POTS, EDS & Hypermobility: What Patients and Parents Need to Know with Dr. Cohen Solomon

What is the connection between POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility?

In this episode, I sit down with Dr. Cohen Solomon, board-certified pediatrician, educator, and patient living with hEDS and dysautonomia. We discuss the overlap between POTS, EDS, chronic pain, fatigue, GI symptoms, and why so many patients struggle to find answers.

We also talk about recognizing early signs of hypermobility, building the right healthcare team, advocating for yourself, and why validation matters when living with a complex chronic illness.

Whether you're a patient, parent, or healthcare provider, this episode offers practical insights and hope for navigating the journey.

Follow Dr. Solomon: @thebendypediatrician

Learn More: https://thebendypediatrician.com/

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Timestamps

• 00:00 Introduction
• 03:16 Living with hEDS & Dysautonomia
• 05:43 Early Signs of Hypermobility in Children
• 10:36 Understanding EDS & Hypermobility
• 12:14 Pain, Fatigue & Invisible Illness
• 22:32 The Connection Between POTS & EDS
• 23:22 Why Patients Need a Healthcare "Quarterback"
• 28:58 GI Symptoms, Dysmotility & EDS
• 31:51 The Importance of Validation
• 33:51 Building the Right Care Team
• 36:33 Tips for Advocating for Yourself
• 41:40 The UVA EDS & Hypermobility Clinic
• 46:05 Advice for Newly Diagnosed Patients
• 47:20 Finding Hope