5 episodes

This podcast is a service of the Immune Deficiency Foundation, or IDF, a nonprofit organization dedicated to improving the diagnosis, treatment and quality of life of people diagnosed with primary immunodeficiency diseases, or PI.

To learn more about primary immunodeficiency diseases and the PI community, please visit the IDF website at www.primaryimmune.org. If you have any questions you would like to be answered, email us at info@primaryimmune.org.
Special thanks to Bryson Kemp for scoring this podcast! www.brysonkempmusic.com

Primary Immunodeficiency Q & A: an IDF Podcast Immune Deficiency Foundation

    • Health & Fitness

This podcast is a service of the Immune Deficiency Foundation, or IDF, a nonprofit organization dedicated to improving the diagnosis, treatment and quality of life of people diagnosed with primary immunodeficiency diseases, or PI.

To learn more about primary immunodeficiency diseases and the PI community, please visit the IDF website at www.primaryimmune.org. If you have any questions you would like to be answered, email us at info@primaryimmune.org.
Special thanks to Bryson Kemp for scoring this podcast! www.brysonkempmusic.com

    Hemophagocytic lymphohistiocytosis (HLH) - A Diagnosis Specific Episode

    Hemophagocytic lymphohistiocytosis (HLH) - A Diagnosis Specific Episode

    Hemophagocytic lymphohistiocytosis (HLH) is a severe systemic inflammatory syndrome that can be fatal. HLH occurs when histiocytes and lymphocytes become overactive and attack the body rather than just bacteria and viruses. Join the Immune Deficiency Foundation as we sit down with Dr. Michael B. Jordon, from Cincinnati Children’s HLH Center of Excellence, to discuss the identification and management of HLH. To learn more about inheritance and PI, visit the IDF website: https://primaryimmune.org/about-primary-immunodeficiencies-diagnosis-information/inheritance. To learn more about HLH, how to diagnosis HLH, research and more, please visit: https://www.cincinnatichildrens.org/service/h/hlh.

    • 35 min
    College Concerns - Part of the Young Adult Series

    College Concerns - Part of the Young Adult Series

    The transition to college is both stressful and exciting. For those living with a chronic disease like a primary immunodeficiency (PI), adjusting to campus life can be even more challenging. College students with a chronic condition generally require strategies to balance academics, socializing, and managing their disease. In this episode, the Immune Deficiency Foundation explores resources for college students with PI and offers tips for making the most of your college years.

    • 29 min
    Employment and PI - Part of the Young Adult Series

    Employment and PI - Part of the Young Adult Series

    For people with primary immunodeficiency diseases (PI), employment is about more than just making money and job satisfaction. You need a job that will allow you to perform at a high standard with your diagnosis and will offer good health insurance benefits. There are many young people with PI who have amazing jobs. Join this Immune Deficiency Foundation (IDF) podcast and learn how you can be one of them.

    • 37 min
    Coping with the Emotional Dimensions of PI - Part of the Young Adult Series

    Coping with the Emotional Dimensions of PI - Part of the Young Adult Series

    People living with chronic illnesses know the physical toll it takes on the body. But it also takes an emotional toll and understanding how you are feeling mentally is as important as understanding how you are feeling physically. This podcast episode explores the emotional and psychological impact of a primary immunodeficiency disease (PI) in young adulthood, the connection between our minds and bodies, and how we can manage this relationship to positively affect our overall health.

    • 35 min
    Taking Control of Your Healthcare Management - Part of the Young Adult Series

    Taking Control of Your Healthcare Management - Part of the Young Adult Series

    Young adults with primary immunodeficiency diseases (PI) must develop independent disease self-management skills as they transition from pediatric to adult-oriented healthcare systems. Join this podcast episode from the Immune Deficiency Foundation (IDF), learn about how young adults can best manage their PI and find a balanced approach to healthcare and life.

    • 37 min

Customer Reviews

Hannahmetz ,

Great info

Super informative and well done!

pjeaston9 ,

Love Getting More Knowledge

I love getting any and all knowledge I can and especially up to date information. I don't enjoy reading articles. Hearing a conversation while I am working on things is such a great way to learn more about my CVID and educate myself on new research that is going on, how it effects us and gain more knowledge. Thanks for offering this!!

coastergirl99 ,

Perfect!

The IDF is a godsend to those of us with PI and I love that this podcast is geared towards young adults too! As someone with CVID, I am so grateful for them!Love the first episode and can’t wait for more to come!

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