190 episodes

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness.

Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

The POTScast Standing Up to POTS, Inc.

    • Health & Fitness
    • 4.8 • 80 Ratings

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness.

Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

    E178: Psychiatric Manifestations of MCAS with Dr. Janet Settle as part of the Mast Cell Matters series

    E178: Psychiatric Manifestations of MCAS with Dr. Janet Settle as part of the Mast Cell Matters series

    Dr. Settle is a psychiatrist who believes that mast cell activation is responsible for some symptoms of anxiety, depression, bipolar disorder type II and others. She treats MCAS as a way to stabilize both mast cells and their emotional state.
    You can read the transcript for this episode here: https://tinyurl.com/potscast178
    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate
    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!
    Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/
    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

    • 45 min
    E177: Gender Matters in Perceived Burdensomeness in POTS Patients with Dr. Cathy Pederson

    E177: Gender Matters in Perceived Burdensomeness in POTS Patients with Dr. Cathy Pederson

    Perceived burdensomeness, feeling like a burden to friends and family, is common in POTS patients. This feeling can be a predictor of suicidal thinking, particularly in men. We can change feelings of burdensomeness - find out how in this episode!
    You can read the transcript for this episode here: https://tinyurl.com/potscast177
    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate
    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!
    Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/
    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

    • 43 min
    Christmas Poem 2023 — Low Expectations

    Christmas Poem 2023 — Low Expectations

    Happiest holidays from everyone at Standing Up to POTS!

    • 4 min
    E176: POTS Diary with Hanna, a museum educator in Oregon

    E176: POTS Diary with Hanna, a museum educator in Oregon

    Hanna had a 15-year journey to her POTS diagnosis after fainting episodes that started in her teens. An avid athlete, she has completed a triathlon and climbed mountains in her less symptomatic days.
    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate
    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!
    Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/
    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

    • 34 min
    E175: Graded Exercise and Pacing in POTS with Dr. Catherine Lewan

    E175: Graded Exercise and Pacing in POTS with Dr. Catherine Lewan

    Dr. Lewan, a POTS patient with a CSF leak, helps many patients learn how to listen to their bodies and slowly progress in their physical therapy exercises. An understanding practitioner can make all the difference in assisting POTSies to live their best lives!
    You can read the transcript for this episode here: https://tinyurl.com/potscast175
    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate
    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!
    Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/
    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

    • 51 min
    E174: Building Resilience with Dr. Katie Gorman Ezell and her student Katie

    E174: Building Resilience with Dr. Katie Gorman Ezell and her student Katie

    Resilience is a nuanced topic. How do you build it? Is it always a compliment if someone says you are resilient? How can we better support our chronic illness community? Dr. Gorman-Ezell discusses it all!
    You can read the transcript for this episode here: https://tinyurl.com/potscast174
    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate
    Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!
    Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/
    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

    • 31 min

Customer Reviews

4.8 out of 5
80 Ratings

80 Ratings

Faithfully Driven11 ,

Living w POTS

As someone who has POTS, I can totally relate to everything here on this podcast. Thank you for sharing this information and help.

POTSy me ,

Great info delivered by lovely people

This is great and I especially appreciate the POTS Basics episodes, where Dr. Cathy Pederson, the neurobiology professor and President/founder of Standing Up to POTS always explains things so clearly. And with so much compassion and empathy. These episodes are great for helping my family understand POTS better.

Oflores22 ,

So amazing!

This has been such an incredible tool. I was diagnosed with POTS and had never heard of it. I’ve learned so much, Jill is awesome , I’ve taken away some amazing tips, and look forward to hear others stories who are going through the same.
Thanks so much for talking about pots and making it a bit easier with those of struggling with it.

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