162 episodes

The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.

Major Pain Jesse Mercury

    • Health & Fitness

The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.

    Avery’s Acromegaly: “It’s All in Your Head”… but Something Is Actually in My Head!

    Avery’s Acromegaly: “It’s All in Your Head”… but Something Is Actually in My Head!

    Avery was gearing up for senior year of college when she began to notice painful changes in her body. Her initial symptoms included difficulty sleeping and intense jaw pain. Avery also began to notice growth in her facial features, hands and feet. She thought these changes could be from another […]

    • 1 hr 28 min
    Demystifying Functional Neurological Disorder: Sydney’s Story

    Demystifying Functional Neurological Disorder: Sydney’s Story

    Sydney Anne Bennett lives with functional neurological disorder (FND), which is a condition where the brain doesn’t communicate properly with the nervous system. Sydney’s symptoms include chronic pain, hallucinations, loss of taste, trouble sleeping, hand paralysis, seizures, ataxia, muscle spasms, fatigue, and difficulty using her legs. Consequently, after a year […]

    • 1 hr 7 min
    Kyle Ayers on Turning His ‘Suicide Disease’ Into Stand-Up Comedy

    Kyle Ayers on Turning His ‘Suicide Disease’ Into Stand-Up Comedy

    Kyle Ayers is a well-known comedian, famous for his podcast ‘Never Seen It‘ in which comedians re-write a scene from a show or movie they’ve never seen. Kyle is also living with a severe chronic pain condition called trigeminal neuralgia. When he was first diagnosed with this condition he was […]

    Rho’s Chronic Illness Journey: “It’s Been A Long Difficult Fight”

    Rho’s Chronic Illness Journey: “It’s Been A Long Difficult Fight”

    Rho has a self-described laundry list of diagnoses, and she has had to fight for every single one. Her list includes autism, ADHD, bipolar 2, CPTSD, excoriation disorder, keratoconus, IBS, GERD, chronic kidney disease, tactile allodynia and chronic pain. Along the way she faced constant medical gaslighting and dehumanizing treatment, […]

    JDS Creative Academy: Empowering Creativity and Disability Inclusion

    JDS Creative Academy: Empowering Creativity and Disability Inclusion

    This week on the Major Pain podcast we speak with Diane Strand, founder of the nonprofit JDS Creative Academy, which offers training and job placement in the entertainment industry to people with disabilities. JDS caters to individuals with a passion for creativity who hope to turn this passion into a […]

    Cianna’s Journey: How Chronic Illness Changed This 19 Year Old’s Life

    Cianna’s Journey: How Chronic Illness Changed This 19 Year Old’s Life

    Cianna has been a dancer her whole life, saying “as soon as I could walk I was dancing.” Over the past few years chronic illness has altered her life’s course, and frustratingly taken her away from dance. While it has been difficult to leave her life’s passion behind, Cianna has […]

    • 1 hr 3 min

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