6 episodes

Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia. Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.

Thal Pals: The Alpha Beta Revolution BloodStream Media

    • Health & Fitness
    • 5.0 • 11 Ratings

Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia. Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.

    Replay: Merula & Dina Steagall: Managing Thalassemia as a Family

    Replay: Merula & Dina Steagall: Managing Thalassemia as a Family

    FLASHBACK ALERT! 
    #Thalassemia is a family affair. Join us in revisiting one of our favorite #ThalPal episodes “Merula & Dina Steagall: Managing Thalassemia as a Family” Merula, Founder of Brazilian Blood Cancer Society (ABRALE) and Thalassemia major patient, is joined by her daughter Dina as they share their family’s journey.
    Merula is the Founder of Brazilian Blood Cancer Society (ABRALE). https://www.abrale.org.br
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.
    Sponsored by Agios Pharmaceuticals




     

    • 49 min
    A chat with our hosts, Dr. Kuo and Laurice

    A chat with our hosts, Dr. Kuo and Laurice

    On this episode, hosts Dr. Kevin Kuo and Laurice Levine take a deeper dive into their respective journeys with Thalassemia. 
     
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
     
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

    • 24 min
    Shirin Taki, Thalassemia Patient Advocate

    Shirin Taki, Thalassemia Patient Advocate

    On this episode, hosts Dr. Kevin Kuo and Laurice Levine welcome Thalassemia patient and advocate Shirin Taki to discuss her journey with the disease as well as her experience navigating the Canadian healthcare system.
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

    • 31 min
    Merula & Dina Steagall: Managing Thalassemia as a Family

    Merula & Dina Steagall: Managing Thalassemia as a Family

    Merula Steagall is a manager, mother, thalassemia major patient, creator of important social projects and, especially, an innovator. She is joined by her daughter Dina Steagall as they share their family’s journey with thalassemia. Merula is the Founder of Brazilian Blood Cancer Society (ABRALE). https://www.abrale.org.br
     
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
     
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

    • 49 min
    Cooley’s Anemia Foundation

    Cooley’s Anemia Foundation

    On this episode your host, Dr. Kevin Kuo welcomes guest host Laurice Levine as they speak with Ralph Colasanti who is the executive president of the Cooley's Anemia Foundation. For patient resources you can visit Cooley’s Anemia website: https://www.thalassemia.org/
     
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
     
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

    • 25 min
    Introducing Thal Pals: The Alpha Beta Revolution

    Introducing Thal Pals: The Alpha Beta Revolution

    Introducing Thal Pals: The Alpha Beta Revolution Podcast. On this episode we meet your host, Dr. Kevin Kuo. His guests are Laurice Levine and Keely Gilroy. Laurice is a patient advocate living with Thalassemia and Keely is a Thalassemia medical director from Agios Pharmaceuticals.
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time and one of today's guests, Keely Gilroy, is an Agios employee.

    • 23 min

Customer Reviews

5.0 out of 5
11 Ratings

11 Ratings

Hopscotch03 ,

Great mix of science and patient insights.

Listening to the first episode and really impressed with the dialogue! Open discussion about the state of thalassemia and the importance of partnering and connecting to make a difference. Great stuff!

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