Take a Pain Check Natasha

In this week's episode of Take a Pain Check, Carin Lin joins as a guest to share her journey as a parent of a child with Kawasaki Disease (KD), focusing on her son Isaiah's experience. Carin recounts Isaiah's diagnosis story, shedding light on the symptoms that led them to seek medical attention and the challenges they faced during the diagnosis process. The discussion delves into what Kawasaki Disease is, its symptoms, and how it presents itself in children like Isaiah. Carin shares her advocacy journey, emphasizing the importance of pushing for a diagnosis and educating oneself about the disease after diagnosis. Isaiah's treatment journey, including medications and major surgeries like double bypass surgery, is explored. Carin discusses preparation, the recovery process, and her role in supporting Isaiah. The lifestyle adjustments Isaiah has made and the accommodations needed, especially in school and extracurricular activities, are discussed, highlighting the importance of family support. Carin talks about her involvement in founding Kawasaki Disease Canada is explored, along with the organization's mission and the changes observed in KD recognition over time.

Don't forget to like, comment, and subscribe for more insightful episodes.

Join our peer support group here for this month's session in April: https://us02web.zoom.us/meeting/regis...

Our socials:
Website: ⁠https://www.takeapaincheck.com/⁠
Instagram: ⁠  / takeapaincheck_  
Tiktok: ⁠https://www.tiktok.com/@takeapainchec...
Facebook:   / takeapaincheck  
LinkedIn:   / take-a-pain-check  

Carin's socials
Facebook:   / kawasakidiseasecanada     / isaiahskdjourney   Twitter: @kawasakidiscan @IsaiahsJourney Instagram: @kawasakidiseasecanada @carinlin17 LinkedIn: Carin Lin, Kawasaki Disease Canada
Youtube: @kawasakidiseasecanada345

Growing Pains, Copyright, 2018, Alessia Cara

Welcome back to this week's episode of Take a Pain Check! Today, I'm thrilled to have Delane Linkiewich with us, sharing her journey with chronic pain and the incredible insights she's gained along the way. Delane opens up about her experiences, from the car accident that started it all to the psycho-social impacts she's navigated. We delve into the various physical therapies she's tried, her medication regimen, and how she managed treatment during the challenging times of the pandemic. Growing up with chronic pain wasn't easy, and Delane shares how she had to step back from activities at times. She also sheds light on misconceptions about chronic pain and her time in the clinic until she transitioned to adult care. As a passionate advocate, Delane discusses her involvement in research, including her master's work on peer support in pediatric chronic pain. Learn about her initiatives with the Chronic Pain Network, her role in the 'Putting the Pieces Together Conference,' and valuable tips she offers for those living with chronic pain.

Don't forget to like, comment, and subscribe for more insightful episodes.

Join our peer support group here for this month's session in April: https://us02web.zoom.us/meeting/register/tZUlf-itrzwpHdHeWxl0qYTy7NYOptjjt8Qh#/registration

Our socials:
Website: ⁠https://www.takeapaincheck.com/⁠
Instagram: ⁠ https://www.instagram.com/takeapaincheck_/
X: ⁠ https://twitter.com/takeapaincheck
Tiktok: ⁠ https://twitter.com/takeapaincheck
Facebook: https://www.facebook.com/TakeaPainCheck/
LinkedIn: https://www.linkedin.com/company/take-a-pain-check

Delane's socials:
Email: dlinkiew@uoguelph.ca
X: https://twitter.com/delanelinkie

Growing Pains, Copyright, 2018, Alessia Cara

#chronicpain #peersupport #caraccident #pain #invisibledisability #phd

In this week's episode of Take a Pain Check, we welcome Ayesha as our special guest, sharing her incredible journey of diagnosis, advocacy, and touching moments of kindness. Ayesha recounts her initial symptoms that led her to seek medical help, navigating a complex medication regimen, and the ups and downs of her health journey. She reflects on her determination during her undergraduate years, the challenges of planning a wedding while managing her health, and a difficult experience in the emergency room. Ayesha also shares her memorable experience attending Taylor Swift's Eras tour, even in a wheelchair. During the episode, Ayesha updates us on her current health status, medication routine, and mental well-being, offering hope and valuable insights to listeners. She shares Taylor Swift's response to her Tumblr post, and how she met her in person. The conversation shifts to Ayesha's TikTok journey, where she discusses how she creates 'Get Ready with Me' videos, and she discusses her experience living with lupus, highlighting moments of inspiration and the positive impact on her community.

Our socials:
Website: ⁠https://www.takeapaincheck.com/⁠
Instagram: ⁠https://www.instagram.com/takeapaincheck_/
X: ⁠  https://twitter.com/takeapaincheck
Tiktok: ⁠https://www.tiktok.com/@takeapainchec...⁠

Ayesha's socials:
Tiktok: @ayeshaakhurram
Instagram: @ayeshakhurram

Growing Pains, Copyright, 2018, Alessia Cara

In this episode of Take a Pain Check podcast, we delve into the life of Alexander Levine, unpacking his journey with Ankylosing Spondylitis (AS) from diagnosis to shoulder surgery and beyond. Alex shares the story of his diagnosis, detailing life before AS and the challenges he faced in his career, particularly in the health and fitness industry. We explore the knowledge gap between fitness and AS, how his perspective on fitness shifted post-diagnosis, and the impact of physical therapy on his symptoms. Alex also opens up about his shoulder surgery, discussing the pain and recovery process. He sheds light on how friendships and relationships evolved, the support he received from loved ones, and the pivotal role of the chronic illness community. He also talks about managing a family and newborn with a diagnosis. As a fitness enthusiast and owner of a virtual personal training business, Alex shares insights into his unique training style tailored for those with AS, addressing the mental blocks and challenges that come with chronic illness. The episode wraps up with valuable advice from Alex on getting started in the fitness industry with a chronic condition and changing mindsets for youth already interested in fitness.

Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month:https://us02web.zoom.us/meeting/register/tZMrduGuqj0uHdDgcBicDuG0TBjtvcnGwGkI#/registration

Join our campaign at a landmark near you for World Young Rheumatic Disease Day: https://www.takeapaincheck.com/light-it-blue

Our socials:
Website: https://www.takeapaincheck.com/
Instagram: https://www.instagram.com/takeapaincheck_/
X: https://twitter.com/takeapaincheck
Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en

Alex's socials:
Youtube:  @AlexLevineFitness 
Instagram: @alexlevinefitness
Tiktok: @alexlevinefitness

Growing Pains, Copyright, 2018, Alessia Cara

In this episode, we're honored to have Jeanine V McGuire sharing her incredible journey with JRA (Juvenile Rheumatoid Arthritis). From her diagnosis story spanning two years to navigating high school with accommodations, shifting friendship dynamics, and excelling as a student-athlete, Jeanine's resilience shines through. She dives into the challenges of managing arthritis during college, both living independently and staying at home. We explore her dedication to fitness, adapting training routines, and maintaining a social life. Jeanine shares valuable insights on transitioning to adult healthcare, telling her partner she has arthritis, getting involved in the chronic disease community, and her impactful roles with the Arthritis Foundation, including the PA race planning committee and the Ease of Use Box campaign. Tune in for advice on managing chronic conditions while pursuing your passions, maintaining a positive mindset, and insights into Jeanine's worries for the future.

Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month: https://us02web.zoom.us/meeting/regis...

Our socials:
Website: https://www.takeapaincheck.com/
Instagram:   / takeapaincheck_  
Tiktok:   / takeapainchec.  .
X:   / takeapaincheck  

Jeanine's socials: @champion.of.yes and   / jeanine.v.mcguire  

Growing Pains, Copyright, 2018, Alessia Cara

In this episode of Take a Pain Check, we delve into the experiences of Jillian Wickert, who has been living with Juvenile Idiopathic Arthritis (JIA) for the majority of her life. From her diagnosis story to navigating through various treatments and medications, Jillian shares her journey with candor and resilience. We explore the challenges she faced in school and the impact of her condition on her social life. Jillian also opens up about the psychological barriers she encountered and how she overcame them, shedding light on the need for understanding and support. As she discusses her thesis project centered around the question 'How are you doing, really?' Jillian offers valuable insights into what constitutes a neutral experience for individuals living with JIA. We uncover the nuances of Jillian's journey, gain valuable advice for those facing similar circumstances, and explore the significance of community engagement in the realm of chronic illness. Additionally, we delve into the exploration of alternative treatment options alongside medications, the interactions with people over a lifespan, and the delicate balance of when to share or withhold information about one's arthritis. Through the lens of trial and error, we navigate the complexities of managing chronic illness and finding the right path to wellness.



Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month: https://us02web.zoom.us/meeting/register/tZElcO2tqD8qG9LiI_INsTT7kpGKyhsnKTNZ#/registrationOur socials:Website: https://www.takeapaincheck.com/Instagram: https://www.instagram.com/takeapaincheck_/Tiktok: https://www.tiktok.com/@takeapaincheck?lang=enX: https://twitter.com/takeapaincheckGrowing Pains, Copyright, 2018, Alessia Cara