4 episodes
SMA My Way Roche
-
- Society & Culture
What’s it like living with spinal muscular atrophy (SMA)?
Join Karli, Louise, Martyn and Pia, the SMA My Way Champions, and their special guests as they talk careers, science, dating, travel, parenting, music and fashion and much more.
SMA is a rare neuromuscular disease with a close-knit community of resilient problem-solvers at its heart. Focusing on their passions, the Champions foster conversations that are dynamic, inspiring and bring people together.
All episodes are available with subtitles on YouTube: https://www.youtube.com/playlist?list=PLmXzuVn0p6GD0W59WShp5lC2ucwlqVD8E. For a transcript of the episodes and more information: https://global.smamyway.com/resources.
Please note, this podcast features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.
This podcast series is sponsored by Roche.
Hosted on Acast. See acast.com/privacy for more information.
-
Pia speaks with Anna Kuusela, leadership coach and business mentor - Part 2
Pia is the mother of a child with SMA. She's also a caregiver, working professional, student, daughter, wife and so much more! In part 2 of Pia's episode, she's joined by Anna Kuusela, a leadership coach and mentor, to discuss emotional intelligence and the role leaders need to play to ensure better inclusion and diversity in the workplace.
Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.
Please note, this episode features the specific, personal stories of individuals with SMA. Their views and experiences do not necessarily represent those of the entire community.
This podcast series is sponsored by Roche. M-XX-00015970. Date of preparation: January 2024.
Hosted on Acast. See acast.com/privacy for more information. -
Pia speaks with Anna Kuusela, leadership coach and business mentor
Pia is the mother of a child with SMA. She's also a caregiver, working professional, student, daughter, wife and so much more! In part 1 of Pia's episode, she's joined by Anna Kuusela, a leadership coach and mentor, to discuss Pia's life as a caregiver and the process of coming to terms with her child's SMA diagnosis.
Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.
Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.
This podcast series is sponsored by Roche. M-XX-00015751. Date of preparation: December 2023.
Hosted on Acast. See acast.com/privacy for more information. -
Meet Karli, Louise, Martyn and Pia
Karli is a disabled writer, music enthusiast, and pun connoisseur, and she’s just one of your hosts! In the very first episode of SMA My Way, Karli introduces SMA Champions Louise, Martyn, Pia, their passions and the conversations that inspired them to speak on life with SMA.
Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.
Please note, this episode features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.
This podcast series is sponsored by Roche. M-XX-00015592. Date of preparation: November 2023.
Hosted on Acast. See acast.com/privacy for more information. -
Introducing…SMA My Way
Introducing Karli, Louise, Martyn and Pia - four incredible people who live with or care for people with Spinal Muscular Atrophy (SMA).
Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources
Please note, this podcast features the specific, personal stories of individuals with SMA, and their views and experiences do not necessarily represent those of the entire community.
This podcast series is sponsored by Roche. M-XX-00015591. Date of preparation: November 2023.
Hosted on Acast. See acast.com/privacy for more information.