10 episodes

Podcasts from Fragile X professionals and experienced family members. If you have any questions or suggestions, email NATLFX[at]fragilex[dot]org

The National Fragile X Foundation Podcast The National Fragile X Foundation

    • Medicine

Podcasts from Fragile X professionals and experienced family members. If you have any questions or suggestions, email NATLFX[at]fragilex[dot]org

    Preparing Yourself for the 13th International Fragile X Conference Part 3 of 3

    Preparing Yourself for the 13th International Fragile X Conference Part 3 of 3

    Experienced parents and conference-goers, give you the lowdown on how to prepare for the 13th International Fragile X Conference in Miami.

    Featuring
    Jayne Dixon Weber
    Arlene Cohen
    Michele Kaplan

    Part 3
    The Emotional Aspect of the Conference
    Taking Care of Yourself
    Meeting New Friends and Reconnecting
    Questions and Concerns

    • 11 min
    Preparing Yourself for the 13th International Fragile X Conference Part 2 of 3

    Preparing Yourself for the 13th International Fragile X Conference Part 2 of 3

    Experienced parents and conference-goers, give you the lowdown on how to prepare for the 13th International Fragile X Conference in Miami.

    Featuring
    Jayne Dixon Weber
    Arlene Cohen
    Michele Kaplan

    Part 2
    When are Most People Arriving?
    What Kinds of People will be There?
    The Wednesday 3:45 Session
    Other Things to Know
    Spotlight on Extra Conference Activities

    • 24 min
    Preparing Yourself for the International Fragile X Conference. Part 1 of 3

    Preparing Yourself for the International Fragile X Conference. Part 1 of 3

    Experienced parents and conference-goers, give you the lowdown on how to prepare for the 13th International Fragile X Conference in Miami.

    Featuring
    Jayne Dixon Weber
    Arlene Cohen
    Michele Kaplan


    Part 1 features
    Getting Ready at Home
    Arriving at the Miami Airport
    Nearby and Must See Attractions
    Conference Registration
    Childcare

    • 18 min
    Let's Get Going: Toileting Ideas

    Let's Get Going: Toileting Ideas

    With Karen Riley, PhD, Cindi Rogers, parent, and Jayne Dixon Weber, Coordinator of Support Services, NFXF & parent. A 65 minute recorded interview about toileting ideas.

    This is from the archives and was recorded in April 2009.

    • 1 hr 8 min
    Transitioning Forward (Part 1 of 2)

    Transitioning Forward (Part 1 of 2)

    In this episode, we interview two people whose children are moving forward in their lives. Melissa Street's son Jesse is transitioning into a typical classroom, and Carolyn Jackson's two daughters are planning life after high school.

    • 40 min
    Self-Regulation Through the Lifespan

    Self-Regulation Through the Lifespan

    What is self-regulation and how do we modify it for Fragile X?
    Join the NFXF's Robert Miller and Jayne Dixon Weber as they interview LINKS Leader/Parent Laureen Majeske and Developmental FX's Tracy Stackhouse and Sarah "Mouse" Scharfenaker for a discussion on how self-regulation makes things work for Fragile X.
    Note: We apologize for some technical difficulties throughout much of this Podcast. We promise that we are doing our best to find a good way to record our calls so that it is much clearer and has less echo. Please bear with us as we get used to these new technologies!

    • 40 min

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