20 episodes

Parenting Special Needs Magazine now has a Podcast!!



Parenting Special Needs’ Podcast provides practical tips, shares life’s lessons, tackles the challenges and celebrates the joys of one of life’s greatest gift.



Get empowered, educated and inspired with host and Parenting Special Needs Magazine Publisher/Creator, Chantai Snellgrove as she keeps us informed on the latest trends in the special needs community. She will discuss books, ideas and news you want to hear, as well as interview special guests like parents, authors, industry experts, doctors, trendsetters, and all-around successful people that understand what we are all going through, as well as different ways to navigate the, often times, confusing questions, frustration and diagnoses. As a special needs parent, Chantai knows that “Together, we learn from others who have been on this path before us.”

Parenting Special Needs Podcast Parenting Special Needs Magazine

    • Kids & Family
    • 4.5 • 10 Ratings

Parenting Special Needs Magazine now has a Podcast!!



Parenting Special Needs’ Podcast provides practical tips, shares life’s lessons, tackles the challenges and celebrates the joys of one of life’s greatest gift.



Get empowered, educated and inspired with host and Parenting Special Needs Magazine Publisher/Creator, Chantai Snellgrove as she keeps us informed on the latest trends in the special needs community. She will discuss books, ideas and news you want to hear, as well as interview special guests like parents, authors, industry experts, doctors, trendsetters, and all-around successful people that understand what we are all going through, as well as different ways to navigate the, often times, confusing questions, frustration and diagnoses. As a special needs parent, Chantai knows that “Together, we learn from others who have been on this path before us.”

    Staying Calm While in the Chaos of the Storm

    Staying Calm While in the Chaos of the Storm

    [Click to Listen to Podcast]

    Staying calm while in the chaos of the storm

    In today’s Purposeful Conversation, we’re talking with Dr. Paula Petry, about “staying calm while in the chaos of the storm” of  COVID-19.

    Dr. Paula Petry is an author, speaker, presenter, and energy medicine practitioner. She specializes in stress and burnout, grief and loss, mindfulness, and personal empowerment.







     

    Unprecedented times



    These are unprecedented times of uncertainty –for our health, financial security, and our children’s education and well-being are under threat. However, if we remember that our children are our great teachers, we will recognize that, in some ways, we have been here before.

    You see, we experience stress when we perceive that the threat/obstacles are greater than our resources (financial, emotional, physical etc…). It is important to keep our stress levels down as it is a direct link to our immune system.

    You already have a map

    In a way, we, as parents of children with a disability, have a leg-up on the general population. We have already had to face great fear and work within the unknown when we received the diagnoses of our child’s special needs. So, we already have a map forward that we can draw upon – it is stored in our unconscious. This is what it looked like for many of us.

    What helped lower the stress after the diagnosis of your child’s special needs?

    Information, Resources, and Community Networks.

    Find meaning — we are meaning seekers.

    It takes time to know why things have happened. For me, with both my child’s birth and death, it was heart opening and learning to respect and appreciate differences. I got grounded in the reality of life.

     



     

    The power of the word

    What we say to ourselves and others as well as what we are hearing creates our reality.

    What we don’t realize is that our emotions are a response to our thoughts.



    Watch your self talk

    We talk to ourselves more than anyone else, so stop negative and future focused worry thoughts. Decide what you do and do not have control over .. and stick with the present moment.

    Talk to yourself like you would talk to your friend.

     

    Words to avoid ….



    * Stuck at home 

    * Isolated 

    * Sick of this

    * Bored

    * Tired of this …

    * At war with the virus

    * Virus is the enemy

    * XXX is killing me vs. it makes me really sad

    * This will be the death of me

    * Thoughts create your reality



     

    Takeaways from this podcast:



    * So you have an internal Map – activate it.

    * Words create your reality .. what you think say and hear …. will either increase or decrease your anxiety level.

    * Insight Timer – app for calming

    * How can we stay calm and shift our thinking during this pandemic?

    * How can we shift our perspective to help cope better?

    * How can we help our child stay calm? And how can we activate it?

    * What about the inner voice in our heads?

    * My offer: Through my website – register for my newsletter and I will send you a beautiful Tree Meditation that you can listen to with your children.







     

    Also – for anyone who feels that they need an emotional reset – you can email me for a NO COST phone consult of a 30 minute guided meditation session and recommendations for the best calming strategies for you (We need to tell our stories .. and not everyone has a good listener in their life who can offer strategies).  Here is how to contact: Dr. Paula Petry 

     

    Links or related articles to the podcast:

    Related: a href="https://www.parentingspecialneeds.

    • 28 min
    Dysgraphia: What It Is and What We Need to Know

    Dysgraphia: What It Is and What We Need to Know

    [Click to Listen to Podcast]

    DYSGRAPHIA: What parents need to know

    In today’s Parenting Special Needs Podcast’s Purposeful Conversation, we’re talking with Cheri Dotterer.

    She is the author of Handwriting Brain-Body DisConnect: Adaptive teaching techniques to unlock a child’s dysgraphia for the classroom and at home.



     

    Did you know that 33% of elementary students have difficulty with handwriting? That’s one in three students!

    Dysgraphia is the difficulty of writing by hand that does have another neurological origin or diagnosis. It can be co-morbidly linked to ADHD but is its own diagnosis. It’s everywhere: Starting with actually forming a letter on a piece of paper all the way through to having some kind of conversation on paper. That means paragraphs, letter writing, writing stories, and all of that conversational speech that we do every day, orally, that needs to be put on paper.



    How can my child read, but not be able to write?

    ~ Cheri Dotterer



    Schools are not obligated to test students until they have at least six months of data. This is why it’s important for you, the parents/caregiver, to be cautious of any delay in the ability to write from the preschool days moving forward. If so, it may yield a diagnosis. Through different literature and research, Cheri has been able to identify 18 different symptoms and goes into detail explaining what to look for with all of them. To name a few, early signs might include avoiding writing tasks, letters and numbers may be reversed, writing speed is much slower than that of their peers and so many more.

    Handwriting is the key to unlocking complete literacy. ~Cherri Dotterer

    Help might be simpler than you think through practice, patience, and play…yes you heard that right. You can change the neurological process in your child’s brain. Play is a huge part of your child’s brain development. Technology and electronics are allowing everyone to push and touch things, instead of moving and bending fingers to make them stronger. Playing outside or on a playground gives your child the opportunity to rush through that resistance and build strong hand muscles.

     



     

    Takeaways from this podcast:



    * Understanding and recognizing the signs of Dysgraphia

    * Recognizing the different types

    * How practice and play can help with brain development

    * The difference between Dyslexia and Dysgraphia



     

    Links or related articles to the podcast:

    Related: What is Dysgraphia?

    Cheri Dotterer’s Book: Handwriting Brain-Body DisConnect: Adaptive teaching techniques to unlock a child’s dysgraphia for the classroom and at home

    Related: Where Do I Go for Evaluations

    • 38 min
    Drowning in paperwork? Here’s what helps us

    Drowning in paperwork? Here’s what helps us

    Episode #36: Drowning in paperwork? Here’s what helps us

    [Click to Listen to Podcast]

    The Overwhelming Amount of Paperwork Required

    When You Have a Child with Special Needs 

    In today’s Purposeful Conversation, we are talking about the amount of paperwork we ALL have to deal with and how creating a system is helpful.

    A couple of weeks ago, we shared the image below on our Facebook page regarding the seemingly overwhelming amount of paperwork involved in raising a child with special needs. 



     

    Did you know that the number one time-waster for most people is looking for things that are lost?!? Can you relate to that?

    I thought it would make an interesting conversation to talk with Michele Gianetti, another parent that has “been there” and “done that.” She has gone through the “special education system” and I wanted to find out how she created an organizational system that works for her. Then, I also share a system I have found that works for me.

    We also include some “hacks and tips” on why it’s not only helpful but also important to save certain documents as well as understanding how long we should be keeping specific records.

     



    Being organized gives you a sense of power

    – John Maxwell.



    Here’s how to create an effective system that works for you.

    Effective Systems



    What is a system? Simply put, it’s a process for achieving a goal based on specific, orderly, repeatable principles and practices.

    We adapted what organizingworks.com says:



    To create effective systems, use the three “P’s.”



    * Policy



         2. Process

         3. Procedure

     

    A policy contains the rules, beliefs, and guidelines of a company or specific outcomes, and it drives processes and procedures.

    (The reason WHY it’s important.)

     



    A process will outline the main steps, the flow of how things or outcomes get done.

    (The process explains “What” to do, not “How” to do it.)

     



    Procedures contain the detailed steps of the actions that are needed to complete the process and comply with the policy. 

    (Procedures document the exact steps that someone (family member) can follow to complete the tasks (like a recipe)).

    Developing effective systems eliminate mistakes, lost time,

    and makes you feel more in control.



    System Example:

    Policy: Keep all IEP records and relevant school documentation.

    Process: Collect and gather all IEP documentation and store it in a safe, specific place.

    Procedure:



    * I will create a space, either a bin or binder to store essential documents.



         2. After each meeting, I will collect all the official documents.

         3. I will sort documents and put the most current IEP on top of the draft and any other paperwork involved.

        4. Three-hole punch documents and file it under the IEP tab.

     

    TIME FRAMES FOR KEEPING DOCUMENTS

    Tax forms and investment records-7 years

    Bank statements-1 yr

    Bills -1 yr

    Car/boat/vehicle- keep records until sold or gone

    Shred:

    anything with a name on it

    paystubs

    airline ticket stubs

    luggage tags

    sales receipts with a name and address on them

    anything with social security information on them.

    KEEP FOREVER

    baptism/confirmation records 

    wedding license

    wills 

    death certificates

    licenses

    social security cards

    medical records

     

    Takeaways from this podcast:

    •  Different systems that work

    • The importance of records and documents

    • Refrigerator Hack (Amazon links)

     



    Lazy Susan for refrigerator

    • 24 min
    Biophilic Design Can Benefit People with Special Needs

    Biophilic Design Can Benefit People with Special Needs

    Episode #35: Biophilic Design: What it is? Why it matters? How it can benefit people with special needs

    [Click to Listen to Podcast]

    Understanding Biophilic design with Architect Merilee Meacock: What it is, Why it Matters, and how it benefits people with special needs. 

    Biophilic Design is used in the building industry to increase occupant connectivity to the natural environment through the use of direct and indirect nature, space, and place conditions; connecting to people, plants, and animals through tactile, visual, and passive experiences to foster relaxation, focus, energy, feeling safe, and inspiration.



    In today’s Purposeful Conversation, we are talking with an architect, Merilee Meacock, a leader in the educational design community. She has assisted large and small organizations to find new building sites, made recommendations for planning new campuses and designed improvements to make existing buildings more functional and dynamic. Merilee will explain how Biophilic Design can benefit people with special needs.



    Here are some excerpts from our conversation with Merilee and why listening to this podcast can help you incorporate positive strategies into your child’s life:

    Part of our work is research around the educational environment, special needs, housing, and autism. My newest research is around anxiety and how the environment can support all of those various aspects. As we do our research, we run across different people in the industry or in other industries where we trade notes on things, and biophilic design actually came through. People see that as a real benefit, not only to the special needs community but to humanity at large.



    There is a human desire to connect to nature, it’s sort of in our DNA and there are cognitive, psychological, and physical benefits to connecting to nature. There’s a move in the design community to reconnect people back to nature.



    It gives people a sense of inner calm and focus that they might need to either learn or to communicate with someone.



    We use a sensory-based design where we design for all the senses: touch, sound, and smell. When you can appeal to all of the senses, those who may be missing one of their senses are able to still experience the architecture through other means. In nature, there are lots of opportunities to experience all of your senses with water being one of the strongest ways to do that. The sound of water trickling, the ocean, waterfalls or even little water features that you can put in your garden all contribute to the experience.



    In this podcast, Merilee shares with us some of the amazing projects she has worked on and how Biophilic Design has been incorporated into buildings, pools, and other outdoor areas. An excellent example is what they did with The Bancroft School’s Mount Laurel, NJ Campus by providing very sensory-rich experiences on the campus, such as:

    • Creating a car-free campus so students did not have to navigate through traffic

    • Hiding fencing behind plants or allowing it to become part of the architecture to create a homey feel

    • Creating a beautiful environment including open vistas and little rolling rivers

    • 32 min
    Advocate Tom Petrik is not afraid to stand out in a crowd

    Advocate Tom Petrik is not afraid to stand out in a crowd

    Episode #34: Super Dadvocate Tom Petrik

    [Click to Listen to Podcast]

    In today’s Purposeful Conversation, we are talking with advocate, Tom Petrik. We selected Tom to be our 2019 Dadvocate.

    Who is Tom Petrik?

    Tom is a teacher assistant in special education, a coach for Special Olympics, a recreational coach, Eagle Scout, and an NRA Rifle Instructor. He is currently working at a private school Camelot Therapeutic Day School in Chicago.

    He’s married to his grade-school sweetheart and has four sons. Chris, his third son, who is 25, has an official diagnosis of Fragile X, and ADHD. Tom and his wife believe that he also has autism.



    Why we selected Tom to be our 2019 Dadvocate?:

    We’ve been running our Parenting Special Needs Facebook page since 2009, and while I’ve never had the pleasure of “officially” meeting Tom until this podcast, he has been advocating and sharing his knowledge and posting comments under our “Advice Needed” posts for years.

    In the ten years that we’ve been asking “Advice Needed” questions on our page, I can count a total of (maybe) three men that have ever commented. And I don’t recall if the other two did it consistently, but Tom has done it for years! So, Tom, in my mind, stuck out from the crowd. Curiosity set in, and I wanted to know more about Tom, for instance; why he doesn’t have a problem speaking and advocating right along with a bunch of women. I thought it was time to find out more about him and to say “thank you.”

    Even now as we have started a new support group called Parenting Special Needs Magazine Support Group, Tom has been right there, jumping in once again to share information and ask probing questions to help provide resources and information.

    In this conversation, you’ll hear the following:



    * Why Tom doesn’t have a problem advocating.

    * Why he feels it’s important to advocate and what other dads need to know.

    * What he wishes he knew earlier about raising a child with special needs.

    * He believes we’re at a specific tipping point right now with inclusion.

    * The two words Tom would like everyone in the special needs community to hear.



    The key message: You can do this!

    Actionable advice:

    Find out what programs and supports are available from your state, every state is different.

    Sign up early, many programs or services have long waiting lists.

    Make sure to set future plans up in advance.

     

    Links or articles mentioned in this podcast:

    Parenting Special Needs Magazine Facebook Page

    Parenting Special Needs Magazine – Support Group

    What is Fragile X

    Medicaid Waiver by State

    • 43 min
    Encourage traveling for all without limits

    Encourage traveling for all without limits

    Episode #33: Encourage Traveling without Limits

    [Click to Listen to Podcast]

    In today’s Purposeful Conversation, we’re talking with Mom entrepreneur, Julie Jones, from Have Wheel Chair will Travel. Julie talks with us about accessible travel and her new magazine Travel Without Limits.

    Julie Jones: I’m from Australia, which you can probably tell from my accent. I have a son, Brayden, who I also refer to as BJ in my blogs. He’s now 23 years old and lives with cerebral palsy, uses a wheelchair, and needs assistance with all of his day-to-day living. So, he’s entirely dependent when we travel. I write for Have Wheelchair Will Travel, as well as some other publications, including yours. And I love sharing our travel adventures with people. I’ve always expected that, as a family, we would travel and when Brayden was diagnosed with cerebral palsy that became a little trickier. My focus, in the beginning, was very much around therapy. I really delved into this five-days-a-week therapy and was very much like a mouse on a treadmill: It just wasn’t sustainable. I think, like many families, in the beginning, it’s all-consuming. Although you don’t give up on that therapy, you realize that you need to have more of a balance.

    So, travel for us is very much a balance, and it’s been perfect for Brayden and his sibling, Amelia, as a connecting point and for us a family, as well.

    Takeaways from this podcast:



    * Find out what started Julie on this magical accessible journey helping her family and others.

    * Learn about Australia’s first disability-specific travel magazine Travel Without Limits, its mission, and why you should read it.

    * Learn about accessible travel and the changes and improvements taking place, tips that savvy, accessible travelers know, but that less savvy accessible travelers don’t.

    * Hear Julie’s number one tip to encourage families or someone new to disabilities.





    Accessible Travel & Balance

    [0:53] Julie talks about how accessible travel created a balance and a connecting point for her family and a love for sharing their travel adventures with others.

    [2:34] New and exciting things are happening with accessible travel.

    [3:22] Julie shares the reality and the need for more articles on traveling with a disability.

    [6:30] Julie discusses the mission and how the magazine will aid us all when traveling with disabilities.

    [7:10] Julie shares about one of her favorite stories in the new issue about a woman who needs four support workers to travel. Despite the many, many challenges, she continues to travel and enjoy it. Read it here.



    Find out Julie’s most fun, accessible trip to date

    [8:15] The most fun and accessible trip was also magical

    [12:21] Hear about tourism provider changes and exciting things that are happening with travel, events, and inclusion.



    [16:15] Everyday items to pack that savvy accessible travelers know and less savvy travelers don’t (four or five great things to pack are shared).

    [18:57] Julie’s tells her number one tip for parents or someone new to having a disability and traveling adventures.

    Listen to find out where Julie’s next travel adventure is taking her, what will be in the next issue of “Travel Without Limits” and how you can share your travel adventures, tips, and tricks.





    Remember to enjoy the adventure.!!

    Links mentioned in the Podcast:

    Real Moms Share: Julie Jones Rolling on with a Positive Attitude!

    Travel Tips: Making Fun Memories...

    • 26 min

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