines, combined with self-help remedies and lifestyle changes, might help. (Credits: Mayo Clinic)
According to Mayo Clinic Psoriasis is a skin disease that causes red, itchy scaly patches, most commonly on the knees, elbows, trunk and scalp.
Psoriasis is a common, long-term (chronic) disease with no cure. It tends to go through cycles, flaring for a few weeks or months, then subsiding for a while or going into remission. Treatments are available to help you manage symptoms. And you can incorporate lifestyle habits and coping strategies to help you live better with psoriasis.
Sickle Cell During Covid
Patients with Sickle Cell Disease (SCD), often have underlying cardiopulmonary co-morbidities that may predispose them to poor outcomes if they become infected with SARS-CoV-2.
Our returning guest today is Agnes Nsofwa RN,MsN,BBA
Founder and Executive Director
Australian Sickle Cell Advocacy Inc.
Myasthenia Gravis During a Pandemic
In this episode we will discuss Myasthenia Gravis, an Autoimmune Disease affecting the neuromuscular system of the body with Tasha White. We spoke with Tasha a few years back and wanted to touch base and see how she is doing in the midst of the pandemic.
Tasha White, Director of a new Non-profit organization called "My Walk with MG" located in St. Louis, MO.
The CDC has announced authorization of an additional COVID-19 vaccine dose for people with compromised immune systems, including patients with myasthenia gravis (MG) taking immunosuppressive treatment(s). This recommendation is specifically for patients that completed the mRNA vaccines (Moderna and Pfizer). The recommendation does not apply to the Johnson & Johnson vaccine because available data are insufficient at this time.
Recent data suggests that patients with weakened immune systems, such as those on immune suppressing medication(s), may have a reduced protective immune response to the COVID-19 vaccine. An additional vaccine dose can increase the immune response to the vaccine. Although similar data specifically for patients with MG is lacking, given the currently available information, the widespread increase in the more contagious and severe delta variant, and the good safety profile of available SARS-coV2 vaccines, the potential benefit of the additional vaccine outweigh the risks. Therefore, the MGFA supports the CDC authorization of SARS-coV2 vaccines for patients with compromised immune systems and recommends that patients with MG taking immunosuppressives discuss getting an additional mRNA vaccine dose with their treating provider. SARS-coV2 vaccines may not be available in all areas. The MGFA continues to strongly support the use of recommended precautions to reduce the risk of getting a COVID infection (e.g., masking, social distancing, frequent handwashing, avoiding close interactions with non-immunized individuals, etc).
**Regardless of whether you are vaccinated, if you get a COVID infection, it is very important to immediately notify your treating provider(s), including your MG provider, to determine whether there should be changes to your treatment, such as a monoclonal antibody treatment.
We continue to recommend that you reference the CDC site.
COVID & Lupus
Your immune system is your body's main defense against germs and illnesses. When you have lupus, you're more prone to infections because your immune system works differently than most people's. It becomes overactive and attacks your body itself.
Our guest on today's show is another repeat guest, Amber Blackburn. Amber is a Registered Nurse turned blogger and patient advocate for those with chronic illnesses. She deals with Hemiplegic Migraines and Lupus and unfortunately she caught COVID at the very start of the Pandemic.
She was forced to leave the workforce after ten years as a nurse; this gave her the patient medical experience and perspective. Being diagnosed and living with a chronic illness has given her the experience of everyday living so she understands both sides of the coin. Amber lives with Systemic Lupus, Migraines, Fibromyalgia, Interstitial Cystitis, IBS, Anxiety, Depression and Adrenal Insufficiency secondary to long term steroid use.
Since being forced to leave the traditional workforce due to her illnesses, she has become a strong patient advocate and blogger with her blog being “The World Sees Normal.”
Amber works with the Chronic Disease Coalition. She has had her work published by The Mighty, Yahoo and has been nominated for four WEGO Health Awards. She has published a symptom tracker for those with chronic conditions to track their symptoms and pain to share with their Drs. She understands the need for good communication between patients and doctors, but also support the chronic illness community, making sure those living with illnesses understand they are not alone or isolated.
Love the info!!
I learn a lot from this podcast!! Valuable info that will help with the everyday individual.
This podcast is off to a great start and the content is so helpful. Excited to hear more.
I really enjoy the show. The advice is super helpful.