150 episodes

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

BloodStream BloodStream Media

    • Health & Fitness
    • 5.0 • 33 Ratings

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

    First patient dosed with SubQ inhibitor treatment + guest Bob Falkenberg

    First patient dosed with SubQ inhibitor treatment + guest Bob Falkenberg

    Patrick and Amy catch up on some recent community news then speak with leukemia survivor and bone marrow transplant recipient Bob Falkenberg as he’s set to kick off his 10th Lifeblood cycling ride to support Be The Match.
     
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    BloodStream LIVE May 26th - Event link: http://bit.ly/BloodStreamIsBack
     
    Bob’s Team Lifeblood: http://bihttps://bit.ly/3yaPj2U
    NHF’s Community Voices in Research: http://bit.ly/CVRNHF
    CSL and uniQure close agreement: http://bit.ly/CSLuni
    Experimental SubQ Inhibitor Treatment: http://bit.ly/SubQinhib

    “You don’t have a bleeding disorder, do you?”

    “You don’t have a bleeding disorder, do you?”

    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    International Thalassemia Day #ITD2021
     
    To learn more about iron overload, treatments, comorbidities with Thalassemia, and more, visit:
     
    Thalassemia Foundation of Canada:
    https://bit.ly/33zlLOB
     
    Cooley’s Anemia Foundation:
    https://bit.ly/2RudLeX
     
    Patients’ Stories:
    https://bit.ly/2SvzLqe

    Donated medicine and what’s “youth empowerment” mean, really?

    Donated medicine and what’s “youth empowerment” mean, really?

    Patrick and Amy are joined by Julie Kim, President of the Plasma-Derived Therapies Business Unit for Takeda, to discuss Takeda’s 5-year commitment to the WFH Humanitarian Aid Program. Then later in the show they’re joined by frequent contributor Alexa Abreu and her sister Juliemar - a former Teen Impact Honoree - to discuss the uncelebrated accomplishments of our youth and what supporting young people should actually look like.
     
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    NOMINATIONS for the Teen Impact Awards: http://bit.ly/TIA2021bsp
    TAKEDA joins WFH’s Humanitarian Aid Program: bit.ly/WFHTakeda2021

    New mental health segment + listening to women w/ Jessica Lauren Richmond & Ijeoma Azubuko

    New mental health segment + listening to women w/ Jessica Lauren Richmond & Ijeoma Azubuko

    Patrick and Amy are joined by FLOW Podcast host Jessica Lauren Richmond to discuss assessing women’s health holistically and by Ruby Ball Foundation founder Ijeoma Azubuko to hear the harrowing story that led to her foundation’s innovative work. We also debut our new Let’s Talk mental health segment, featuring key moments from and expert insights into the Believe Limited documentary by the same name profiling mental health challenges in the bleeding disorders community.



    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
    LET’S TALK SEGMENT SPONSOR: Sanofi Genzyme - http://bit.ly/LetsTalkMHBSP
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    FLOW Podcast: http://bit.ly/FLOWpod
    Ruby Ball Foundation: http://bit.ly/RubyBallIG
    Silent Podcast: http://bit.ly/SilentPodcastRBF

    Remembering Adam, World Hemophilia Day + USP7’s Bo Bigelow

    Remembering Adam, World Hemophilia Day + USP7’s Bo Bigelow

    Amy and Patrick speak with students at Brown University who’ve been working with Save One Life in honor of World Hemophilia Day, and USP7 Foundation Chairman Bo Bigelow joins to discuss important news in the USP7 world on the heels of Hao-Fountain Syndrome Awareness Day. 
     
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    Breaking Through: https://bit.ly/3smEGpN
    Teen Impact Awards: https://bit.ly/2Q9zXue
     
    Help Save One Life: https://bit.ly/3elfs6f
     
    Stronger Every Day Podcast: https://bit.ly/3tmui2v
    USP7 Foundation: https://bit.ly/2Q6oEmH
    DISORDER Rare Disease Film Festival: https://bit.ly/3gcv7qK

    Progress for women, bullying, and My Beautiful Stutter director Ryan Gielen

    Progress for women, bullying, and My Beautiful Stutter director Ryan Gielen

    Amy and Patrick review MASAC’s new recommendations for women with bleeding disorders, provide an important update on a recent clinical trial investigation, and discuss bullying during COVID.  Then filmmaker Ryan Gielen joins to talk about his new documentary, My Beautiful Stutter, now streaming on discovery+.
     
    Notes:
    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
     
    MY BEAUTIFUL STUTTER: http://bit.ly/MBSLetMeSpeak
     
    SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff
     
    American Rescue Plan (ARP) info from NHF: http://bit.ly/NHFARP2021
    Gene Therapy Clinical Trial Investigation: http://bit.ly/GTinvestigation2021
    MASAC recommendations for women: http://bit.ly/MASACwomen
    Cyberbullying in India: http://bit.ly/CyberIndia2021

Customer Reviews

5.0 out of 5
33 Ratings

33 Ratings

Anthony "The Puma" ,

Great Listen!

Excellent podcast, super informative, and bursting with personality!

Wahnaaaay ,

What this community needed!

So smart, informative and enjoyable!

MK959 ,

Informative

An excellent way to keep up with national news related to the bleeding disorders community. Super engaging and informative: not too long either!

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