Let's Talk About Brain Tumours The Brain Tumour Charity

In this episode, we talk to Anya Jones and Kaz Melvin about their experiences of rehabilitation.  Anya was diagnosed with a brain tumour and needed extensive rehabilitation after her diagnosis and treatment whilst Kaz has both personal and professional experience of brain tumours and rehab.  She is a physiotherapist but also supported her sister Ria who sadly died from a glioblastoma in 2021.

Together Anya and Kaz have worked with the charity to create some resources to help people understand how rehab could help them and the sort of help available.  You can find out more here

If you would like to be involved in the work Kaz and Anya are doing you can email  involvement@thebraintumourcharity.org


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In this episode, Chandos talks to one of our Future Leaders Dr Angel Alvarez-Prado. Angel is a highly accomplished researcher at the University of Lausanne in Switzerland where he is currently working on the innovative perspective of simultaneously targeting both cancer cells and their supporting immune microenvironment in the hope of finding more effective treatments for glioblastomas. Angel explains what his research involves and how it may help people diagnosed with glioblastoma in the future.

You can read more about Angel and his research here
You can find out more about the research we fund here

You can contact our Research team by emailing  research@thebraintumourcharity.org or phoning 01252 418190.
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In this episode, we talk to Alex, Katie and Martin.  At 20 Alex was diagnosed with a rare paediatric brain tumour DLGNT with limited treatment options his mum Katie did her own research into how best to help Alex, finding help and support internationally.  In February 2024 Martin, along with 3 of his friends are taking on the Everest in the Alps challenge to raise 500,000 to go towards research into paediatric brain tumours.

You can follow Alex AKA Syren on Spotify here

Find out more about The Everest Centre here

Find out more about the Everest In The Alps Challenge Marting is doing here

You can donate using the links below

UK/Europe: https://www.justgiving.com/team/Syren 
 Canada: https://www.kindredfoundation.ca/syren

USA: www.pbtfus.org/syren

You can follow Team Syren on  Instagram @everestinthealpssyren 


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In this episode, we talk to Liam Young about his recovery from his brain tumour.  Liam tried the traditional route of counselling but found this wasn't for him but he found his perfect form of therapy through a personal trainer.

Liam talks about how at 25 he had never prioritised his health, but after his diagnosis he realised how important health actually and how that led to him embarking on a fitness program which he says helped him to deal with the mental and emotional trauma of his diagnosis.

If you would like to find out more about the ways a brain tumour diagnosis can affect your mental health and the support available you can find out more on our website

If you would like to speak to a member of our support team you can call 0808 800 0004 or email support@thebraintumourcharity.org



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In this episode we talk to Bethan and Gbenga Adelekan who's son Ravi was diagnosed with a brain tumour when he was just 6 years old.  Despite this Ravi, now 8 has not let this stop him from using his experience to help others and also to continue to follow his own dreams!

After his diagnosis and surgery, Ravi decided that he want to do something that would help other children like him and one day help find a way to stop any other child going through what he had gone through so with the help of his parents they created Ravi's Dream.

You can find out more about Ravi's Dream here

You can follow Ravi's story on instragram @ravis_dream

You can also find out more about our Children and Families Service on our website here
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In this episode Anna and Chandos talk to Ben Rimmer, a research assistant at Newcastle University and the work they are doing on the quality of life of people diagnosed with low grade glioma's.  The Ways Ahead research project aims to understand more about the lived experience of people with low grade gliomas and how to improve their quality of life. 

You can find out more about the Ways Ahead Research here

You can find out more about the research that The Brain Tumour Charity fund here:

Research into Adult Brain Tumours

Research into Childhood Brain Tumours

If you would lke to make a donation to enable us to continue to fund research into brain tumours you can find ways to donate here

You can vist our website here
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