23 episodes

About living with a wonky chronic illness

Where Are My Pillow‪s‬ Encephalitis Survivor

    • Health & Fitness

About living with a wonky chronic illness

    S1E22 Conclusion: There’s hope out there. | Anddd that’s a wrap on World Encephalitis Day 2021!

    S1E22 Conclusion: There’s hope out there. | Anddd that’s a wrap on World Encephalitis Day 2021!

    It’s been a slice. Thank you to everyone who’s tuned in! For those of you in the midst of a challenging journey right now: know that you’re not alone. Keep going, don’t give up, and don’t lose hope ❤️
    -----
    This segment concludes the World Encephalitis Day series, which culminates on February 22, 2021!
    You can find more insight into my story on my blog, http://wherearemypillows.com/
    Social links:
    Facebook: https://www.facebook.com/wherearemypillows 
    Instagram: https://www.instagram.com/wherearemyp...
    Twitter: https://twitter.com/wampillows
    Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/
    Blog: http://wherearemypillows.com/

    • 6 min
    S1E21 My approach to self-advocacy

    S1E21 My approach to self-advocacy

    For some encephalitis patients, finding good medical care is half the battle (or more) towards getting on the road to healing. Many doctors simply lack adequate knowledge or expertise to effectively diagnose and manage this condition. In today’s episode, we cover some of my thoughts on learning how to advocate for yourself in a medical setting.

    -----

    This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!

    You can find more insight into my story on my blog, http://wherearemypillows.com/

    Social links:

    Facebook: https://www.facebook.com/wherearemypillows 

    Instagram: https://www.instagram.com/wherearemyp...

    Twitter: https://twitter.com/wampillows

    Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/

    Blog: http://wherearemypillows.com/

    • 7 min
    S1E20 2021 World Encephalitis Day Conference Highlights | Get ready for LIGHTS, CAMERA, ACTION on Feb 22!

    S1E20 2021 World Encephalitis Day Conference Highlights | Get ready for LIGHTS, CAMERA, ACTION on Feb 22!

    From cutting-edge research shared by encephalitis experts, to inspiring stories from patients and caregivers, #WEDConf2021 was a day to remember! Shoutout to the Encephalitis Society, the AE Alliance, the Anti-NMDA Receptor Encephalitis Foundation, Encephalitis 411, and the Hashimoto’s Encephalopathy/SREAT Alliance for orchestrating a superb day of programming (not to mention their work year-round to improve the lives of patients and caregivers!).

    -----

    This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!

    You can find more insight into my story on my blog, http://wherearemypillows.com/

    Social links:

    Facebook: https://www.facebook.com/wherearemypillows 

    Instagram: https://www.instagram.com/wherearemyp...

    Twitter: https://twitter.com/wampillows

    Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/

    Blog: http://wherearemypillows.com/

    • 7 min
    S1E19 Be kind to yourself in recovery

    S1E19 Be kind to yourself in recovery

    Most likely, recovery will NOT be linear, pretty, or fast. From one encephalitis survivor to another: don't disregard your mental health, and allow yourself time and patience to recover physically AND psychologically from surviving encephalitis.

    -----

    This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!

    You can find more insight into my story on my blog, http://wherearemypillows.com/

    Social links:

    Facebook: https://www.facebook.com/wherearemypillows 

    Instagram: https://www.instagram.com/wherearemyp...

    Twitter: https://twitter.com/wampillows

    Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/

    Blog: http://wherearemypillows.com/

    • 5 min
    S1E18 Neuropsychological (and sometimes IQ) testing—it’s important!

    S1E18 Neuropsychological (and sometimes IQ) testing—it’s important!

    If neurological or psychological issues are impairing your cognition, it’s tremendously helpful to get professional testing done to characterize your level of functioning on a granular level. Why? You can get help from speech/cognitive therapists! Why else? Because doctors are more inclined to recognize clinical recovery and/or relapse!

    • 7 min
    S1E17 Meeting another encephalitis survivor, in PERSON?! | Get the deets on the World Encephalitis Day Conference!

    S1E17 Meeting another encephalitis survivor, in PERSON?! | Get the deets on the World Encephalitis Day Conference!

    World Encephalitis Day: what’s it about? In today’s episode we reminisce about last year’s conference and discuss what’s going down this year for 2021.

    ------

    This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!

    You can find more insight into my story on my blog, http://wherearemypillows.com/

    Social links:

    Facebook: https://www.facebook.com/wherearemypillows 

    Instagram: https://www.instagram.com/wherearemyp...

    Twitter: https://twitter.com/wampillows

    Youtube: https://www.youtube.com/channel/UCkM266dcY9ay4YVpMALAwdg/

    Blog: http://wherearemypillows.com/

    • 4 min

Top Podcasts In Health & Fitness