12 min
Growing Up with a Neurodegenerative Disease: Friedrich's Ataxia – Stephanie Magness Joni and Friends Ministry Podcast
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- Christianity
Like most young women, Stephanie Magness wanted to fit in, to be like her friends and classmates. But in 7th grade when she learned she had scoliosis, Stephanie began an unexpected decade-long journey of misdiagnosis that was eventually confirmed to be Friedrich’s ataxia (FA), a rare neurodegenerative disease that has no cure.
This week on the podcast, Stephanie is sharing about being diagnosed with FA at age 22 and the unexpected ways her life has changed because of this progressive disease. Although losing some of her abilities related to walking and communication has not been easy, Stephanie has faced each challenge with the support of her community who have reminded her of God’s love in the most surprising of ways.
Like most young women, Stephanie Magness wanted to fit in, to be like her friends and classmates. But in 7th grade when she learned she had scoliosis, Stephanie began an unexpected decade-long journey of misdiagnosis that was eventually confirmed to be Friedrich’s ataxia (FA), a rare neurodegenerative disease that has no cure.
This week on the podcast, Stephanie is sharing about being diagnosed with FA at age 22 and the unexpected ways her life has changed because of this progressive disease. Although losing some of her abilities related to walking and communication has not been easy, Stephanie has faced each challenge with the support of her community who have reminded her of God’s love in the most surprising of ways.
12 min