Good Works S03 EP04 - Usher Syndrome Coalition Good Works in the Heartland

The Usher Syndrome Coalition is the core of the global Usher syndrome community, working to connect those living with Usher syndrome to resources, research, and each other. The Coalition uses the power of two data collection tools to build the community, leading to a better understanding of Usher syndrome, improved quality of life, and treatments for hearing, vision, and balance issues associated with Usher.

https://www.usher-syndrome.org/