57 episodes
AAMDSIF Podcasts for Patients The Aplastic Anemia and MDS International Foundation
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- Salud y forma física
"Podcasts for Patients" from the Aplastic Anemia and MDS International Foundation.
For more, see our podcast page at: https://www.aamds.org/podcast/
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Dr. Rory Shallis explains new FDA approval for imetalstat
This new therapy is designed for patients with Low-Risk MDS. Dr Shallis explains which patients may see help for their anemia with this treatment as well as manageable side effects.
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Recent FDA Approval of Danicopan for patients with PNH
Dr. Caroline Piatek describes the purpose and use of this new drug approval for some patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria
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Athletic Service Member Conquers Aplastic Anemia and MDS with Transplant
Damian describes his story of diagnosis, treatment, and bone marrow transplant in this compelling episode.
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Conquering PRCA: a conversation with Ron Duncan, Patient Survivor
Director for Patient Services, Leigh Clark, interviews Ron Duncan about his journey with Pure Red Cell Aphasia, or PRCA.
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Hepatitis-Associated Aplastic Anemia with Dr. Roma Rajput
Dr. Roma Rajput explains the origins and treatment of hepatitis-associated Aplastic Anemia in this AAMDSIF Podcast for Patients Episode.
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Brian Anderson Explains Life, Treatment, and Surviving MDS
AAMDSIF Director of Patient Programs, Leigh Clark, asks Brian about his life before diagnosis, during "watch and wait," through transplant, to now. Listen here to his myelodysplastic syndromes, or MDS, patient journey.