34 episodes

A podcast for people with Ankylosing Spondylitis. I am Jayson Sacco, a 34 year plus Ankylosing Spondylitis survivor. With this show, I want to bring the AS community together and talk with doctors, organizations, and individuals all dealing with AS.

The Ankylosing Spondylitis Podcast Jayson Sacco

    • Health & Fitness

A podcast for people with Ankylosing Spondylitis. I am Jayson Sacco, a 34 year plus Ankylosing Spondylitis survivor. With this show, I want to bring the AS community together and talk with doctors, organizations, and individuals all dealing with AS.

    Episode 034: Basics of Medical Marijuana

    Episode 034: Basics of Medical Marijuana

    Hello, and welcome to this episode of The Ankylosing Spondylitis Podcast. I know I've said it before, but I've got to say it again. We've hit over 12,000 downloads across the world with this show. If it wasn't for all you listeners, none of this would be possible. I love hearing from everybody. It has been just amazing to hear everybody's stories of how they have dealt with AS, and I wanted to point out I got an email the other day from a listener. And this one was really cool and it's reads; 

    “Hey, oh my goodness. I'm so thankful I found your podcast. Thank you. I'm in Namibia and for so long. I have felt so alone. I felt so many times that people think I'm making it all up. It's crazy and my doctors in South Africa because there isn't even a rheumy here. People don't understand. Anyways, listening now to Loss of Our Old Life and I can so relate. I'm so sorry for all you have gone through. I lost an eye and then also had cancer. Like so many of us losing so much and yes mentally it’s such a hard battle. Thank you for raising awareness!!!

    Thank you! Without listeners like you, I wouldn't be doing this. I started this off just to kind of bring out what my experiences were. But now, it's grown into so much more as I get to hear from everybody from all these countries around the world. There's like 195 or 192 countries in the world and we have had downloads from at least 71 of them. Means over a third of the countries has had somebody access the show and at least listened to it once. That's amazing to me. So and it's again, it's all because of you guys, all of us who have Ankylosing Spondylitis, and the caregivers of people that have Ankylosing Spondylitis. I absolutely thank you from the bottom of my heart for all you've done to help make this show so successful.

    And now, under this week's Question of the Week, as I was going through Facebook forums, I noticed a question that said, “Do you feel that you're using your Ankylosing Spondylitis to be a victim or have a victim mentality?”  So I kind of read that a couple times, and this is going to be completely my feelings on this, but I got a little bit angry because I've been dealing with this for so long. Let me preface that by saying, my feelings are not your feelings, we're all going to have this differently. But I thought about it. I said, I didn't ever want to be a victim, to appear to be a victim. Even after multiple hip replacements, fused back, fused SI joints, fused neck, there was plenty to say poor me, but I really have wanted to spend my life trying to find the good side. Now, yes, all the damage AS has done to my body is not good. But the good side of it is I've met some phenomenal people and all of you across the world who share AS with me, and that is something that I can talk to any of you and we're all going to have similar experiences and be able to, in many ways empathize with each other, consoling each other. 

    So I saw this article, there's an author, Lisa Marie Basile, (see link at end). And in early January of 2020, you know, just this month, she wrote an article; it's titled, As a New Year Begins, I'm Seeking the Silver Lining with AS, and I thought what a great title. In the article, she goes on to discuss what she's dealt with in her life, and how it's adjusted her viewpoints on different things. She had a challenging childhood and she says, “I found strength and resiliency instead of weakness and fear”. And that's really what I want everybody to try and take away from this. If you go through the pain of Ankylosing Spondylitis, the challenges that we deal with having Ankylosing Spondylitis the day to day just activities, trying to get them done, raise kids, you know, work a job, all of it with Ankylosing Spondylitis, that instills in you a strength and resiliency that many others do. Have, they may look fine on the outside, they may

    • 15 min
    Episode 033: Basics on CBD Oil

    Episode 033: Basics on CBD Oil

    On this week's episode, we're going to be talking about CBD, whether it be CBD oil, gummies, cream, or vaping, I'm going to bring the little bit of knowledge that I have, and hopefully, get some more experts in here later on during the year that can talk far more in-depth about CBD and how to use it to the best of everybody's advantage.

    • 12 min
    Episode 032: 20 Ways To Cope with Fatigue

    Episode 032: 20 Ways To Cope with Fatigue

    Hello, and welcome to this episode of The Ankylosing Spondylitis Podcast. My name is Jayson Sacco and I want to welcome you to another episode where we're going to talk about something that affects all of us to various degrees, fatigue.



    What is fatigue and how to potentially fight it? So how do you know if you're dealing with fatigue or if you just plain tired? Well, as I was searching around, I saw this great article from a website called creakyjoints.com and as I read through it, it made me think of some things that I've seen posted on the various Facebook forums. Everybody talked about this fatigue kind of had to stop and think was that person may be tired or is it fatigue? What brings about fatigue? And one person even said, you know, “Fatigue is just like it's taking all of my energy” and so I thought that was kind of interesting.

    • 20 min
    Episode 031: 9 Resources for Ankylosing Spondylitis Support

    Episode 031: 9 Resources for Ankylosing Spondylitis Support

    Hello, and welcome to 2020. This is The Ankylosing Spondylitis Podcast and my name is Jayson Sacco and thank you for joining me today. You know, as many do on this first day of the year, I've been reflecting on my life and my interactions with Ankylosing Spondylitis. You know, I've been dealing with Ankylosing Spondylitis and its effects on me for about four decades now. And in those four decades, there are many things I could have done much better that might not have put me in the position I'm in now, and those items will discuss over the upcoming year in different episodes.

    • 12 min
    Episode 030: Finding Support and Talking About Ankylosing Spondylitis

    Episode 030: Finding Support and Talking About Ankylosing Spondylitis

    Hello, and welcome to The Ankylosing Spondylitis Podcast. I can't believe this is the final episode of 2019. So as I wrap up 2019 and look towards 2020, it's just been a fantastic run this year. This is the 30th episode of the show and I wanted to do something a little bit different

    • 16 min
    Episode 029: Pet Peeves Heard About Ankylosing Spondylitis

    Episode 029: Pet Peeves Heard About Ankylosing Spondylitis

    Hello, and welcome to this episode of The Ankylosing Spondylitis Podcast. It's going to sound like a broken record, but I just can't thank all of you listeners enough. It's been incredible the numbers that I keep seeing on the show, we've now been downloaded in 58 different countries. To me, that's amazing. When I went about making the show, it was going to be only in English. And I didn't really know what kind of reach the show would have. But 58 countries is amazing, we've literally circled the globe. It's great to see everybody that is enjoying the show, and finding some type of comfort from it, entertainment value, whatever, and then turn around and contacting me and saying how you like the show. So it’s been fantastic and it's been really interesting.

    • 16 min

Customer Reviews

wiscobri ,

Great conversations

Such a great podcast full of relevant conversations related to Ankylosing Spondylitis. Anyone living with AS will benefit from and relate to these open and honest chats!

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