Trisomy Family Stories SOFT UK

In today's podcast we are talking with Mary Wasacz about her journey with Cathy Anne.



Mary recounts Cathy Anne's story and her diagnosis of Trisomy 18, and how she and her husband John gave her normalcy and love during her short life.



Mary will also be reading an excerpt from her book about Cathy Anne's life: The Frailty of a Butterfly: My Journey Through Newborn Loss.



You can find Mary's book here:

Amazon: https://www.amazon.co.uk/Frailty-Butterfly-Journey-Through-Newborn/dp/1667891715

Bookshop: https://bookshop.org/p/books/the-frailty-of-a-butterfly-my-journey-through-newborn-loss-mary-wasacz/20141396?ean=9781667891712



About Mary:

Mary Wasacz is a family therapist and clinical specialist certified by the American Nurses Association. She was the bereavement and spiritual care coordinator for hospice for over twenty years. Mary and her husband have three children and eight grandchildren. She and her husband are avid travelers who have visited all seven continents. They currently live in New York's suburbs, where they dote on their three parrots.



To reach out to SOFT UK visit: www.soft.org.uk

To contact us, email: contact@soft.org.uk

In support of Baby Loss Awareness Week 2023 we are talking with Kate Sonley, mummy to Amber.

Kate bravely talks about her story, sharing the ins and outs of her journey.

Reach out at contact@soft.org.uk

For support, contact support@soft.org.uk

To find out more, visit www.soft.org.uk

Ahead of the annual Scottish Family Day we interviewed one of our longstanding parents Demi Powell who shared her story about Connor, her baby boy who was diagnosed with Trisomy 18, 22 years ago.

It was a great insight to how she has found the family days over the years especially what makes the Scottish family day special.

To register please sign up here https://www.eventbrite.co.uk/e/scottish-soft-family-day-2023-tickets-645476015137?aff=oddtdtcreator

Reach out at contact@soft.org.uk

For support, contact support@soft.org.uk

To find out more, visit www.soft.org.uk

The podcast today is part of our series, chatting to partner organisations to find out more about what they do. This podcast welcomes Nicola Enoch, joining us from Positive about Down Syndrome and she is their Founder & CEO. As a down's syndrome parent herself she set this charity up for families looking for further support and resources.

Found out more: https://downsyndromeuk.co.uk/

Reach out at contact@soft.org.uk

For support, contact support@soft.org.uk

To find out more, visit www.soft.org.uk

We spoke to Mandy Nelson, mother to Amari, who has Trisomy 18 and who recently became a mother to Dante. In this episode, Mandy shares her heartfelt journey from her pregnancy with Amari, to the present day, where Amari is now a thriving 3.5-year-old, albeit with special educational needs. She also took us through what it's like having a baby after a high risk pregnancy and shared honestly about how it impacted her bonding with her son whilst pregnant. She shares some amazing anecdotes and a wonderful message about the importance of advocating for your child.

Reach out at contact@soft.org.uk

For support, contact support@soft.org.uk

To find out more, visit www.soft.org.uk

We spoke to Becky Smith, Mum to Freddie who had trisomy 18 and more recently, she became Mum to Jaxon, her Rainbow baby. Becky opens up about her overwhelming fears and anxiety throughout the pregnancy, revealing how she cautiously began preparing for the arrival of her little one only around the 30-week mark. Step into her world and immerse yourself in a real-life story of pregnancy after loss.

Reach out at contact@soft.org.uk

For support, contact support@soft.org.uk

To find out more, visit www.soft.org.uk