55 min
Caregiving and Work Matters of Engagement
-
- Social Sciences
We're doing something a little bit different! We're taking a shot at making video along with the podcast! You can watch this episode on our YouTube channel, or as always, you can listen in your favorite podcast app.
This episode has two parts. We're first going to feature a short talk Jennifer gave at the Canadian Caregiving Summit in Ottawa a few weeks ago, which was specifically focused on her experiences as an extreme caregiver, trying to earn a living.
After that short recording - which is about 10 minutes - tune in to Jennifer and Emily's conversation about advocacy, policy, and choice.
In this episode:
00:00 What to expect in this episode01:20 Jennifer's experience as an extreme caregiver02:20 Right to flourish, caregiving through a bioethics lens03:34 Caregiving and choice04:38 Disability is seen as a personal or family tragedy05:18 Accessing and managing support can be burdensome06:09 Extreme caregiving has an opportunity cost06:51 Financial precarity and gender08:09 What does society prefer to support?08:50 Caregiving as unpaid labour keeps caregivers in financial dependency10:01 Policy considerations and conclusion of talk11:11 Jennifer and Emily have a candid discussion!15:18 Advocacy vs. organizational agendas16:59 Caregiving can be fulfilling and also has a cost. Extreme caregiving is rarely a choice18:47 How do we differentiate between regular parenting/caregiving and 'extreme' caregiving?27:06 The amount of work that goes into managing and administering everything that goes along with extreme caregiving29:04 Putting some choice back into challenging circumstances35:35 Moral arguments for policy makers36:53 Caregiving policies potentially impact everyone40:29 Navigating care responsibilities as a family or partnership44:53 "Performing" for therapists46:39 Shared decision-making and patient/family priorities49:18 Jen and Emily reflect on how little they've talked about Jennifer's experiences with Owen51:14 Jen and Emily acknowledge that caregivers don't all have the same opportunities, experiences, or perceptions
[download transcript]
Summit links:
Canadian Caregiving Summit
Jennifer's session at the Summit
Azrieli Foundation
We're doing something a little bit different! We're taking a shot at making video along with the podcast! You can watch this episode on our YouTube channel, or as always, you can listen in your favorite podcast app.
This episode has two parts. We're first going to feature a short talk Jennifer gave at the Canadian Caregiving Summit in Ottawa a few weeks ago, which was specifically focused on her experiences as an extreme caregiver, trying to earn a living.
After that short recording - which is about 10 minutes - tune in to Jennifer and Emily's conversation about advocacy, policy, and choice.
In this episode:
00:00 What to expect in this episode01:20 Jennifer's experience as an extreme caregiver02:20 Right to flourish, caregiving through a bioethics lens03:34 Caregiving and choice04:38 Disability is seen as a personal or family tragedy05:18 Accessing and managing support can be burdensome06:09 Extreme caregiving has an opportunity cost06:51 Financial precarity and gender08:09 What does society prefer to support?08:50 Caregiving as unpaid labour keeps caregivers in financial dependency10:01 Policy considerations and conclusion of talk11:11 Jennifer and Emily have a candid discussion!15:18 Advocacy vs. organizational agendas16:59 Caregiving can be fulfilling and also has a cost. Extreme caregiving is rarely a choice18:47 How do we differentiate between regular parenting/caregiving and 'extreme' caregiving?27:06 The amount of work that goes into managing and administering everything that goes along with extreme caregiving29:04 Putting some choice back into challenging circumstances35:35 Moral arguments for policy makers36:53 Caregiving policies potentially impact everyone40:29 Navigating care responsibilities as a family or partnership44:53 "Performing" for therapists46:39 Shared decision-making and patient/family priorities49:18 Jen and Emily reflect on how little they've talked about Jennifer's experiences with Owen51:14 Jen and Emily acknowledge that caregivers don't all have the same opportunities, experiences, or perceptions
[download transcript]
Summit links:
Canadian Caregiving Summit
Jennifer's session at the Summit
Azrieli Foundation
55 min