SYNGAP10 is a 10 minute weekly blog to keep parents and families up to date on what the team at SynGAP Research Fund (SRF) is doing to advocate for patients& advance research into SYNGAP1. If you do nothing else, listen to or watch this and let us know what you think.
SYNGAP10 - Ep. 5 - 9 April 2021 - EEG Biomarkers, SSB Study, Ciitizen, CNF Survey, Sprint4Syngap
Get ready for the SSB Ciitizen study launching next week! Sign up for a webinar via Syngap.Fund/SSB
SYNGAP10 - Ep. 4 - 2 April 2021 - Ciitizen Study happening! #SyngapCensus = 762, Caren, Kyle & Sprint4Syngap
SYNGAP10, episode 4, 2 April 2021 starts with incredible news about a forthcoming study.
Ciitizen survey pre-trial is signed! Coming soon, look for an email. If you have not joined, ciitizen.com/SYNGAP1
#SyngapCensus = 762
Caren movie is up - great work on subtitles
This week alone - 2 companies, 2 labs, 1 wed warrior Kyle from ohio, 15 - One amazing Webinar
#Sprint4Syngap - We are doing well.
Newsletter - Board announcement. Need some volunteers to write the newsletter!
SYNGAP10 - Ep 3 - 29 March 2021 - Webinars, Warriors, Work, Caren subtitles & Sprint4Syngap
Webinars: Jo, SRFCC1 and so many others are up our beautitful YouTube channel Syngap.Fund/YouTube for the old ones Syngap.Fund/Webinar for the new ones. Warriors: Do you read them? Is your SynGAPian amoung them? SynGAP.Fund/Warriors Work: Do you have time to help? Know a filmaker. Caren subtitles: we are working on them. Sprint4Syngap: we're uping the goal to $100k, we can do this.
SYNGAP10 - Ep. 2 - 19 March 2021 - Mike updates Syngap Families on the work of SRF.
Check out the Eat. Sleep. Cure. Mug, love it!
#Sprint4Syngap is going well, thanks to leading families and teams.
Lots of webinars coming soon, don't miss next week with Jo syngap.fund/teendx
Sign up for Ciitizen.com/SYNGAP1
Cell lines and biobanks.
E4 sensors to researchers!
CNF profiles our support group.
Getting the next board together.
Praxis earnings call
Wahoodatt Fishing is awesome, check them out! https://wahoodatfishing.com/
SRF joins the American Brain Coalition.
All in 10 minutes!
SYNGAP10 - Ep. 1 - 12 March 2021 - Mike Graglia updates Syngap Families on the work of SRF.
Mike's first episode! A quick update on the week in SYNGAP1, what the SynGAP Research Fund did this week on behalf of families.
- Engaged with a new BioPharma company interested in starting a program on SYNGAP1.
- Connected ANOTHER company with CIITIZEN.com/SYNGAP1 so that they can use the data we have to do a trial as quickly as possible.
- How to sign up for CIITIZEN.com/SYNGAP1
- How #Sprint4Syngap is going
- A preview of some work we are doing on drug discovery with Worms and Fish
- A preview of work we are planning on EEG Biomarkers
- Why biomarkers matter
Learn more at www.SyngapResearchFund.org
Customer ReviewsSee All
The uplifting, enthusiastic and inspiring Mike Graglia updates listeners about the Syngap Research Fund news in under 10 minutes. Most amazing are the updates involving Natural History Studies (Ciitizen), biotech companies and all other discussions regarding research, clinical trials, webinars, fundraising and other outstanding news. A must for anyone interested in learning about Syngap1 in the now!
Paving the Way
Fantastic updates from a leader in the Syngap space. Thank you for providing relevant information to our community and for building a foundation that is truly paving the way towards Syngap therapies, increased awareness among researchers, clinicians, and the undiagnosed, as well as providing a landscape for family support.
Great resource for Syngap families
This is a very useful podcast to keep up on SRF and all the work they do to bridge the gap between families of Syngap1 patients and the work being done for our loved ones.