176 episodes

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara. Support this podcast: https://anchor.fm/theluckyfewpod/support

The Lucky Few The Lucky Few Podcast

    • Kids & Family
    • 4.9 • 294 Ratings

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara. Support this podcast: https://anchor.fm/theluckyfewpod/support

    162. What happens after high school? (Ft. Val - Recent OT Grad + TLFP Producer!)

    162. What happens after high school? (Ft. Val - Recent OT Grad + TLFP Producer!)

    So what happens when someone with Down syndrome graduates high school? When the structure and support from the education system ends, what begins? Today we’re talking about inclusive employment for adults with Down syndrome with our very own, Val Schlieder! She recently earned her doctorate degree in occupational therapy, produces this podcast, and is also very involved in her local DS community! As part of her OT schooling, she created an employment-prep program for adults with DS that focused on problem solving, social appropriateness, self-advocacy, & so much more. Today she’s sharing about the barriers to inclusive employment (hint: ableism!), the importance of autonomy, all the things people with DS ADD to a workplace, and how parents of young kiddos can start thinking about the future. Enjoy this episode, friends!

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    SHOW NOTES

    Listen to our previous episode with Val and her sister to learn more about fostering friendships with peers who have DS: 43. Back to School & All Things Best Buddies ft. Val Schlieder

    Learn more about GiGi’s Playhouse in EP 59: Finding Community at GiGi’s Playhouse w/Nancy Gianni

    Listen to more episodes about future opportunities for adults with Down syndrome.


    47. Planning for the Future w/Phillip Clark from Enable SNP
    55. All Things Puberty & DS Ft. Dr. Partridge
    66. Public Speaking & Self-Advocacy
    89. Let’s Talk About Transitions ft. Kenzie Clark
    122. Cohome: An Inclusive Housing Program That Everyone Should Know About!
    126. Creating Opportunities & Changing Perspectives Through Inclusive Employment ft. Wendy Lacey (Cornerstone Montclair)

    Get involved with The Lucky Few Foundation’s Summer Storytelling Tour HERE.

    Pre-order Everyone Belongs by Heather Avis HERE.

    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


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    Send in a voice message: https://anchor.fm/theluckyfewpod/message
    Support this podcast: https://anchor.fm/theluckyfewpod/support

    • 58 min
    161. Let's Talk About Abortion & Disability

    161. Let's Talk About Abortion & Disability

    You’ve probably seen the recent debates about abortion in the news and on social media. We’re not here to get political but these debates do give us the opportunity to call out a huge issue: people on both sides see individuals with disabilities as less than human. And today we’re talking about it (as best as we can). Because we acknowledge the amount of support it takes to raise a child with Down syndrome and the way that having certain privileges makes things a little simpler. And we also know that our systems don’t support our children well once they’re born. So much change needs to happen.. and we think changing the perception of Down syndrome is a good place to start. You’re invited to sit in this discomfort and uncertainty with us as we discuss disability, abortion, and the value of a human.

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    SHOW NOTES

    Check out the post we mention from Amy Julia Becker.

    Listen to previous episodes about abortion and disability:


    99. Our Response to “The Last Children with Down Syndrome” by Sarah Zhang
    34. Our Response to the East Family’s Negative Down Syndrome Diagnosis
    31. An Important Conversation about Abortion & Down Syndrome

    Get involved with The Lucky Few Foundation’s Summer Storytelling Tour HERE.

    Pre-order Everyone Belongs by Heather Avis HERE.

    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


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    Send in a voice message: https://anchor.fm/theluckyfewpod/message
    Support this podcast: https://anchor.fm/theluckyfewpod/support

    • 46 min
    160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)

    160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)

    Did you know that individuals with Down syndrome are frequently denied organ transplants? Just because they have a disability. We can’t believe this is a thing that’s still happening, but we are SO glad that there are people pushing back on this discrimination. Today in this episode, we are sharing two very important interviews with some extraordinary activists: Charlotte Woodward (NDSS employee + self-advocate w/DS), Bart Devon (senior director of public policy at NDSS), & Christy Sellers (lucky mama of 4 with DS + advocate). We’re talking about the Charlotte Woodward Organ Transplant Discrimination Prevention Act, Glory’s Law, the fear and ignorance that has caused this discrimination, and the recent tragedies in the DS community that have added momentum to this movement. It’s time to call your senators and sign up for the NDSS action alerts! Listen to this episode to learn more and get involved.

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    SHOW NOTES

    Visit ndss.org to learn more about all the wonderful things the National Down Syndrome Society is doing and follow them on Instagram.

    Take action on the Charlotte Woodward Organ Transplant Discrimination Prevention Act HERE!

    Keep up with Christy and her family on Facebook - Sellers Magnificent Seven

    Listen to our previous episodes about organ transplant discrimination prevention + politics in the DS community.


    140. Heart Transplant Discrimination Against People with Down Syndrome (Trigger Warning: Infant Loss)
    92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing
    17. Self Advocacy - Down Syndrome in DC with Kayla McKeon!

    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


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    Send in a voice message: https://anchor.fm/theluckyfewpod/message
    Support this podcast: https://anchor.fm/theluckyfewpod/support

    • 59 min
    159. The Trouble With Self-Care

    159. The Trouble With Self-Care

    Raise your hand if you’ve ever felt alienated by the pressure to practice “self-care!” (We know we have). And today as Mother’s Day approaches, we’re chatting about the trouble with many self-care practices and giving our own definitions to this popular term. As parents of kids with disabilities, most of us already feel like we’re at max capacity, so how can we schedule in a yoga session or weekly date night? We can’t just leave our kids with any babysitter and take off for the evening. Don’t worry, we’re not just ranting about our (failed) self-care practices in this episode.. we’re talking about actual ways to nurture ourselves (starting by admitting our limitations as humans), + our thoughts leading up to Mother’s Day. We’re holding the weight of the holiday for anyone who has experienced grief and complications related to it.

    Plus, Heather is giving a sneak peak into The Lucky Few Foundation’s Storytelling Tour! Head to theluckyfewfoundation.org to learn more and get involved. Whatever your definition of self-care is, and however you’re celebrating Mother’s Day, we see you, we appreciate you, and we are cheering you on!

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    SHOW NOTES

    Get involved with The Lucky Few Foundation’s Storytelling Tour!

    Listen to our past Mother’s Day episodes:


    113. Happy Mother’s Day! (Ft. Our Very Own Moms)
    68. Approaching Mother’s Day While Grieving

    Read Someone Other Than A Mother by Erin Lane

    Learn more about The Moth Storytelling Events

    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


    ---

    Send in a voice message: https://anchor.fm/theluckyfewpod/message
    Support this podcast: https://anchor.fm/theluckyfewpod/support

    • 49 min
    158. Faith, Healing, & Disability, ft. Amy Julia Becker (Mother/Author)

    158. Faith, Healing, & Disability, ft. Amy Julia Becker (Mother/Author)

    It’s no secret that far too often, our loved ones with Down syndrome are seen as “problems” to be “fixed,” individuals in desperate need of “healing” or medicine.. whatever that might be. While we know this is NOT the case, our society’s love of “perfection,” prescriptions and productivity has ALL of us chasing unattainable goals of “success.” But what if we pursued healing instead?

    Today we have Amy Julia Becker, a wife, mother, and author, on to discuss family, faith, and disability. And she’s well equipped to do so. Her new book “To Be Made Well” provides unique insight into personal, spiritual, and social healing from her perspective as a mother to a 16 year old child with Down syndrome. We’re so grateful she’s joined us to chat about the gift of having limitations, the intrinsic value of individuals with disabilities, holistic approaches to healing, + more.

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    SHOW NOTES

    Read To Be Made Well by Amy Julia Becker

    Listen to Amy Julia Becker’s podcast, Love Is Stronger Than Fear

    Follow Amy Julia Becker on Instagram

    Head to amyjuliabecker.com for more information!

    Listen to ep 26, our previous interview with Amy Julia Becker

    Click HERE to join Micha's book club!

    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


    ---

    Send in a voice message: https://anchor.fm/theluckyfewpod/message
    Support this podcast: https://anchor.fm/theluckyfewpod/support

    • 57 min
    157. Sibling Dynamics & Down Syndrome

    157. Sibling Dynamics & Down Syndrome

    When you receive your child’s Down syndrome diagnosis, your mind imagines a thousand different scenarios for how their life will go.. but what happens when we consider their siblings? What happens when they realize that the world won’t always be kind to their sibling with Down syndrome? Are they annoyed with each other because that’s their sibling or because they have Down syndrome? How do help our kids connect with one another?

    We’re chatting about all things SIBLINGS today! Join us as we discuss what it’s like to parent children with and without DS! We’re talking everything from dividing time between activities and therapies, figuring out how-not-to overburden any of our children, and how to share about DS with your kiddos. It can be complicated but we know one thing for sure.. our kids with Down syndrome have a special way of anchoring the family and reminding everyone of their value and worth.

    SHOW NOTES

    Check out the book we mentioned, We’ll Paint the Octopus Red by Stephanie Stuve-Bodeen

    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


    ---

    Send in a voice message: https://anchor.fm/theluckyfewpod/message
    Support this podcast: https://anchor.fm/theluckyfewpod/support

    • 55 min

Customer Reviews

4.9 out of 5
294 Ratings

294 Ratings

NNJNJNJNJNJNJNJNJNJ ,

CoHousing

I cannot thank all of you enough for talking about Housing, and featuring Nate Diskint, Founder and Executive Director of CoHomes! My son, Matthew, is 34 and we have been successful with securing many resources he likes, except for Housing. Nate’s vision IS what we have been looking for!! And we have already connected. You are all doing great work and our family Thanks You!!

Smclangford ,

Love this Rockin’ Trio

I look forward to each new release of The Lucky Few Podcast. I have a 9 year old son who has Down syndrome and he altered my life for the better in so many ways. I now serve on my local Down syndrome board. Listening to Heather, Mercedes and Micha is like having my best friends with me on my morning runs. I’m so thankful for their willingness to talk so honestly and for taking on the tough topics. There are great guests on their show which has opened my world to so many resources. I recommend this podcast to everyone I know who has a child with Down syndrome.

courtneyruth123 ,

I can’t stop listening!

I’ve been binging this podcast and I can say it has been so helpful in my life. It’s a must listen to any new parent of a child with Down syndrome. I’m a foster parent who has a sweet little baby girl with Down syndrome who has medical issues and I felt like I had been plunged into the Down Syndrome community with very little information and preparation. This podcast has been SO helpful, informational, and has helped me learn how to be a better advocate for my foster baby. Thanks ladies!

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