Welcome to Spotlight on Care, the podcast where we share stories, experiences, tips and advice on caring for loved ones affected by Alzheimer’s and other dementias. Spotlight on Care is produced by the University of California, Irvine Institute for Memory Impairments and Neurological Disorders, UCI MIND. Please subscribe to the Spotlight on Care podcast wherever you listen. For more information, visit mind.uci.edu. What would like to hear about next? Email us at firstname.lastname@example.org.
When You're Not the Caregiver: Guilt and Grief with Cindy Weinstein
In this episode, Steve and Virginia are joined by Cindy Weinstein, Ph.D., who co-authored a book with neurologist, Dr. Bruce Miller titled, Finding the Right Words: A Story of Literature, Grief, and the Brain. Dr. Weinstein talks about the guilt and grief she dealt with after her father was diagnosed with Early-Onset Alzheimer's Disease. She describes the challenges of being away from him while in graduate school, and the different strategies she used to stay connected and to manage her sadness.
Caring for a Child with Early Onset Alzheimer's Disease with Jim Russell
Virginia and Steve are joined by Jim Russell, MBA, PhD, who shares his emotional story of being a caregiver to his mother with Alzheimers and then to his daughter, Lynne, who was diagnosed with early onset Alzheimer's disease at 48 years old. He describes the challenges in managing his daughter's finances and her family as the disease has progressed.
Cognitive Impairment from a Physician’s Point of View with Dr. Steven Tam
Steve and Virginia are joined by UCI Senior Health Center physician and UCI MIND researcher, Steven Tam, M.D., who describes some of the early symptoms of cognitive impairment, and the general approach he takes when assessing a patient. He answers questions about current treatments. He emphasizes the importance of gathering a complete history of the patient prior to making a diagnosis.
End-of-Life Planning with Roger Lisabeth
In this episode, Steve and Virginia are joined again by friend and caregiver, Roger Lisabeth who describes his experience in end-of-life planning while his wife Lucy is still alive. Roger emphasizes the importance of being properly prepared when the day arrives and describes some important details many of us may overlook when planning a funeral.
Creating a Safe Living Space for Your Loved One with Mark Wilson
Mark Wilson is back with co-hosts, Steve and Virginia to share his tips on outfitting your loved one's home to be safe. He reflects on his experience caring for his mom who lived at home with him for the entirety of her Alzheimer's dementia journey. Mark provides low cost solutions to many of the unique challenges that caregivers face in a home environment like protecting against hard slippery surfaces in the bathroom or curtailing wandering at night .
Keeping the Holidays and Celebrations Happy, Healthy and Safe with Dr. Miriam Galindo
Dr. Galindo cared for her father with Alzheimer's disease and helps the listeners understand the importance of simplifying the holidays to maximize enjoyment for everyone. She gives tips on focusing on one or two traditions and recruiting help instead of trying to balance caregiving with all of the pressures of maintaining family traditions. For more caregiver resources at the holidays and throughout the year visit www.alzoc.org or call the helpline at 844-373-4400. Happy Holidays!