#SYNGAPconf22 was a hit, join us in 2023… #S10e86 SynGAP10 weekly 10 minute updates on SYNGAP1

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JACKIE KANCIR STORY
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CIITIZEN DATA BY CHOP
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SCIENCE DAY AGENDAhttps://twitter.com/sandysmith317/status/1598322472037801984 
 
FAMILY DAY AGENDA
8:30 AM SYNGAP1 CAREGIVERS: REALITY, RESILIENCE AND RESOURCES - Becky 10:45 AM REGISTRIES - Invitae, Simons, Rare-X w/Q&A
12:15 PM GETTING CLINICAL TRIAL READY - Kathie Bishop, Acadia
1:15 PM PRAXIS
1:40 PM TAKING ON BEHAVIORS - Jackie Kancir, SYNGAP1 Mom & Advocate
2:30 PM MORE OF EVERYTHING BOOK LAUNCH - Janie Reade, SYNGAP1 Mom & Author
3:20 PM SRF LATIN AMERICA - FONDO DE INVESTIGATION SYNGAP - Vicky
3:45 PM SRF YEAR IN REVIEW - Rebecca, Peter, Pavel
4:30 PM LOOKING TO THE FUTURE - Mike
6:30 PM COMMUNITY DINNER
 
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Episode 86 of #Syngap10 - December 29,  2022 
#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology