20 episodes

The Dementia Podcasts provides the latest research, expertise and currency of knowledge from the HammondCare Dementia Centre and our guests. The podcasts address the latest in thinking and practice issues, which include a series of podcast focusing on key issues including 'talking' design and 'talking' behaviours. We consider both clinical and practice issues and the complex issues that need considered in advanced dementia.

The Dementia Podcast Professor Colm Cunningham

    • Health & Fitness

The Dementia Podcasts provides the latest research, expertise and currency of knowledge from the HammondCare Dementia Centre and our guests. The podcasts address the latest in thinking and practice issues, which include a series of podcast focusing on key issues including 'talking' design and 'talking' behaviours. We consider both clinical and practice issues and the complex issues that need considered in advanced dementia.

    Talking Dementia: Reminiscence and Life Story Work

    Talking Dementia: Reminiscence and Life Story Work

    Join Colm, Professor Assumpta Ryan and Professor Faith Gibson in their discussion of the meaning and best practice implementation of reminiscence and life story work in dementia care.


    Professor Assumpta Ryan is the Professor of Ageing and Health at Ulster University. In this episode she refers to the success of her app ‘The InspireD Reminiscence App’ .


    Professor Faith Gibson is a friend and colleague of Colm, who has informed much of the work of HammondCare's Dementia Centre . A social worker by training, Faith is a pioneer in the field of reminiscence and life story work. Her most recent publication 'International Perspectives on Reminiscence, Life Review and Life Story Work' and earlier work 'Reminiscence and Life Story Work. A Practice Guide' are informative and instructional resources on reminiscence work.  


    Together, Colm, Faith and Assumpta provide insight, guidance and shared experience to this episode.


    The Cochrane Library’s 1998, 2005 and current 2018 review 'Reminiscence therapy for dementia'   displays over time, how  memories and past experiences with other people using tangible prompts evokes memories and stimulate conversation for those living with dementia.


    'International Journey of Reminiscence and Life Review' publishes original work exploring the nature, function, and application of remembering the personal past within a wide range of research contexts and practice settings.. 


    The  European Reminiscence Network and American International Center for Life Story Innovations and Practise promote best practice in reminiscence work and to share experience across national frontiers.

    • 33 min
    Talking Clinical Trials: Participant's experience and perspective

    Talking Clinical Trials: Participant's experience and perspective

    Join Colm, Professor Steve Macfarlane, Maree Mastwyk, Trish and John as they discuss the personal and professional characteristics of a clinical trial.  
    Professor Steve Macfarlane is the Head of Clinical Services at HammondCare's Dementia Centre  and his colleague, Maree Mastwyk  is a Team leader of Clinical trials. Together they define clinical trials in a professional context and provide their expertise on how to operate a clinical trial.  
    John, a person living with dementia and his partner Trish are both currently on a clinical trial. They describe their personal experiences of this trial.  
    The Australian Clinical Trials Alliance’s ‘Report on the Activities & Achievements of Clinical Trials Networks in Australia’ and an article by the Western Alliance are informative resources on the operations of clinical trials in Australia.  
    Policy & Medicine’s article 'The Importance of Clinical Trials' explains the impact of clinical trials in America.  
    ANZCTR is an online registry for of clinical trials being undertaken predominately in Australia and New Zealand, and to a smaller extent other parts of the globe. This link connects you to a similar network in the America and here is a dementia research registry located in the United Kingdom.   
    *We would like to acknowledge as clinical best practise is continuously evolving that the comments made in this episode is reflective of the period leading up to the 7th of October.  
    Below we have listed the definitions of some terms mentioned in this episode:  
    Efficacious: Something is able to produce its intended result.  
    Placebo: A substance given to someone who is told that it is a particular medicine, either to make that person feel as if they are getting better or to compare the effect of the particular medicine when given to others.  
    Sponsor: Any individual or group that provides financial or material support to a study or endeavour in return for commercial advertisement.  
    Comparator: The comparator study is used to compare the effectiveness of the investigational product to the existing drug. 
    Tolerability: Represents the degree to which overt adverse effects can be tolerated by the subject/patient. 
    Con-meds: Concomitant medications (con-meds) are any prescription or over-the-counter drugs and supplements taken in addition to an investigational therapy by a study subject. 
    Proof of concept: Proof of concept (POC) is an exercise in which work is focused on determining whether an idea can be turned into a reality. A proof of concept is meant to determine the feasibility of the idea or to verify that the idea will function as envisioned. It is sometimes also known as proof of principle. 
    Adverse events: An unexpected medical problem that happens during treatment with a drug or other therapy. Adverse events may be mild, moderate, or severe, and may be caused by something other than the drug or therapy being given. Also called adverse effect.

    For all feedback please email hello@dementiacente.com.au

    • 23 min
    Talking Topaz: An international knowledge exchange

    Talking Topaz: An international knowledge exchange

    Join Colm in a unique ‘live’ episode to celebrate World Alzheimer’s Day and  Dementia Action Week.  
    This episode allows us to join part of the discussion on the 'Stronger Together'   webinar that launched HammondCare and it’s Dementia Centre ‘s  partnership with Topaz , a leading Dutch aged care provider.  
    This conversation centres around the importance of international partnership and knowledge exchange to raise awareness and increase learnings in the field of dementia care and research.  
    Colm gets out of the host seat and joins the panel, as we join our host Marie Alford, Head of Dementia Services at the Dementia Centre. Marie is joined by Topaz CEO Lia de Jongh, Professor Wilco Achterberg, Leiden University Professor of Institutional Care and Elderly Care Medicine and Professor Susan Kurrle, University of Sydney Curran Chair of Health in Older People.  
    Don’t forget to click on the full webinar link in the show notes to hear,  as the Dutch General Counsel to Australia, Frank van Beuningen and Australian Ambassador to the Netherlands, Matthew Neuhaus help launch this new initiative.  
     The research paper 'Clustered domestic residential aged care in Australia: fewer hospitalisations and better quality of life' is an example of the work that HammondCare’s Dementia Centre will be sharing with Topaz in their knowledge exhange partnership.  
     Here are some examples of the work that Professor Wilco Achterberg has completed and Topaz will share with HammondCare’s Dementia Centre in return.

    For all feedback please email hello@dementiacente.com.au

    • 26 min
    Talking Dementia: What is Dementia?

    Talking Dementia: What is Dementia?

    Join Colm, A/Prof Steve Macfarlane and Holly Markwell as they introduce the series ‘Talking Dementia’. Steve is the head of Clinical Services at The Dementia Centre and Clinical Specialist at Dementia Support Australia. Holly is head of professional development at ‘The Dementia Centre’.   


    The ‘Talking Dementia’ series seeks to provide short and informative episodes on the varying types of dementia. In this episode the panel examines dementia as an umbrella term and discusses, symptoms, treatments and avenues for support.  


    Dementia Support Australia is a nationwide support service for those living with dementia who are experiencing behavioural and psychological symptoms.  


    For those in need of support that is specific to their country we have linked this international repository of support agencies.  


    The novel and online forum 'My home my life' was referenced in this episode and shares practical ideas for people living with dementia.  


    The 'World Alzheimer Report 2015', Dementia statistics and epidemiology founded by Dementia Australia and this Dementia Fact sheet written the World Health Organisation provide informative and relevant statistics pertaining to the national and global impact of dementia.

    For all feedback please email hello@dementiacente.com.au

    • 23 min
    Talking Advocacy: It takes a team

    Talking Advocacy: It takes a team

    Join Colm and an incredible lived experience panel as they discuss the role of the dementia activist, advocate, and champion and the personal and professional partnerships involved in ensuring the voices of those living with dementia are heard. 
    On this panel, we have the professional partnership representatives of Joanna Fozard and Agnes Houston. Joanna is employed by ‘The Dementia Centre’ as Agnes’ personal assistant and supports Agnes to fulfil her activist role and provides feedback and insight to HammondCare on how to support someone with dementia to continue as an advocate. Agnes has campaigned for the improvement of the lives of people with dementia in Scotland and was awarded an MBE, a Churchill Fellow and has written a book detailing her experience 'Talking Sense': Living with sensory changes and dementia' . 
    Joining us also on this panel are John Quinn and Glenys Petrie. John was diagnosed with younger onset dementia and alongside his partner Glenys, have used their experiences and knowledge to campaign for those living with dementia and empower those with a diagnosis to live their best life. 
    To read more about the incredible life story of Glenys and John the University of Queensland have compiled their story here.

    There are also many amazing advocacy programs across the world such as ; the Edinburgh Centre for Research on the Experience of Dementia Australian Dementia Advocates Program and this directory of resources. 
    Together this panel illustrates how activism and dementia care are linked through the incredible efforts of both the individual and their support network.

    For all feedback please email hello@dementiacente.com.au

    • 33 min
    Talking Art: A child's storybook-creating conversations

    Talking Art: A child's storybook-creating conversations

    Join Colm and best-selling author Alex Winstanley as they discuss Alex’s award-winning book “My Grandma has Dementia” and the importance of lived experience and child targeted authorship in dementia care. Alex spent years as a teacher and carer and has since set up a not-for-profit organisation called Happy Smiles Training CIC . Alex is currently writing a series of children's books that support them to understand a range of long-term health conditions, including dementia, depression and cancer. 
    In this episode, Colm and Alex discuss the role of his book in introducing children to the impact of dementia in a soft, supportive, yet, realistic and positive way, through the personal story of his own grandma. Alex shares his reasons for writing the book, hints and tips and the use of wonderful illustrations with subtle messages to help start the conversation.
    This conversation is the first of many podcast episodes on authorship and the many ways the arts are utilised in the field of dementia Care.
    Read ‘My Grandma has Dementia’ and Alex’s other books here . 
    The Dementia Centre has many books and resources to assist those living with or caring for people with dementia. 
    Alex, discusses the impacts of moving his grandma into care, please find here a helpful resource that provides tips on moving a loved one into residential care. 
    'Race Against Dementia' as mentioned in this episode, funds innovative dementia research. 
    We welcome any feedback to please be sent to the email: hello@dementiacentre.com.au Feedback allows us to continue to provide an up to date and relevant platform that discusses the needs and lives of those living with dementia and their carers.

    • 15 min

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