31 Folgen
Champions for HD Podcast Shelby Lentz
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- Wirtschaft
Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone.
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A Raw Conversation About Living Gene Positive - with Charlotte Conn
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.Follow Champions/External links:linktr.ee/championsforhdWebsiteFollow Shelby:https://www.shelbylentz.com/linktr.ee/shelby_lentzIn their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media...
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Testing, Finding Support, and Mental Health with HD - With Jenna Woodard
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how she found out about her own diagnosis. Jenna also talks about the negative testing process she went through and the lack of support and information s...
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The Champions for HD Podcast - Speech-Language Pathology with Paige Wikman
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research to schedule a time with Paige or email her at (wikman.p@northeastern.edu) Spotify Podcast Link: https://open.spotify.com/show/0UsVV0F...Apple Podcast Link: https://podcasts.app...
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Losing a Spouse With Huntingon's Disease with Amy Abbott
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and her children had to go through behind the scenes as Jody's HD unfortunately progressed. She is sharing the good, the bad, and the ugly of caregivin...
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"You Only Get one Life...Find Joy" Finding Light in the Darkness of Living with HD with Kevin Bailey
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we became an official 501c3 nonprofit. It was an honor to be able to share his story on our show.I hope you enjoy our conversation!Follow Champions:ht...
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Living Gene Positive in a Relationship - with Sarah and Brandon
**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I sit down with Sarah and Brandon, a couple who are battling HD. Brandon was diagnosed with HD a few years back. They talk about the highs, the lows, and the importance of a strong foundation and partner in a relationship with HD.I hope you enjoy our conversation!Follow Champions:https://www.championsforhd.or...