6 episodes
Care Factor - In Conversation with Sara James Kristine Rawlinson
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- Society & Culture
For Kristine, life had turned out pretty much to plan. She had two happy kids, a loving husband, and a rewarding job improving the lives of people with a disability. Then, when her husband came down with what everyone thought was an average flu, Kristine’s life plan began to unravel.As she sat and watched her husband on life support, Kristine took comfort in the knowledge that she could get her family back on track because she knew the system. The reality was in sharp contrast to the rhetoric she was trained to deliver.In the blink of an eye, her family had become welfare dependent and their survival hinged on the generosity of others and the decisions of public servants.This story follows Kristine’s quest to regain some control over her life. A life with palpable grief, tinged with survivor’s guilt, trying to keep her family together as they all adjust to a life less than promised.A life of frustration, only made worse by inept public servants and unscrupulous ambulance chasers.A life where humour still exists, even in the darkest places, and this humour is the key to getting you through life’s cruelty.And a realisation that human behaviour is fascinating and that times like these bring out the best and the worst of it.
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Episode 6 - Anything for a plot twist!
After a six month break in recording and several COVID-19 related lockdowns, Sara and Kristine catch up on all that has happened in Kristine's life. A special birthday, a health scare and an impossible decision mean that Kristine has had to think long and hard about what is best for her and her family.
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Episode 5 - If Real Life was like The West Wing
In this episode, Kristine and Sara look back on where the system let Kristine's family down over the past few years, and how things could have been done better.
Is the problem going to be solved with money, or is there more to it than that?
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Episode 4 - The Mental Load
Having Neal at home, my role and life had changed.
I was responsible for raising the kids, advocating and caring for Neal and negotiating with systems that just didn't seem to understand where we were coming from.
I was tired. I was grumpy. I was resentful.
It all seemed so unfair, yet I felt guilty about complaining. Neal was the one who had suffered so much. What did I have to complain about? Even the thought of complaining about what I'd lost, filled me with guilt and shame.
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Episode 3 - The tables have turned
After working as a professional in the disability sector for years, I was now on the receiving end of the policies and supports I had previously designed/provided.
This was a bitter pill to swallow, and exposed where my work and attitudes in the past were misguided.
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Episode 2 - It's life Jim, but not as we know it
After being admitted to ICU, a place we'd never experienced, we became all too familiar with this futuristic environment - a bubble bearing no resemblance to our normal life. It was a time filled with grief, worry but also some laughs.
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Episode 1 - Something's not right
G’day. My name is Kristine Rawlinson and I have a story to tell. On AFL grand final day almost four years ago, my husband Neal became seriously ill and everything changed for our family. With Neal’s permission and blessing, I will fill you in on all that he has been through. This podcast will shine a light on carers - the unpaid family and friends who support others to thrive, often at their own expense.
My life changed dramatically when Neal became ill. Overnight, I was no longer a professional, I was a pensioner. And, I was no longer a wife, I was a carer. My story could be your story. Becoming a carer can happen to anyone at any time. Join me, in conversation with Sara James, for Care Factor.
Given this is the first podcast I’ve ever made, I asked lots of friends, new and old, to help me out with this project.
Enter Sara James.
For my fellow Aussies, you may know Sara from ABC News Breakfast where she has a fortnightly segment, an American in Oz. Now others may know her from her many years on NBC news in the US, where she covered assignments such as September 11, Australia’s Stolen Generations, and too many more to mention.
And as she’s the mother of a child with a rare and devastating genetic epilepsy called KCNQ2, Sara understands the complexity of my world in a way that few can.Luckily for me, Sara and I live in the same beautiful part of Australia, Victoria’s Macedon Ranges.
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