33 min

The High Cost of MS Medications with Steffany Stern RealTalk MS

    • Medicine

When my wife was diagnosed with MS in 1997, the annual cost of her MS medication was $9,000. Today, the annual cost of that same medication is $110,000.
We cannot allow the insanity associated with the cost of MS medications to continue.

Joining me to discuss the impact of the outrageously high cost of MS medications -- and what each of us can do about it -- is the National MS Society's Vice-President of Advocacy, Steffany Stern.
We're also talking about a Phase 1 clinical trial for an investigational Epstein-Barr Virus vaccine (and why that matters to everyone living with MS).
We'll tell you about a study that may have identified a biomarker for MS-related fatigue.
We're also sharing the results of a study that identified which stress-reducing activities can help reduce MS-related depression and fatigue.
And we'll tell you about a study that identified the economic benefits of starting MS medications early.
We have a lot to talk about! Are you ready for RealTalk MS??!

The (HIGH!) Cost of MS Medications   :22
NIH Announces Phase I Clinical Trial of Investigational EBV Vaccine 4:21
Study identifies a potential biomarker for MS fatigue  6:04
Study identifies stress-reducing activities that lower MS-related depression and fatigue    8:37
Study shows the economic benefits of starting MS medications early  11:25
Steffany Stern discusses the impact of the cost of MS medications   14:16
Share this episode  32:10
Download the RealTalk MS app for your iOS or Android device   32:30

SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/246

ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: jon@realtalkms.com
Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!

LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society: You Can Help Bring MS Medications Into Reach
https://nationalmssociety.org/Treating-MS/Medications/Make-MS-Medications-Accessible/Take-Action
RealTalk MS Ep.229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi
https://realtalkms.com/229
RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding this Breakthrough Research with Dr. Bruce Bebo
https://realtalkms.com/231
Cerebrospinal Fluid Amyloid Precursor Protein as a Potential Biomarker for Fatigue in Multiple Sclerosis: A Pilot Study
https://sciencedirect.com/science/article/pii/S2211034822003583
SURVEY: Undertaking Specific Stress-Reducing Activities are Associated with Reduced Fatigue and Depression, And Increased Mastery, in People with Multiple Sclerosis
https://sciencedirect.com/science/article/pii/S2211034822003169
Early vs Late Treatment Initiation in Multiple Sclerosis and Its Impact on Cost of Illness: A Register-Based Prospective Cohort Study in Sweden
https://pubmed.ncbi.nlm.nih.gov/35496759
iConquer MS Survey for MS Caregivers
https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers
iConquer MS Survey for Researchers and Healthcare Providers
https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id14

When my wife was diagnosed with MS in 1997, the annual cost of her MS medication was $9,000. Today, the annual cost of that same medication is $110,000.
We cannot allow the insanity associated with the cost of MS medications to continue.

Joining me to discuss the impact of the outrageously high cost of MS medications -- and what each of us can do about it -- is the National MS Society's Vice-President of Advocacy, Steffany Stern.
We're also talking about a Phase 1 clinical trial for an investigational Epstein-Barr Virus vaccine (and why that matters to everyone living with MS).
We'll tell you about a study that may have identified a biomarker for MS-related fatigue.
We're also sharing the results of a study that identified which stress-reducing activities can help reduce MS-related depression and fatigue.
And we'll tell you about a study that identified the economic benefits of starting MS medications early.
We have a lot to talk about! Are you ready for RealTalk MS??!

The (HIGH!) Cost of MS Medications   :22
NIH Announces Phase I Clinical Trial of Investigational EBV Vaccine 4:21
Study identifies a potential biomarker for MS fatigue  6:04
Study identifies stress-reducing activities that lower MS-related depression and fatigue    8:37
Study shows the economic benefits of starting MS medications early  11:25
Steffany Stern discusses the impact of the cost of MS medications   14:16
Share this episode  32:10
Download the RealTalk MS app for your iOS or Android device   32:30

SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/246

ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: jon@realtalkms.com
Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!

LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society: You Can Help Bring MS Medications Into Reach
https://nationalmssociety.org/Treating-MS/Medications/Make-MS-Medications-Accessible/Take-Action
RealTalk MS Ep.229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi
https://realtalkms.com/229
RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding this Breakthrough Research with Dr. Bruce Bebo
https://realtalkms.com/231
Cerebrospinal Fluid Amyloid Precursor Protein as a Potential Biomarker for Fatigue in Multiple Sclerosis: A Pilot Study
https://sciencedirect.com/science/article/pii/S2211034822003583
SURVEY: Undertaking Specific Stress-Reducing Activities are Associated with Reduced Fatigue and Depression, And Increased Mastery, in People with Multiple Sclerosis
https://sciencedirect.com/science/article/pii/S2211034822003169
Early vs Late Treatment Initiation in Multiple Sclerosis and Its Impact on Cost of Illness: A Register-Based Prospective Cohort Study in Sweden
https://pubmed.ncbi.nlm.nih.gov/35496759
iConquer MS Survey for MS Caregivers
https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers
iConquer MS Survey for Researchers and Healthcare Providers
https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id14

33 min