100 episodes

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

BloodStream BloodStream Media

    • Health & Fitness
    • 5.0 • 34 Ratings

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

    Thalassemia’s dynamic duo, Dr. Kevin Kuo and Dr. Hanny Al-Samkari, plus aging and changing on Let’s Talk

    Thalassemia’s dynamic duo, Dr. Kevin Kuo and Dr. Hanny Al-Samkari, plus aging and changing on Let’s Talk

    Patrick is joined by dynamic duo, Dr. Kevin Kuo and Dr. Hanny Al-Samkari who share more about Alpha and Beta Thalassemia, a sister blood disorder to hemophilia. Plus, we’ll get an update on Patrick’s chronic pain & Amy’s writing as well as a brand new Let’s Talk segment on aging and changing. 
     
    Show Notes:
    Let’s Talk is brought to you by Sanofi
    Metal Heath Educational Resources 
    Visit Shareyourwhy.com to meet the Sanofi CoRe team and hear from them and members of the community about their story and passion for the hemophilia community.
     
    Portraits of Progress
     
    Subscribe to BloodStream Podcast
     
    Connect with BloodStream Media:
    BloodStreamMedia.com
    BloodStream on Facebook 
    BloodStream on Twitter

    • 1 hr 1 min
    Rare Disease Podcasters on Patient-Centricity and a new segment of The Well!

    Rare Disease Podcasters on Patient-Centricity and a new segment of The Well!

    Patrick and Amy are joined by three of the most prolific and committed rare disease podcasters out there: Effie Parks from Once Upon A Gene, Kyle Bryant from Two Disabled Dudes, and Bo Bigelow from Stronger Every Day. Those three titans behind the mic join us for a candid discussion about patient centricity, we touch on some recent news, FLOW’s Jessica Lauren Richmond is back with the latest installment of The Well.
     
    Show Notes:
    Subscribe to:
    Once Upon a Gene
    2DD
    Stronger Everyday
     
    Recent novel therapy news:
     
    CSL Behring gene therapy makes comeback after hold for FDA priority review
     
    BioMarin delays planned FDA filing for hemophilia gene therapy
     
    FDA Grants Breakthrough Therapy Designation to BIVV001 for Hemophilia A Treatment
     
    Presenting Sponsor: Takeda.
    Visit bleedingdisorders.com to learn more.
     
    The Bloodstream Podcast is brought to you in part by a new campaign from CSL Behring called Portraits of Progress. To learn more, check out www.PortraitsofProgress.com 
     
    Subscribe to BloodStream Podcast
     
    Connect with BloodStream Media:
    BloodStreamMedia.com
    BloodStream on Facebook 
    BloodStream on Twitter

    • 1 hr 13 min
    Women prioritized at World Congress and coping with loss for Mental Health month

    Women prioritized at World Congress and coping with loss for Mental Health month

    Women with mild hemophilia, vWD, and gene therapy were topics of discussion at The World Federation of Hemophilia’s World Congress that took place earlier this month in Montreal, Canada and Patrick and Amy were there! Hear about it as well as planning for the summer and our latest Let’s Talk mental health segment led by Believe Limited’s Joshua Sterling Bragg on loss.
     
    Show Notes:
    Presenting Sponsor: Takeda.
    Visit bleedingdisorders.com to learn more.
     
    The Bloodstream Podcast is brought to you in part by a new educational gene therapy resource from CSL Behring called HemEvolution. 
    To learn more, check out www.HemEvolution.com
     
    Subscribe to BloodStream Podcast
     
    Connect with BloodStream Media:
    BloodStreamMedia.com
    BloodStream on Facebook 
    BloodStream on Twitter 

    • 44 min
    Journey to Joint Health Panel - LIVE from HFA!

    Journey to Joint Health Panel - LIVE from HFA!

    Patrick and Amy hosted a LIVE Journey to Joint Health panel at HFA with eight blood brothers who shared their experience participating in the HFA led physical fitness challenge and now you can listen in! You’ll also hear from HFA CEO Sharon Myers and Board Chair Allie Ritcey, and we’ll cap today’s episode off with our second installment of The Well, a holistic wellness segment led by FLOW podcast host Jessica Lauren Richmond.
    Show Notes:
     
    HFA Symposium 2022
     
    Presenting Sponsor: Takeda.
    Visit bleedingdisorders.com to learn more.
     
    Segment Sponsored by Genentech: Visit https://www.hemlibra.com to learn more.
     
    Subscribe to BloodStream Podcast
     
    Connect with BloodStream Media:
    BloodStreamMedia.com
    BloodStream on Facebook 
    BloodStream on Twitter 

    • 1 hr 17 min
    Live from HFA w/ Keynote Speaker, Zander Masser!

    Live from HFA w/ Keynote Speaker, Zander Masser!

    Join Patrick and Amy for another LIVE episode from HFA Symposium where we have the pleasure of speaking with keynote speaker, Zander Masser. Zander’s father, Randy, lived with severe hemophilia B until he passed from AIDS-related illnesses in 2000 at the age of 52. Twenty years later, Zander unburied 10,000 slides from Randy’s career as a professional photographer and explores his process of exploring grief through creativity. Hear his incredible story right here on BloodStream.
    Show Notes:
    Learn more about Randy Masser
    Unburying My Father, the book will be released on June 12, 2022. Learn more or pre-order HERE!
     
    HFA Symposium 2022
     
    Presenting Sponsor: Takeda.
    Visit bleedingdisorders.com to learn more.
    Subscribe to BloodStream Podcast
    Connect with BloodStream Media:
    BloodStreamMedia.com
    BloodStream on Facebook 
    BloodStream on Twitter 

    • 1 hr 3 min
    Live from HFA w/ Keynote Speaker, Adar Cohen!

    Live from HFA w/ Keynote Speaker, Adar Cohen!

    Patrick and Amy are LIVE from HFA Symposium! Listen in to keynote speaker, Adar Cohen, as he shares how the strength of our communities relies on our willingness and our ability to have the big, complicated conversations in our work, in our families, and in our civic lives.We’ll also have a new Let’s Talk segment with Josh Bragg. A great episode about those “big conversations” we often avoid. Show Notes:
    Learn more about Adar Cohen!
    HFA Symposium 2022
    Presenting Sponsor: Takeda.
    Visit bleedingdisorders.com to learn more.
    Subscribe to BloodStream Podcast
     
    Connect with BloodStream Media:
    BloodStreamMedia.com
    BloodStream on Facebook 
    BloodStream on Twitter 

    • 1 hr

Customer Reviews

5.0 out of 5
34 Ratings

34 Ratings

MissNatalieRose ,

The best blood pod in the land!!

Funny, smart, accurate and current! I refuse to miss an episode!

Anthony "The Puma" ,

Great Listen!

Excellent podcast, super informative, and bursting with personality!

Wahnaaaay ,

What this community needed!

So smart, informative and enjoyable!

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