51 episodes

Not Defined by Endo Podcast, hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis or who suffer from symptoms that they suspect to be caused by endometriosis. Every week, Teniola shares her own experiences, interviews health professionals and endo specialists who provide their much-needed insight and speaks to fellow endometriosis warriors who know what it feels like to live with and fight an incurable disease.

Not Defined by Endo Teniola Ogunro

    • Health & Fitness
    • 5.0 • 2 Ratings

Not Defined by Endo Podcast, hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis or who suffer from symptoms that they suspect to be caused by endometriosis. Every week, Teniola shares her own experiences, interviews health professionals and endo specialists who provide their much-needed insight and speaks to fellow endometriosis warriors who know what it feels like to live with and fight an incurable disease.

    Endo University 001 (Lightening Podcast) - What does Endometriosis Look Like?

    Endo University 001 (Lightening Podcast) - What does Endometriosis Look Like?

    Hello and welcome to this first episode of 'Endo University,'. This is a short lightening podcast season where I'll be sharing a lot of information on all things Endometriosis. 
    Today, we're delving into the fundamentals with a focus on 'What does Endometriosis look like?' 
     
    Articles & References:
    Kennedy S, Bergqvist A, Chapron C, D'Hooghe T, Dunselman G, Greb R, et al. ESHRE guideline for the diagnosis and treatment of endometriosis. Hum Reprod. 2005;20:2698–704. [PubMed] [Google Scholar]
    Stratton P, Winkel CA, Sinaii N, Merino MJ, Zimmer C, Nieman LK. Location, color, size, depth, and volume may predict endometriosis in lesions resected at surgery. Fertil Steril. 2002;78:743–9. [PubMed] [Google Scholar]
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2505050/#:~:text=The%20typical%20appearance%20of%20endometriosis,also%20be%20endometriosis%20(1).
    Disclaimer:
    Remember that I am not a medical professional. So whatever I share on this podcast is to enlighten and inspire. Please always speak to your healthcare professional before making any changes to your diet or lifestyle.
    Music:
    Sunrise - Mehul Choudhary https://soundcloud.com/mehulchoudhary
    Creative Commons — Attribution 3.0 Unported — CC BY 3.0
    Free Download / Stream: https://bit.ly/3RYLj0k
    Music promoted by Audio Library https://bit.ly/48AUtab
     

    • 5 min
    S6E2 - ”There isn’t even a Quality Outcome Framework for Endometriosis!” with Dr. Anita Sharma & Courtney Omrod

    S6E2 - ”There isn’t even a Quality Outcome Framework for Endometriosis!” with Dr. Anita Sharma & Courtney Omrod

    Welcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast.
    Today’s conversation is with Dr Anita Sharma and Courtney Omrod. Dr. Anita is a General Practitioner based in Manchester, United Kingdom and a national campaigner on women’s health. Courtney is an endometriosis warrior and advocate making a difference in this space. We hear a lot about the work they have both been doing and how Courtney's personal experiences with Endo have impacted every aspect of her life. 

    Don't forget to share, rate, and subscribe to this podcast.
    If you’d like to share any research studies you are involved in or interested in, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.


    Till next time, remember, you are not defined by endo!
     

    Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.


     

    • 50 min
    S6E1 - The Search for Endo Biomarkers Using Urine with Barbara Guinn

    S6E1 - The Search for Endo Biomarkers Using Urine with Barbara Guinn

    Welcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast.
    Today’s conversation is with Dr Barbara Guinn, a Reader in Biomedical Sciences at the University of Hull.
    As well as teaching the undergraduate and postgraduate degree courses in the Centre for Biomedicine, Hull York Medical School, Barbara also supervises MSc, MD and PhD students in their research. Barbara read Genetics at Aberystwyth University and received a PhD in Medicine from the University of Wales College of Medicine, Cardiff.
    Following 4.5 years working at the University of Toronto in the Department of Immunology, Barbara set up her own research group in the Department of Haematological Medicine at King’s College London to identify new targets for the treatment of acute leukaemia. Barbara worked on the development of DNA vaccines to treat leukaemia at the University of Southampton and then started to work on ovarian cancer. In 2016 Barbara joined the University of Hull and began her work on developing new treatments for endometriosis and a urine test for endometriosis called EndoTect.
    Barbara has three children and two dogs and loves to X. Her X handles are @BarbaraGuinn1 @GuinnLab.
     

    Don't forget to share, rate, and subscribe to this podcast.
    If you’d like to share any research studies you are involved in or interested in, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.


    Till next time, remember, you are not defined by endo!
     

    Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

    • 23 min
    S5E7 - Chat with a Warrior : Tihesia Bennett

    S5E7 - Chat with a Warrior : Tihesia Bennett

    Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.
    Today’s conversation is with Tihesia Bennet. Tihesia is a 24-year-old incoming Junior Doctor. She was inspired to create her sexual and reproductive health awareness page, She Talks, after she was diagnosed with superficial endometriosis in 2020. Join me as we listen to Tihesia’s story.

    Don't forget to share, rate, and subscribe to this podcast.
    If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.


    Till next time, remember, you are not defined by endo!
     

    Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.
     

    • 31 min
    S5E6 - Chat with a Warrior : Tanya Living Free

    S5E6 - Chat with a Warrior : Tanya Living Free

    Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.
    Today’s conversation is with Tanya. Tanya is a 30-year-old endometriosis advocate from London. She was suffering from endometriosis for eight years before she was diagnosed and underwent extensive surgery. She now lives life with an ileostomy bag on her stomach because of endometriosis and how much damage it had done to her organs. It was so refreshing speaking all things endo, stoma, and living our best lives with Tanya! So sit back, relax and join us in this conversation! Follow her instagram @tanyalivingfree.

    Don't forget to share, rate, and subscribe to this podcast.
    If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.


    Till next time, remember, you are not defined by endo!
     

    Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.
     

    • 39 min
    S5E5 - Chat with a Warrior : Betsy Austin & Kailey Lee (Part 2)

    S5E5 - Chat with a Warrior : Betsy Austin & Kailey Lee (Part 2)

    Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.
    Today, we carry on listening to Kailey and Betsy’s stories and how they have overcome all they have been through in their diagnoses of endometriosis and infertility. If you didn’t listen to Part 1, please click on the previous episode to do so.
    Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometriosis, adenomyosis, infertility, & childlessness in their 30s. I particularly love how they talk about being child-free, and not child LESS. And the very important message that not having a child does not make you less. They regularly share insight into their daily lives with chronic illnesses and their pursuit to redefine worth and enjoyment of their kid-free lives. They are also on Instagram @notchamommapod. 

    Don't forget to share, rate, and subscribe to this podcast.
    If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  info@notdefinedbyendo.com.


    Till next time, remember, you are not defined by endo!
     

    Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.
     

    • 34 min

Customer Reviews

5.0 out of 5
2 Ratings

2 Ratings

TraceA ,

Inspiring

Wonderful podcast Teniola! So great to see you raising awareness of this very important and relevant topic and giving a voice to women living with Endometriosis

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