17本のエピソード

A podcast telling the stories of those affected by a fatal muscle wasting disease, Duchenne muscular dystrophy (DMD), that robs children of their ability to walk by the age of 11, the ability to raise their arms by their teenage years, and eventually their lives in their early 20s.

Hosted by 22 year old founder of the 501 (c)3 nonprofit organization Destroy Duchenne, Elijah Stacy, who also suffers from Duchenne muscular dystrophy.

The goal of the Destroy Duchenne podcast is very simple, yet ambitious: interview every person that has a relationship to Duchenne.

Destroy Duchenne Podcast Destroy Duchenne Podcast

    • ビジネス

A podcast telling the stories of those affected by a fatal muscle wasting disease, Duchenne muscular dystrophy (DMD), that robs children of their ability to walk by the age of 11, the ability to raise their arms by their teenage years, and eventually their lives in their early 20s.

Hosted by 22 year old founder of the 501 (c)3 nonprofit organization Destroy Duchenne, Elijah Stacy, who also suffers from Duchenne muscular dystrophy.

The goal of the Destroy Duchenne podcast is very simple, yet ambitious: interview every person that has a relationship to Duchenne.

    Pioneering Duchenne Muscular Dystrophy Treatment with Satellos Bioscience | Elijah Stacy & Dr. Rudnicki

    Pioneering Duchenne Muscular Dystrophy Treatment with Satellos Bioscience | Elijah Stacy & Dr. Rudnicki

    Elijah Stacy, founder of Destroy Duchenne, and Dr. Michael Rudnicki, co-founder of Satellos Bioscience and Royal Society inductee, discuss Satellos' novel approach to muscle regeneration, focusing on stimulating the body's internal stem cells rather than using external transplants. This pioneering work has the potential to transform the future of treatment for Duchenne Muscular Dystrophy.



    Learn More about Satellos:https://satellos.com 



    Want to be on the podcast? Click here: https://www.destroyduchenne.org/podca...



    Learn more about the Destroy Duchenne Podcast here: https://www.destroyduchenne.org/podcast



    Website: https://www.destroyduchenne.org

    • 41分
    Nancy and Rick share their experiences with us about Kal, their son with Duchenne.

    Nancy and Rick share their experiences with us about Kal, their son with Duchenne.

    ABOUT DESTROY DUCHENNE PODCAST:  A podcast telling the stories of those affected by a fatal muscle wasting disease, Duchenne muscular dystrophy (DMD), that robs children of their ability to walk by the age of 11, the ability to raise their arms by their teenage years, and eventually their lives in their early 20s. Hosted by 19 year old founder and CEO of the 501 (c)3 nonprofit organization Destroy Duchenne, Elijah Stacy, who also suffers from Duchenne muscular dystrophy. The goal of the Destroy Duchenne podcast is very simple, yet ambitious: interview every person that has a relationship to Duchenne - people with Duchenne, parents, family members, friends, teachers, doctors -  and tell their story to the world.  Destroy Duchenne is a registered 501 (c)3 nonprofit organization with the mission: to Complete the Cure™ for Duchenne muscular dystrophy by advancing gene-editing and gene therapy technologies, the future of medicine, into human practice.



    Federal Tax ID: #82-3268952

    • 27分
    Hunter Bradfield discusses his experiences with Duchenne and positive influences in his life that helps him to cope. (Destroy Duchenne Podcast)

    Hunter Bradfield discusses his experiences with Duchenne and positive influences in his life that helps him to cope. (Destroy Duchenne Podcast)

    Hunter Bradfield discusses his experiences with Duchenne and positive influences in his life that helps him to cope, with Elijah Stacy on The Destroy Duchenne Podcast. Hunter Bradfield is currently 26 years old and has his family’s strong support to thank for thriving to this day.

    ABOUT DESTROY DUCHENNE PODCAST:  A podcast telling the stories of those affected by a fatal muscle wasting disease, Duchenne muscular dystrophy (DMD), that robs children of their ability to walk by the age of 11, the ability to raise their arms by their teenage years, and eventually their lives in their early 20s.   Hosted by 20 year old founder of the 501 (c)3 nonprofit organization Destroy Duchenne, Elijah Stacy, who also suffers from Duchenne muscular dystrophy.   The goal of the Destroy Duchenne podcast is very simple, yet ambitious: interview every person that has a relationship to Duchenne - people with Duchenne, parents, family members, friends, teachers, doctors -  and tell their story to the world.  Destroy Duchenne is a registered 501 (c)3 nonprofit organization with the mission: to Complete the Cure™ for Duchenne muscular dystrophy by advancing gene-editing and gene therapy technologies, the future of medicine, into human practice.  Federal Tax ID: #82-3268952

    • 48分
    John Morrison talks about warrior mindsets he uses to deal with the challenges of Duchenne (Destroy Duchenne Podcast)

    John Morrison talks about warrior mindsets he uses to deal with the challenges of Duchenne (Destroy Duchenne Podcast)

    John Morrison talks about warrior mindsets he uses to deal with the challenges of Duchenne Muscular Dystrophy with Elijah Stacy on The Destroy Duchenne Podcast. John Morrison is 18 years old and grew up in a military family that places on a strong emphasis on resilience.

    ABOUT DESTROY DUCHENNE PODCAST:  A podcast telling the stories of those affected by a fatal muscle wasting disease, Duchenne muscular dystrophy (DMD), that robs children of their ability to walk by the age of 11, the ability to raise their arms by their teenage years, and eventually their lives in their early 20s.   Hosted by 20 year old founder of the 501 (c)3 nonprofit organization Destroy Duchenne, Elijah Stacy, who also suffers from Duchenne muscular dystrophy.   The goal of the Destroy Duchenne podcast is very simple, yet ambitious: interview every person that has a relationship to Duchenne - people with Duchenne, parents, family members, friends, teachers, doctors -  and tell their story to the world.  Destroy Duchenne is a registered 501 (c)3 nonprofit organization with the mission: to Complete the Cure™ for Duchenne muscular dystrophy by advancing gene-editing and gene therapy technologies, the future of medicine, into human practice.  Federal Tax ID: #82-3268952

    Connect with us at: destroyduchenne.org

    • 25分
    Nathan talks about what it's like being a father to a child with Duchenne (Destroy Duchenne Podcast)

    Nathan talks about what it's like being a father to a child with Duchenne (Destroy Duchenne Podcast)

    ABOUT DESTROY DUCHENNE PODCAST:  A podcast telling the stories of those affected by a fatal muscle wasting disease, Duchenne muscular dystrophy (DMD), that robs children of their ability to walk by the age of 11, the ability to raise their arms by their teenage years, and eventually their lives in their early 20s.   Hosted by 19 year old founder and CEO of the 501 (c)3 nonprofit organization Destroy Duchenne, Elijah Stacy, who also suffers from Duchenne muscular dystrophy.   The goal of the Destroy Duchenne podcast is very simple, yet ambitious: interview every person that has a relationship to Duchenne - people with Duchenne, parents, family members, friends, teachers, doctors -  and tell their story to the world.  Destroy Duchenne is a registered 501 (c)3 nonprofit organization with the mission: to Complete the Cure™ for Duchenne muscular dystrophy by advancing gene-editing and gene therapy technologies, the future of medicine, into human practice.  

    Federal Tax ID: #82-3268952

    • 1 時間15分
    TWINS talk about their unique experience living with Duchenne (Destroy Duchenne Podcast)

    TWINS talk about their unique experience living with Duchenne (Destroy Duchenne Podcast)

    Twins, Troy and Andrew, talk about their unique experience living with Duchenne muscular dystrophy. Learn about their positive mindset and attitude living with Duchenne!



    ABOUT DESTROY DUCHENNE PODCAST:

    A podcast telling the stories of those affected by a fatal muscle wasting disease, Duchenne muscular dystrophy (DMD), that robs children of their ability to walk by the age of 11, the ability to raise their arms by their teenage years, and eventually their lives in their early 20s.

    Hosted by 19 year old founder and CEO of the 501 (c)3 nonprofit organization Destroy Duchenne, Elijah Stacy, who also suffers from Duchenne muscular dystrophy.

    The goal of the Destroy Duchenne podcast is very simple, yet ambitious: interview every person that has a relationship to Duchenne - people with Duchenne, parents, family members, friends, teachers, doctors - and tell their story to the world.

    Destroy Duchenne is a registered 501 (c)3 nonprofit organization with the mission: to Complete the Cure™ for Duchenne muscular dystrophy by advancing gene-editing and gene therapy technologies, the future of medicine, into human practice.

    Federal Tax ID: #82-3268952

    • 38分

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