Side Effects TEN - The Experience [Design] Network

It has been estimated that Covid-19 has left as many as 10% of patients, like Anne Thompson, with debilitating symptoms long after the initial infection has cleared.
In this episode of Side Effects, I talk to Anne about her journey from initial infection through to the long term impact Covid is having on her health and wellbeing. We chat about the support network and online videos (not NHS) that has / is helping her though her illness, and the impact ‘Long Covid’ could have on our healthcare system and messaging.

[1 Min] Anne's story of long Covid
[3 Mins] March 10th and 'feeling like someone standing on my chest'
[5 Mins] Post diagnosis: How I stayed out of hospital. Relying on the internet nurse videos (not the NHS)
[8 Mins] Our group of support to help us through
[9 Mins] Locked out of the Walk-in clinic
[12 Mins] My life before Covid as a fit 73yr old Labour activist
[15 Mins] Deterioration in my function and 'brain fog'
[17 Mins] Feeling the effects of long Covid
[19 Mins] The ONS study, a positive test [when I was well] and rejection from my GP
[25 Mins] My friend gets Covid a 2nd time in Bradford
[27 Mins] Improving health of the nation for all, a public health message
[29 Mins] Herd immunity vs. proactive health
[31 Mins] Magic Wand: A government that puts the life of the people first


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During Alice's adventures in Wonderland, she found herself in the presence of the King of Hearts. He wanted her to go, so he cited Rule 42: "All persons more than a mile high to leave the court." Heads turned to Alice. "I'm not a mile high," she objected. "You are," said the King. The queen testified that Alice is nearly two miles tall. "Well, I shan't go, at any rate," Alice said "besides, that's not a regular rule: you invented it just now."
[0 Min] Alice in Wonderland and Rule 42. A reflection on what rules have been applied to manage Covid 19.
[2 Mins] From chevrons on the floor to kids not singing in school, where do you stand?
[3 Mins 30] Prof Christofer Toumazou (Regius Professor of Engineering, Imperial College) and a PCR test that is possibly far too  sensitive?
[5 Mins] We need more granulation on resolution data e.g. discharged through death, with ill health, or effectively well. How do we judge out proportional action?
[6 Mins 30] The need for a circuit breaker? Let's discuss this. Don't treat us all like Alice.
[7 Mins 30] Are we trying to catch the wind with a sieve? Competing paradigm's in battle.
[8 Mins 30] What do you agree with? A CTA to think about all of our filter bubbles.
 
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The ability to debate, to explore and to challenge has (some would say) been under immense pressure in these times. Today, I explore this with Nico Macdonald and how all of our role of society especially those in the creative industries can be more 't' shaped and diverse in consideration, thinking and action.
[0 Min] How to access time with Matt on your project / sign up to the Daily Dose of inspiration
[2 Mins]  An introduction to Nico Macdonald, Nico is a pioneer in innovation and entrepreneurship. He is a visiting fellow at the School of Arts and Creative Industries at London South Bank University, and teaches at the University of East London and CIEE (the Council on International Educational Exchange). In the early 90s built a digital media studio in Shoreditch, London; led digital design for The Guardian newspaper, and for the London office of Berlin-based MetaDesign; he co-founded the international consultancy business Ascendant Partners, and worked in Silicon Valley. Since, he has founded a media innovation startup, Media Futures; been Innovation Director of Creative England; and Chief Executive of the R&D Society, a professional membership organisation. For 30 years, he has forged strong links with industry contacts from established organisations as varied the BBC, the Design Council, the British Film Institute, Arup, and DigitasLBi, as well as a wide range of start-ups and SMEs in design, media and tech. He has also written extensively on creativity and digital innovation, including articles, papers and books.


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Today I talk about factors that have influenced me this year and what running, listening, design, spiritualism and dying taught me about happiness; and staying sane through 2020
[0 Min] A reflection on today
[2 Mins]  What I learnt from Steve Jobs, and looking back on his Stanford speech (2005)
[6 Mins] Rachel Clarke and her book Dear Life: Dying with dignity and focusing in life on what matters most
[7 Mins] Born to Run by Chris McDougall: How you can learn that your body is the main machine you need
[9 Mins] There is no Planet B by Mike Berners Lee: Slowing down consumption
[11 Mins] The age of Surveillance Capitalism by Shoshana Zuboff: Why all things digital lead to consumption practices that need review
[13 Mins ] The Power of Now by Eckhart Tolle: Spiritual assessment and learning to be happy where you are today
[15 Mins] Side Effects and how we must make the most of what we have
[16 Mins] A move to a less egoic world?
[17 Mins] What might Steve have said?
[18 Mins] What should we strive for?
[19 Mins] What have I learnt about 2020 and my career approach?
[20 Mins] I ask you to: 1. talk to others outside of your bubble, 2. Check in with your fear and control it, 3. Stay human and connect
[22 Mins] Think Different
 
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In the time of Face, Place and Space I talk communications and public health messaging with Charlie Druce. There is a much richer and more  empowering road ahead. Let's discuss what that is.
[0 Min] How to access time with Matt on your project / sign up to the Daily Dose of inspiration
[3 Mins]  An introduction to Charlie Druce and Coast. Executive producer used to working with Ray Winstone,  Alistair Campbell, Tamsin Outhwaite and Jurgen Klopp
[5 Mins] Delivering wanted content
[6 Mins] Depression and Me with Alistair Campbell talking depression and former alcoholism 8-10 Mn views.
[7 Mins] Prostate Cancer UK and 'Fathers Day' by Martin Sadofski with Jon Simm, Tamsin Outhwaite, Charles Dance and Ray Winstone
[9 Mins] The Research Files for AXA - using Vlog and pop science communications to reach 4mn+ and hit action rates
[10 Mins ] Media and communication today: Where are we? From 'Mass Media' to 'My Media'
[12 Mins] Broadcasters identity crisis. An existential challenge? How and who to pay for content?
[15 Mins] The Valance and Whitty show. But where  and what did public health messaging used to be? A history of the Central Office of Information
[18 Mins] HIV and AIDS campaign by COI 'Don't die of ignorance'
[20 Mins] Post 2012 and austerity and budgets slashed. Parked film on Public Health England with small audiences, with the odd spike of expensive activity. Do we spend enough on public health communications?
[23 Mins] What does 'talk to' not 'sell to' mean? The  premise of content marketing
[24 Mins] Pharmaceutical companies cannot directly sell to [except primarily in the US]
[26 Mins] Pharma vs. Public health: A long road to trust on both sides. A journey from drugs companies to health companies
[29 Mins] Trust is the holy grail. We need credible sources. We need challenge and debate.
[31 Mins] The limitations of just things like 'hands, face and space'. All advertising at present is more of the same. What is better than this?
[33 Mins] Insurance models vs. Treatment models [and the world of communications]. Reducing risk and prevention vs. treatment.
[35 Mins] AXA and Reducing risk: health, social and societal thinking. Is this the win-win?
[37 Mins] In a world of competing interests, what does the road ahead look like? 1. Fragmented, 2. Regulated and data, 3, Confluence not collision. Let's discuss the pro's and the con's
[43 Mins] The downside of polarized and too shallow a field of view?
[35 Mins] Magic Wand: A road where film can be an agent of change. Learning from Still Alice with Julie Ann Moore
[48 Mins] Finding Charlie at Coast  and charlie@coasthouse.com


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In these times where the pressure of Track and Trace is ramping up around the world in the wake of expectations of a return to normality, I talk with Professor Effy Vayena from ETH Zurich about her work with the Swiss government in ethics, digital and the risks and rewards viewed under an ethical lens.
[0 Min] How to access time with Matt on your project / sign up to the Daily Dose of inspiration
[3 Mins]  An introduction to Effy Vayena and a review of Switzerland’s Covid experience [to date]
[6 Mins] The impact of fear and risk: The reality of the Covid experience.
[10 Mins] A background to ethics. The ethicist in all of us. How do we make decisions, especially in health.
[12 Mins] Digital healthcare and ethics: The opportunity, desire and the conversion of the digital and the biomedical. Beyond privacy alone.
[16 Mins] The Switzerland experience of Track and Trace and de-centralised alignment (with Google and Apple) , efficacy and privacy preserving decisions.
[20 Mins ] A more harmonious experience than the UK and a law behind the decisions.
[22 Mins] Being part of a science task force underpinning these factors in Switzerland. Decision making underpinning the experience and peoples liberties.
[24 Mins] Absolutely voluntary which was key. The law is that it cannot be mandatory. This tool has to be voluntary in a trust society.
[26 Mins] 18% download in Switzerland is not great; but actually not bad vs. other countries. Also, it is working to identify those that would have been missed by traditional tracing.
[29 Mins] The British creation of Black Mirror by Charlie Brooker. How can we avoid the Black mirror outcome?
[32 Mins] Even low case countries are now having outbreaks or second lockdown, NZ  and Israel included. We are all learning from imperfect tools. Also, the pandemic is being politicised.
[34 Mins] What about the economic impact in Switzerland? The relative successes of the Swiss social security process.
[38 Mins] The good, bad and ugly of digital health and ethics.
Good = Innovation. Bad = Rushed through tech without data security [not testing enough before release]  Ugly: Ineffectual and harmful products that destroy trust.
[42 Mins] Torn about IoT and, Product and Digital products under the lens of ethics [The Social Dilemma]
[44 Mins] Hard law vs Soft law in ethics.
[46 Mins] Magic Wand: Increased acumen- wisdom, responsibility, empathy to those in digital health to protect the many and not the few.
[48 Mins] Finding Effy online @effyvayena on Twitter




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