TSC Talks!

Jill Woodworth
TSC Talks!

TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes! Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

  1. TSC Talks Revival!! JUSTIN LESLIE of Project Whistleblower ~ Truth Under Fire

    18 MAR

    TSC Talks Revival!! JUSTIN LESLIE of Project Whistleblower ~ Truth Under Fire

    This is a special edition, TSC Talks Revival episode with Justin Leslie! Justin is an ex-Pfizer scientist and whistleblower. Justin was also one of my first guests on my podcast "TSC Talks" in 2018, (https://bit.ly/3Iz0FUU) where he shared his story about his experience with diagnosis and living with TSC.   In "Project Whistleblower" Justin shares his personal journey, including living with Tuberous Sclerosis Complex (TSC), a condition that not only shaped his childhood but also inspired him to pursue a career in pharmacology, aiming to find a cure for his condition. During his time as a vaccine scientist at Pfizer, Justin began to collaborate undercover with Project Veritas. This partnership led to the revealing of mind blowing revelations about the COVID-19 ‘scamdemic’ and other alleged misconduct within Pfizer. However, he soon started to observe concerning behaviors within Project Veritas, such as the suppression of timely truths and vaccine concerns. These observations led him to question the integrity of the organization and its founder, James O’Keefe. In collaboration with Marty Leeds, Justin has produced the compelling documentary “Project Whistleblower.” This film delves into his experiences and his growing awareness of the covert tactics and manipulations at Pfizer, Project Veritas, and OMG Media Group. In an era rife with lies and deception, the documentary underscores the revolutionary act of truth-telling." (credit to Amanda Vollmer: https://yummy.doctor/video-list/advocates-for-truth-amandha-vollmer-adv-with-justin-leslie/) Contact info for Justin! Justin Leslie: https://justintegrity.net/ Justin’s Linktree: https://linktr.ee/justinleslie Contact: justinleslie3@protonmail.com Donate to Justin's work: https://www.givesendgo.com/ProjectWhistleblower WATCH THE DOCUMENTARY HERE:  https://justintegrity.net/project-whistleblower/ Produced by: https://linktr.ee.com/jillwoodworth https://jillwoodworth.com Short clip produced by @jillwoodworth https://jillwoodworth.com Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    1h 46m
  2. TSC Talks! Final podcast~Wrapping it Up & Thanks

    23/06/2022

    TSC Talks! Final podcast~Wrapping it Up & Thanks

    Jill wraps up the podcast! I started in 2016 interviewing my kids and how they were affected by Tuberous Sclerosis Complex. It was absolutely divine inspiration from the start and branched out shortly after to interviewing community members and other professionals who worked with those affected. From there, I explored many different topics, providing information and resources in interview form, all with relevance to the individuas and/or parent/caregivers affected by a chronic illness like TSC. Pushing the boundaries of what was deemed "safe and effective" by our medical system, I continued to put info out there based on my own lived experience as a parent/caregiver living and dealing with what I'd come to discover is CPTSD if you want to use a label. It was my vision and still is that all "remedies" for improving the quality of life of all involved in the wheels of chronic illness, particularly one such as TSC which affects all the vital body organs, will be an option for all. Why should we hold back the river when there are so many speaking about how their lives have been impacted by sharing their truths, sharing what's worked for them and what potentially might help another ease the very real and almost daily traumas of attempting to live with an open heart and navigate our inverted systems of care. Many of these podcasts go against the grain of what people are comfortable hearing. There are always positive takeaways but there are some heavy heavy experiences that people are walking through and talking about and must be given voice. I think through honest conversation, and taking full responsibility for one's reactions to other's sharing from their most painful, heart-wrenching moments, we can begin to hear each other once again at least long enough to realize, we're all having vastly different experiences yet we all long to be here now, safe, loved, whole, home. Thanks for tuning in and being here there and everywhere. It's been the pleasure of a lifetime to have the opportunity to create and share this work. Love Jill Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    25 min
  3. TSC Talks! Points of Light~Linsey Hurley~Holistic Health Coach Working with Cutting Edge Energy Healing Technologies "Silver Linings"

    28/03/2022

    TSC Talks! Points of Light~Linsey Hurley~Holistic Health Coach Working with Cutting Edge Energy Healing Technologies "Silver Linings"

    I met Linsey Hurley this past December when we both participate in a Freedom Flash Mob dance event at a local mall. It was a fun and powerful event, a group of locals suddenly bursting into dance and raising awareness of our right to medical freedom! So, I figured the people I met at this event were pretty special. I got a text from Linsey a few weeks ago and we got to chatting. She told me a bit about her business and this new patch she had been guided to that was quite interesting. At that point, I decided to invite her on the podcast to discuss and was quite impressed with what I learned, and the potential of this new tool, X39 patches. Linsey is a holistic health coach, and she has worked with cutting-edge energy healing technologies for many years. She was led to the alternative health field after her experience witnessing her sister go through stage 4 breast cancer within the mainstream health system. Despite her and her sister doing much research and finding alternative treatments which when suggested, were basically brushed off and ignored. This was over 40 years ago. She ultimately lost her sister, and faith in our conventional system, which explains the silver lining. Her sister inspires her and is with her every day and she is grateful for her impact on her life, ultimately pushing Linsey into utilizing and sharing these amazing healing energy devices and tools today! The rest of this story is in the podcast. See timestamps from the transcript below. If interested in learning more, you can reach out to Linsey at linsey@newview.org by phone at 9787937291. For more information on the product~ https://startx39.com and if you would like to sample some, contact Jill Woodworth at pjlacy6@gmail.com or order at https://lifewave.com/jwoodworth Here are a few links with some scientific info~ http://stemcellpatchresources.com/wp-content/uploads/2019/11/QA.pdf https://www.lifewave.com/Content/images/home/science/pdf/Photobiomodulation-or-low-level-laser-therapy.pdf https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6073405/ https://newswire.net/newsroom/blog-post/00227659-the-science-behind-life-wave-s-wearable-phototherapy-technology.html https://theoptionsph.com/2021/01/10/lifewave-phototherapy-patches-too-good-to-be-true/ timestamps: 1-2:18 Introduction 2:18~Linsey’s story, holistic health coach…. started 40+ years ago when her sister was diagnosed with stage four breast cancer 3:06~this experience w/her sister and watching her go through all the conventional treatments to no avail despite doing research w/her sister on alternative options, led her to not have much trust in our conventional medical system 3:57~Again her experience with her sister led her to alternative health and deeper into spirituality to process this loss, which was over 40 years ago and she’s still here. She considers this a gift from her sister. 5:36 the mainstream narrative keeps us in fear and subservience with no energy to consider why we are here 5:57~Linsey’s sister is still with her 6:32~Start of discussion on X39 patches which support the body’s natural systems 7:23~the body is brilliant!...

    28 min
  4. TSC Talks! Points of Light~Part Two~Leigh Anne Bianchi, Founder of Good Citizenship Project, Activating Good Citizens

    12/03/2022

    TSC Talks! Points of Light~Part Two~Leigh Anne Bianchi, Founder of Good Citizenship Project, Activating Good Citizens

    SEE SHOW NOTES FOR PART ONE FOR MORE DETAIL! I had the pleasure of interviewing Leigh Anne Bianchi, Founder of Good Citizenship Project recently on TSC Talks. She was joined by her business manager Carla Bell. We had a free ranging discussion covering many topics but all regarding the benefits of the sort of unconventional programming Leigh Anne has developed through GCP and how this meets many of the huge gaping unmet needs for those individuals diagnosed with autism and other special needs that our systems of care have become too siloed and disconnected to address. “Developing a sense of meaning and purpose, social-emotional skills, work ethic, and peer relationships by volunteering, distributing donations, and supporting local farms.” For more information on Good Citizenship Project, FB page: https://www.facebook.com/GoodCitizenshipProject/ phone: (508) 868-0293 email: leighanne.bianchi143@gmail.com Timestamps for part 2: 0-52 Intro 00:54- Antonio’s Waitress Olivia treats them like humans, the start of the discussion on sexuality and special needs 2:26 All the PC of working w/special needs has made sexuality issues really challenging. People taken advantage of, they are developmentally younger and no one talks about this 5:03 Karaoke, real-world situations help 5:28 Dashboard confessionals, you can say stuff without eye contact when conversations about penises and vaginas come out. Pediatricians recommend using scientific wording, Leigh Anne took all the training on autism/special needs and sexuality and can talk candidly. 9:27 Why questions, keep asking them. See the question behind the action. One client wanted to see Leigh Anne’s breasts, curiosity, she didn’t react or file a report but discussed it with him. So many lives could be ruined if everything is flagged as inappropriate. This population never gets to ask questions 11:06 Leigh Anne had to spend 5 minutes spend w/individual who had sex offender charges in ISP and Leigh Anne knew charges were not true-example 13:16 Paying for Good Citizenship Project….if you have an autism diagnosis, sometimes easier to get funding, agencies often don’t want to pick up those with autism but things changing and agencies can help you get funding to cover through DESE/Wraparound Family Services, Public Partnerships through Participant directed programming conduit, Private pay, PCA funds, DDS Family Respite funds 20:11 Leigh Anne should be paid more for all she offers. Charges $30/hour but will work with families. Leigh Anne does not have a BCBA or other letters after the name that would allow her to be recognized as a service agent but has the lived experience and work experience to exceed those with mere education 23:26 Becoming a non-profit would mean more strings attached, Johnny her horse would have to be certified as a therapy horse, her dog a pit bull mix, too many hoops to jump through. Jack couldn’t have used a log splitter! 26:31 Investor/philanthropist would be ideal with no strings attached. Leigh Anne took a chance w/Camp Marshall, wanting to partner and have it be her home base. If associated with an agency the volunteers would need to get paid. All benefits from GCP are not recognized as beneficial for many who don’t understand the depth of what she does. 31:31 Work to ride is an option or unpaid internship/apprenticeship. So much happens in learning these farm skills that is energetic…deciding how to perform tasks and learning from any mistakes, having the freedom to learn from mistakes like using a pitchfork instead of a shovel for a particular job… 34:21 Farmers giving the flexibility to figure out the approach to completing a job is helpful. So then it’s not regimented, can focus on the end results, not the niggling details and farmwork facilitates executive functioning in this area. Learning at the moment, the Montessori approach is part of Leigh Anne’s processbr...

    1h 2m
  5. TSC Talks! Points of Light~Part One~Leigh Anne Bianchi, Founder of Good Citizenship Project, Activating Good Citizens

    11/03/2022

    TSC Talks! Points of Light~Part One~Leigh Anne Bianchi, Founder of Good Citizenship Project, Activating Good Citizens

    I had the pleasure of interviewing Leigh Anne Bianchi, Founder of Good Citizenship Project recently on TSC Talks. She was joined by her business manager Carla Bell. We had a free ranging discussion covering many topics but all regarding the benefits of the sort of unconventional programming Leigh Anne has developed through GCP and how this meets many of the huge gaping unmet needs for those individuals diagnosed with autism and other special needs that our systems of care have become too siloed and disconnected to address. “Developing a sense of meaning and purpose, social-emotional skills, work ethic, and peer relationships by volunteering, distributing donations, and supporting local farms." In my opinion, what she shares are gems of vital importance. AS someone who carries a diagnosis of Autism AND has worked within our siloed and disconnected systems of care, she gets it on a whole new level. What is missing, what is needed. One of her most important assets is her ability to ask why and watch, observe what is going on without judgment or preconceived notions based on dogmatic teachings not relevant to real life. Leigh Anne IS real life. She knows how what and why to reach and engage kids who have often had no one their entire lives really see them. The energetics of the interactions are often the most important part and the very part of our offspring’s with special needs education that is rarely observed or explored. To do so freely requires unconventional programming and thinking and IS what will give these individuals deep embedded experience to carry forward and integrate into every aspect of their lives. Priceless. So that being said, this is one of the most important discussions I’ve had to date on TSC Talks personally as my son Jack has benefitted immensely from participating in this sort of immersive, apprenticeship experience gaining valuable skills, both tangible and energetic. Here’s a recent description of gains made: “There's A LOT going on there when we're together. Not just the obvious, like physical fitness, and employment-based objectives, but Distress Tolerance, Mindfulness, Interpersonal Effectiveness, time management, generalizing skills, problem-solving.... learning how and when NOT to answer back to an authority figure. (Instead of saying, "I know," or "I was going to do that," when he clearly wasn't, just saying "OK.") We address that OFTEN. Staying on topic, being able to complete a task WHILE socializing... Another example is planning. Looking at the task at hand (like cleaning a pen or stall) and being able to decide which tools you're going to need (the pen might require a garden rake and a metal pitchfork, vs. an aluminum shovel and a plastic pitchfork for the stall), and how to efficiently complete the task. Right now, he tends to be on autopilot at Jesse's, because he's done it before, and knows what tools to use. But if we go to a different barn/farm, he will sometimes just walk into the stall without any tools or automatically grab the tools that he'd use as Jesse's. But Jesse has brand-new rubber stall mats under the shavings, whereas other barns might have hard, packed-down dirt that is uneven, old, warped stall mats, or even slab cement under the shavings, which impacts the tools needed for the job. Additionally, the concept of 'using your head to save your feet and planning out the technique or way you're going to do something....like cleaning the stall of the older horse first so that you can put him in there to eat first since it takes him so long. Or, turning on the hose as you walk by it upon arrival, so you don't have to go all the way back out to the spigot when you're ready to fill waters” You get the idea. For more information on Good Citizenship Project, FB page: https://www.facebook.com/GoodCitizenshipProject/...

    1h 11m
  6. TSC Talks! Points of Light~Bryan M. Henry, Founder of Together We Ascend-"Connected to Love"

    02/03/2022

    TSC Talks! Points of Light~Bryan M. Henry, Founder of Together We Ascend-"Connected to Love"

    In this episode titled "Connected to Love" I had the pleasure of interviewing Bryan M. Henry, Founder of Together We Ascend, an organization and community that is on the mission of assisting in collective ascension, and the co-creation of more harmonious and prosperous world for all. To this aim, Bryan and the Together We Ascend team is uniting and activating lightworkers through the Ascend Academy. Bryan also is Creator/Producer of "Awaken with Bryan Henry"~ a podcast. Bryan is indeed connected to love and what he communicates in this podcast is just that as well as how we all are connected to love in the deepest and most complete of ways. Giving others an assist in rediscovering this conneciton is what Bryan is called to do. I got the chance to learn this first hand when I came across his Ascend Academy almost a year ago and booked my first session with Bryan. From there our connection grew, and I have been working with him for the last seven months. The recent intuitive podcasting workshop evolved out of our work together. Here's one of Bryan's opening statements, "so I know that you you sent me a little bit of preliminary questions to kind of prepare myself but I feel like the best thing I could have done to prepare my pair myself was drop into here, and that chest region in that body to feel and rather than have some pre scripted answer. Sure what felt most inspiring in this moment. Perfect. That feels like today is the story of a guy that loves to serve, loves to be in service of others loves to contribute, loves to witness transformation take place before his eyes. I've over the course of my journey have come to my perspectives, my beliefs around what goes into living a joyous, filling and exciting life. And part of what that entails for me is being in service to something bigger than oneself. When I look back to all of my experiences, the accumulation of everything I've been through all of the best ones came from being connected to love and making it more about giving then getting. And the irony becomes when you find yourself centered in this space of wanting to give for you get to experience the joy and fulfillment that comes from that. You begin to realize that the giving and receiving are ultimately the same thing." Linktree: https://linktr.ee/bryanmhenry Website: https://togetherweascend.com Some time stamps~ 1:20 Introduction/opening statements 5:15 being in the moment, giving space for what comes through 9:38 challenges to staying in the moment when podcasting 10:30 Jill gives some background on Bryan's recent move 12:47 Hard to believe I went through hard times 13:46 Bryan has had many experiences, both treacherous and benevolent-came to core belief, we are of love 15:59 In order to tap into this, there is a whole lot of stuff that needs released 17:15 devoting work to helping others discover this love within themselves and that there is always more room for a higher love 19:45 Let stuff come up in layers 20:40 To feel and face allows the light beneath to shine through 21:15 old patterns can creep back in 21:48 inner work is VITAL 22:15 the cliche is where all the gems and truths are :) 23:45 discussion of loss of community 25:45 Individuals take responsibility to create community 27:50 Living a dream life-Bryan's response to this 29:00 how are you creating community? 29:44 speaking to audience 31:35 Going through his own personal chaos 32:15 Adversity builds character 32:34 Partner's memory loss was extreme, darkest of the dark places, remember the power that we are! 33:37 Love is the answer, many believe we will always suffer 34:19 How can we find peace within the chaos, how can we find peace within? 36:16 It does get better for...

    1h 2m
  7. TSC Talks! Points of Light, Lisa Smith-Advocate, Foster Parent, Mom, "All 100 Sheep"

    01/02/2022

    TSC Talks! Points of Light, Lisa Smith-Advocate, Foster Parent, Mom, "All 100 Sheep"

    I recently had the distinct pleasure of interviewing Lisa Smith recently on TSC Talks. I met Lisa through a mutual friend, as is explained in the podcast. I was thrilled to do a podcast with another special needs parent and local to Massachusetts. Lisa is a parent of 22 years old Nick, who experiences nonverbal autism, has adopted several children, and over the years has fostered 27. During our interview not only was Lisa able to draw from and articulate profound experiences and topics in such a way as to not only connect them to her lived experience, but she was also able to illustrate how she’s taken the time to integrate and utilize all of it to further evolve as a soul but to also facilitate trust, healing, and connection for all her children, biological, adopted and fostered. Her words tell the story, her faith guides her. One of the most important points of our discussion was the realization that it is not these children that are “lucky to have her,” but it is she that is lucky to have them. As a special needs parent myself, this awareness was a true turning point in my understanding of this divine assignment where I became the student and realized my children are my teachers, one that Lisa feels and experiences every day. “It’s biblical, she said at one point “And when I began to read the Bible, I had learned that some of my actual walks in life, were very biblical… There's a story that says, God got the 99 sheep, but there was one on the hill. He went back for that one. Most people in life. So God has designed me through my journey, not to forget the one.” “Presence, presence, and presence. And to me? Be present. People always say things like, oh, if I win the lottery, I will do that. And I always tell people all the time I won the lottery five times, five children and people say, oh, they're so lucky to have you, but really….How do I know that I'm going to take care of my disabled son someday? Right? How do I know they're not there to help me when I become disabled someday? We do not know, you know, so we, you know, and, and we don't do it for those selfish reasons. So, we don't do anything to get things, you know, and, and, you know, we do things because that's who we are and that's our heart.” I appreciated this podcast so much and hope you will too. I feel it was put in front of me by my higher self, as sound bite after sound bite so many of Lisa’s words not only related to me personally but also inspired and challenged me. Her faith in God is huge and expansive but she shares honestly the hard truths she’s faced personally to get to where she is now. Thanks, Lisa, for all the ways you are serving a higher calling and being willing to share your journey with me and this audience. An article about Lisa Smith: https://www.wickedlocal.com/story/archive/2012/04/27/taunton-mom-using-what-she/38199711007/ Time stamps to be added! Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    1h 34m
  8. TSC Talks! Points of Light, James Davis of Bay Staters for Natural Medicine-"Advocacy from the Heart"

    28/01/2022

    TSC Talks! Points of Light, James Davis of Bay Staters for Natural Medicine-"Advocacy from the Heart"

    I had the pleasure of interviewing James Davis recently on TSC Talks. As you’ll hear in the podcast, we connected a little over a year ago when he was just getting started with Bay Staters for Natural Medicine and looking for volunteers. At that time, I’d been experimenting with microdosing psilocybin for mental health reasons, it was helping, and I thought I’d jump in. Life pulled me away from that volunteer work, but James made a profound impression on me, and I had the notion that he’d be successful in whatever he endeavored, particularly his advocacy around decriminalization of plant entheogens, as his passion, kindness, and honesty just stands out. When we connected to do the podcast, I was not surprised, but also surprised by the progress he and the growing team of volunteers he leads has made over the past year. He hits it home on so many topics within this pod, I thought it best just to include the full transcript. Thanks, James, for showing up, being such a divine-human and inspiring, and leading many to make a difference. Enjoy the pod! Links: https://www.baystatersnm.org/ https://linktr.ee/baystaters https://www.instagram.com/baystaters/ https://www.facebook.com/BayStaters https://twitter.com/baystaters "James Davis is a leader of Bay Staters for Natural Medicine. They have mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, Northampton, and Easthampton and have pending resolutions in Boston, Burlington (VT), Amherst, Worcester, Needham, Salem, and Medford. These resolutions decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction 55% after a single experience and have been proven to have statistically significant benefits for PTSD and depression. Their resolutions also end all controlled substance possession arrests, referring people for addiction treatment and committing our cities to invest in these services. In this episode, you will also learn about the other types of entheogenic plants and the power they hold to help us heal” Here's an excerpt from the transcript, the full transcript is available on the website. Here's an excerpt from the transcript, the full transcript is available here~https://tsctalks.com/tsc-talks-james-davis-transcript/ Jill W: [00:00:00] Hello, welcome to TSC talks. Your host, Jill Woodworth. Here. I am so glad to be with James Davis. He is a, he is a volunteer among other things, but my basis of meeting him was a volunteer and the leader of bay Staters for natural medicine. Just to give you a little background here before we get started, I'm going to read this, but. He's done tremendous work. I'm really excited to have him here. And I'll tell you how our paths crossed in a minute, but he's the leader for Bay Staters for natural medicine. They've mobilized over a thousand Massachusetts volunteers to decriminalize Somerville, Cambridge, North Hampton. East Hampton pending resolutions in Boston, Burlington, Vermont Amhurst, Worcester, Needham, Salem, and Medford. These resolutions… resolutions, decriminalize growing and selling plants like magic mushrooms, which reduce the risk of opioid addiction. 55% after a single experience and have been proven to,...

    46 min

About

TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes! Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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