Live Episode: Maddux will need brain surgery (#14) this week What Am I Thankful For

Update on how our 2022 has been going

Why we haven't been recording
Update on Maddux's school year
Professional Updates

Brain Surgery #14

Diagnosis from routine MRI
Typical signs of shunt failure
Famous sports figures who wore #14 (https://www.ranker.com/list/best-athletes-who-wore-14/ranker-sports)

Our brain surgery playbook

Quarantine leading up to surgery
Have to shave his head bald
Bowel management
Stay at a nearby hotel

Spring Break - Hawaii Trip

Trouble with COVID Protocols
Flying with special accommodations
Beach photoshoot
Hiking Pill Box (http://www.lanikaipillbox.com/)
Rental Equipment (https://www.babyquip.com/)

Maddux's other accomplishments

School year awards
Challenger Little League Baseball
Abilities Expo
Celebrity Encounters (https://www.instagram.com/whatamithankfulfor/)
Maddux was in a children's book (https://theablefables.com/product/garys-gigantic-dream/)
Complete his 5th 5K this year

Struggles with Medical Insurance

Lagging authorizations
Rising Co-pays
Outright denials of things that he needs
Leads to hours and follow-up calls and frustration
How do other families navigate this?

Check out the blog: https://thankfulforpod.wpcomstaging.com/home/