31 episodes
The Sickle Cell Podcast Sickle Cell 101
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- Education
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5.0 • 42 Ratings
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Talking about all things sickle cell related, sharing warrior experiences and providing sickle cell related education. Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support
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Sickle Cell + Bone Marrow Transplant
Featuring Christina Augustine and Dr. Alexander I. Ngwube, MD, this episode provides an comprehensive exploration on bone marrow transplant (BMT) for sickle cell disease, blending personal experiences with professional expertise.
A huge thank you to Be the Match for Sponsoring this episode. For more information about Be the Match, visit: https://sicklecellconnect.com
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Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support
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Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support -
Love + Sickle Cell Trait (Feat. Abisola and Seyi Shof)
For the month of July, we are bringing awareness to sickle cell trait. Abibat Oshiobugie Suleiman is the host for today's episode. Abi talks with special guests Abisola and Seyi Shof, also known as “the Shofs” on social media, about their involvement in the sickle cell community, their love story with SCT, the challenges they had to face with telling their families, and weighing the options for marriage and children that led them to their IVF journey with PGD testing.
Find Abisola and Seyi Shof on
Instagram: @theshofs
--- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
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Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support -
Hot Topic 🔥 Family Planning + "Genetic Incompatibility"
The first of our Hot Topic 🔥 series. Hosts Stephen and Cass have THAT conversation about two individuals wanting to have children but are faced with a chance of having a child with sickle cell disease.
Do you believe people who are "genetically incompatible" (like AS and AS) should have children? Send in your responses to podcast@sc101.org
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2021 SCAY Award Winners + Their Stories, Their Work (Feat. Biba Tinga, Siliana Coelho, and Sarah Masamba)
Cass chats with the 2021 Sickle Cell Advocates of the Year (SCAY) Award recipients about how they got involved and what they’ve achieved. This episode features:
Biba Tinga - Sickle Cell Advocate of the Year
Siliana Coelho - Digital Sickle Cell Community Advocate of the Year
Sarah Masamba - Sickle Cell Healthcare Profession (HCP) Advocate of the Year
A big thank you to our partner AllStripes!
Visit https://sc101.org/SCAY to connect and learn more about the SCAY Award winners.
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Sickle Cell + Caregiver
Caregiving for sickle cell is underrated... Celebrating National Family Caregiver's Month, it's just Stephen and Cass this episode talking about what caregiving for sickle cell looks like – even caregiving from abroad. There is mild humor sprinkled in too. 😬
A HUGE THANK YOU TO OUR SPONSOR: Sickle Cell Speaks
#SickleCellSpeaks is people sharing their stories and strengths living with sickle cell. #SickleCellSpeaks talks about navigating the situations and feelings people with sickle cell face. Visit sicklecellspeaks.com to learn more.
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Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support -
Sickle Cell + The Workplace (Feat. Tayo Rockson, MBA)
Hosts Dr. Stephen Boateng and Cass Trimnell talk to workplace diversity and inclusion expert Tayo Rockson, MBA about discuss tips, accommodations, and how to navigate the workplace when living with sickle cell disease.
Find Tayo Rockson on
Instagram: https://www.instagram.com/tayorockson
Website: https://tayorockson.com
Podcast: https://podcasts.apple.com/us/podcast/as-told-by-nomads/id910739730
A HUGE THANK YOU TO OUR SPONSOR: Hemanext
Hemanext partners with groups like Sickle Cell 101 on resources and tools for sickle cell patients. Safer transfusions, healthier patients, that’s their mission. Visit hemanext.com to learn more about the company.
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Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support
Customer Reviews
Beneficial information
I’ve listened to the Feb. 2020 episode and I’m truly grateful for the information shared. There’s so many new research and studies being done, I appreciate this podcast for sharing so much worthwhile, life improving information for both Sickle cell disease and Sickle cell trait. Continue to provide this information to the public!!
Great listen!
I really enjoyed the first podcast and looking forward to listening to more! Yay, Stephen and Casa!!
Thank you for this amazingness!
I thoroughly enjoyed the cheesiness but very informative topics on this podcast. I recently started a YouTube about dating some one with sickle cell to bring awareness but also to learn more about this disease. I can’t wait for the next episode!