18 episodes
Hacking Hypermobility Two Bendy Mommas
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- Health & Fitness
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5.0 • 1 Rating
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We explore the health and wellness concerns of people on the hypermobility spectrum from diagnosis to management, asking those on the forefront of research and treatment how to help all of us on the hypermobility and connective tissue disorder spectrum including the Ehlers-Danlos Syndromes.
Visit us at:
https://www.hackinghypermobility.com/
Watch video episodes with closed captioning here:
https://www.youtube.com/channel/UC77bi8SlAh-ZsX4z6b3cpTw
Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support
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2.7 April, Autism, and Intersectionality - Part Two
Meet Jesenia - Creator of Neurospicy Networking
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Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message
Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support -
2.6 April, Autism, and Intersectionality
Filmed on location at the Omni Nashville on November 10, 2023
Contact LyricalShkspr at lyricalshkspr@gmail.com and purchase her books here: Linktr.ee/lyricalshkspr
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Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message
Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support -
2.5 All the Love for Charm City
The Bendy Mommas are still on Spring Break and will return in two weeks with new episodes!
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Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message
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2.4 Disability Rights and TikTok
In this mini episode, The Bendy Mommas discuss why TikTok is important for building communities.
In the US, find your elected representatives:
https://www.usa.gov/elected-officials
Keep up with the US Government here:
https://www.c-span.org/
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Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message
Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support -
2.3 Year in Review 2023 - Neurodivergent Edition
The Bendy Mommas discuss the news about neurodivergence from the year 2023. Luna and Shelli’s 2023 wrap-up has all the news you missed pertinent to ADHD and ASD. If you have any questions or comments for future episodes please send us a message (voice, audio, or video) to tiffany@hackinghypermobility.com
Be sure to give us permission to use your name
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Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message
Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support -
2.2 Year in Review 2023 - Hypermobility Edition
The Bendy Mommas continue the second season with a review of Zebra news from 2023. Luna and Shelli’s wrap-up has all the news you missed pertinent to Hypermobility and the Ehlers-Danlos Syndromes.
If you have any questions, comments, or suggestions for future episode topics, please send us a message (voice, audio, or video) to tiffany@hackinghypermobility.com or info@hackinghypermobility.com
Be sure to give us permission to use your likeness and if you want us to use your name, photo, or voice.
References
Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes - ScienceDirect
Multiple Sustainable Benefits of a Rehabilitation Program in Therapeutic Management of Hypermobile Ehlers-Danlos Syndrome: A Prospective and Controlled Study at Short- and Medium-Term - ScienceDirect
Full article: Pilot study of an online-delivered mindfulness meditation in Ehlers-Danlos syndrome (hEDS): effect on quality-of-life and participant lived experience
Research article Folate-dependent hypermobility syndrome: A proposed mechanism and diagnosis
A novel mutation in collagen transport protein, MIA3 gene, detected in a patient with clinical symptoms of Ehlers–Danlos hypermobile syndrome
Ehlers-Danlos Syndrome is Associated with Increased Rates of Adjacent Segment Disease Following TLIF: A Propensity Matched Study - ScienceDirect
Sacroiliac joint fusion in patients with Ehlers Danlos Syndrome: A case series - ScienceDirect
Outcomes Following Anterior Cervical Discectomy and Fusion in Patients With Ehlers-Danlos Syndrome - Jialun Chi, Jon Raso, Vaibhav Tadepalli, Lawal Labaran, Eunha Oh, Jesse Wang, Francis H. Shen, Xudong Li, 2023
Mike and Sofia Segal Family Foundation pledge $6.7 million to advance research - The Ehlers Danlos Society
$2.375 million pledge from InVitro Cell Research, LLC (ICR) for research in hypermobile Ehlers-Danlos syndrome (hEDS)
EDS Maternity Co-created Tools | hEDS Together
2023 Diagnostic Framework for Pediatric Joint Hypermobility - The Ehlers Danlos Society
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Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message
Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support
Customer Reviews
Amazing information
Thank you so much for this podcast it’s been so helpful x
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