Advocating for a rare cause‪ ‬ Rare Lives

This episode features a parent who has lost three infant children to a rare illness linked to inborn errors of metabolism caused by enzyme deficiency. 

Vikas Bhatia’s ordeal turned him from an ordinary parent to an advocate of securing proper diagnosis and treatment. He and his wife- Poonam Bhatia – established the Metabolic Disorders and Rare Diseases Organization of India. They describe themselves as a parental support and advocacy organisation. 

What was his journey? Listen on. 

This season has been made possible from a grant by the Thakur Family Foundation.
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