This show tells the stories of the children and their parents who find themselves in that one in a thousand, or one in ten thousand, or even one in a million position of having a child with special needs and how they come to cope. Finding those odds apply to you and your child can be one of the most isolating and terrifying experiences of your life. But then sometimes it can also feel like winning the lottery.
Education: Ep07 with Denise Astill
Denise Astill is the founder of FACS, an organisation set up to support and raise awareness for Foetal Anti-Convulsant Syndrome. Her twin daughters were born with the funding and qualify for ACC funding. But she knows that many families miss out on this vital funding.
Education: Ep 06 with Carla McNeil
Carla McNeil comes to this conversation as a mother, an educator and now a professional advocate for children with dyslexia in her role at Learning Matters. In this episode she talks about what she sees as the key issues in the classroom for teachers and learners when there is a learning difference present.
Education: Ep 05 with Kerry Hodge
Kerry Hodge and her family were dreading the new school year without the necessary supports for her son, Felix. In this episode she talks about the struggle to get new supports and how she feels lucky, but really it shouldn't be about luck, these kinds of supports should come standard.
Episode 30: Paula Tesoriero - New Zealand's Disability Rights Commissioner
Paula Tesoriero is New Zealand's Disability Rights Commissioner. In this episode she talks about what she intends to do in the role and how she came to terms with her own disability caused by amniotic band syndrome before she was born.
Education: Ep04 with Tansy Sayers
People buy houses in specific zones for the schools they offer their children, but when you have a child with learning disabilities and complex needs in New Zealand, you may have to move entire cities just to get your child an equitable education. This is the story of Tansy Sayers, her son Charlie, and their move from the Wairarapa to Wellington to get Charlie the education he deserved and needed.
Education: Ep 03 with Beth Armstrong
Beth Armstrong struggled to find equitable education for her daughter Molly. They tried one school after another, and despite some valiant efforts on the part of the schools and teachers, it wasn't until she reached high school, where there was a dedicated unit for students with disabilities and complex needs that Molly started to flourish.
In this episode Beth tells her journey of trying to find equity for Molly in a system which doesn't give many options.
As the parent of twins who have typical needs, this podcast has offered at least a small insight into the world of parents who have children with special needs.
Before having children I admittedly wondered how parents could reach so far to care for children who have disabilities, but these stories now resonate. While I can't fully understand what the parents on the podcast have gone through, their stories are beautiful and emotional, and at times I cried along with them.
Honest and connecting
Guests share authentic stories of discovering unexpected information about the heath of a child. Often parents become more compassionate human beings at the end of it all. Though, sometimes children are never "cured" or done with therapy or treatment. These honest stories may help listeners cope with the sadness of a rare diagnoses, the stress of endless specialists and paperwork, and the loneliness associated with being a parent of a child with special needs. Really look forward to more episodes.
So much courage
This podcast is really honest and beautiful and courageous as hell. I'd suggest giving it a listen.