Rare Disease Podcasters on Patient-Centricity and a new segment of The Well‪!‬ BloodStream

Patrick and Amy are joined by three of the most prolific and committed rare disease podcasters out there: Effie Parks from Once Upon A Gene, Kyle Bryant from Two Disabled Dudes, and Bo Bigelow from Stronger Every Day. Those three titans behind the mic join us for a candid discussion about patient centricity, we touch on some recent news, FLOW’s Jessica Lauren Richmond is back with the latest installment of The Well.
 
Show Notes:
Subscribe to:
Once Upon a Gene
2DD
Stronger Everyday
 
Recent novel therapy news:
 
CSL Behring gene therapy makes comeback after hold for FDA priority review
 
BioMarin delays planned FDA filing for hemophilia gene therapy
 
FDA Grants Breakthrough Therapy Designation to BIVV001 for Hemophilia A Treatment
 
Presenting Sponsor: Takeda.
Visit bleedingdisorders.com to learn more.
 
The Bloodstream Podcast is brought to you in part by a new campaign from CSL Behring called Portraits of Progress. To learn more, check out www.PortraitsofProgress.com 
 
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