22 episodes

Heckle and Jeckle are two Mental Health professionals diagnosed with Early Onset Dementia. They are funny, serious and smart as they explore all facets of daily life living with this baffling and challenging disease.
Laugh, Cry, Learn and Explore Lives Lived Well with Dementia.

Talking Dementia with Heckle & Jeckle Heckle Jeckle

    • Health & Fitness

Heckle and Jeckle are two Mental Health professionals diagnosed with Early Onset Dementia. They are funny, serious and smart as they explore all facets of daily life living with this baffling and challenging disease.
Laugh, Cry, Learn and Explore Lives Lived Well with Dementia.

    Farewell My Friend

    Farewell My Friend

    This is it! Our Final Episode!
    In this episode Heckle & Jeckle share their final thoughts together about creating this series.
    Some of the topics they explore further are: Promoting paid work done by those living with dementia & The desire to be told the truth throughout the course of their dementia . .
    Jeckle describes the need for continued truth seeking as her best path to maintaining insight.
    Heckle & Jeckle further discuss Grief & Loss as part of life and how some case management plans may use distracting techniques to redirect people away from strong emotions about loss.
    Comfort & comforters . . . "Don't strap a huge doll to me!!"
    Heckle & Jeckle share identifying this podcast as a time capsule of information for their families to visit when ready.

    And what now for the future? Heckle describes some of her ongoing projects as an advocate and an author of her new book helping grandchildren to better understand a loved family member experiencing dementia.
    Jeckle reveals she has never made a cake and discovers the symbolism of the 'cake' and a renewed understanding of what drives her desire to make this happen with Heckle's help.

    Thank you to all our guests and a very special thank you to everyone who listened... x x 


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    • 42 min
    The Contribution to Research

    The Contribution to Research

    Today Heckle & Jeckle are joined by two people involved in Dementia research across the international information highway.
    Dr Jane Thompson is an advocate for public involvement in dementia research. She has a lived experience as a carer of her husband, who died of Alzheimer's disease in 2007.  This painful experience led her to become actively involved in dementia research as a public contributor and shares a passion to improve the experiences of those affected by dementia.

    Alison Kileen Works as a researcher at Newcastle University UK and is also a health psychologist.
    Alison has discovered families of people with Lewy body Dementia benefited in a variety of ways from group activities and exploring the condition and ways to manage together. Importantly family members also felt more able to cope. She ran experimental groups several times with different people and made changes using suggestions from those who took part.
    Happily, Heckle has joined Dr Jane & Alison in the Cobolt study that is looking at the benefits of medication.


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    • 28 min
    The Good Doctor - Dr Marita, Dr Hilton & Dr Stephanie

    The Good Doctor - Dr Marita, Dr Hilton & Dr Stephanie

    Today we revisit the Gp Clinic and discuss sooo much together we feel like we know these wonderful doctors well. It's comforting to know there are General Practitioners willing to join the pathway alongside their patient as the explore a diagnosis and enduring medical care thereafter.

    Hilton, Steph & Marita share more about the maintenance of care a Gp provides and the safe & ongoing relationship that develops through the 'slow medicine' approach. Heckle & Jeckle also wonder how the doctors care for a vulnerable patient after diagnosis and what they watch for in follow up appointments. 

    General practitioners: Dr Hilton Koppe, Dr Marita Long & Dr Steph Daly speak candidly with Heckle & Jeckle in their pursuit to know more about dementia and their experiences with Gp's.

    Again, Heckle & Jeckle relate to each other through a shared purpose, meaning and laughter.
    General Practitioners Dr Hilton Koppe, Dr Marita Long & Dr Steph Daly are members of Dementia Training Australia’s GP Clinical Education Group. They are the hosts of Dementia in Practice, an excellent new series of podcasts released by Dementia Training Australia (DTA).


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    • 42 min
    The Millennials - Open Minds & Big Hearts

    The Millennials - Open Minds & Big Hearts

    In this episode Heckle & Jeckle invite Oliver to be our special guest after meeting him at the recording studio and discovering a thoughtful young man with an Open Mind, a Big Heart and a Welcoming of all people.

    Oliver believes communication is the key to Listening, Empathising and Understanding each other.

    Meeting and talking openly with Oliver was a refreshing experience, there was no prejudice, judgement or presumption....
    Simply an enquiring mind eager to learn!

    We know you will enjoy listening to Oliver as he generously joined us in conversation about dementia.
    The future is looking good when the next generation is represented by young adults like Oliver.
    Very Cool.




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    • 41 min
    The Advocates & Artists living with Dementia

    The Advocates & Artists living with Dementia

    ,In today’s episode Heckle& Jeckle share in a group discussion across the pond and find out how alike we really are. In the first part of today’s episode, we are joined by three guests living with Lewy Body Dementia from Ireland & the United Kingdom. Christine Maddocks, Naomi Gleeson & Kevin Quaid share a part of their own story to assist a greater understanding about what this type of dementia is like.
    The women describe the value they experience by being a part of a support group online and feeling understood. Naomi shakes her 'good thing' now she permanently has Jazz hands!  Christine is an advocate and speaks at conferences educating the medical world about the lived experience of Lewy body Dementia.

    Jeckle shares a hilarious story about being on an aeroplane and her long relationship with her seat 1A.

    Kevin tells us how many health practitioners still have never heard of Lewy body Disease and shares an an enlightening point about the eradication of stigma beginning at home!

    In the second part of this episode we meet the incredible Karen Meenan!

    She has a special interest in Lewy Body Disease (LBD) as co-founder and director of Lewy Body Ireland. Karen is a part of developing reminiscence theatre and radio broadcasts.  Karen shares the stories of those living with different neurodegenerative diseases on radio and in theatre. She founded 'Making Hay' dementia-inclusive theatre in 2017 and has produced and directed three co-created plays from intergenerational workshops. Karen shares with us some of her creative productions and her interest in the arts & dementia.

    Heckle helps guide the the episode with care, compassion and interest to know more from her peers diagnosed with Lewy Body Dementia.








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    • 45 min
    The Speech Pathologist - Saving Voices

    The Speech Pathologist - Saving Voices

    In this episode Heckle & Jeckle speak with Speech & Language Pathologist Sheree Brisbane.
    Sheree works to assess, diagnose, and treat speech, language, cognitive-communication, and swallowing disorders in people with dementia.
    Sheree describes Heckle's voice banking like running a 'marathon' due to the work required to save her voice to a device in preparation of not being able to communicate verbally. Jeckle shares her experience of a break in connection whilst drinking water and nearly drowning!
    Sheree explains how even the smallest changes in one's ability to swallow can interrupt one's life in a massive way.
    Heckle & Jeckle continue to use humour to help them better understand the changes they face. . .and they all agree the "Nosy Cup" needs a new name.
    Sheree is an amazing guest and we are thrilled she spent time with us to share her knowledge.




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    • 38 min

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