Lupus Ontario Podcast

Lupus Ontario
  • 5.0 (4)
  • HEALTH & FITNESS
Lupus Ontario Podcast

We seek to raise awareness and education of Lupus globally by speaking with medical professionals, physicians, researchers and patients to better understand the lupus journey, diagnosis and treatments. For more information about Lupus and Lupus Ontario, please visit Lupus Ontario at www.lupusontario.org, or follow us on Instagram, Twitter, Facebook or YouTube. We'd love to hear from you! If you have topic suggestions for the podcast, reach out to us at media@lupusontario.org.

  1. 6D AGO

    Life With Lupus: Jan Gillis

    In this episode, we sit down with Jan Gillis as she shares her journey living with lupus. Jan opens up about the challenges she has faced, how she navigates daily life, and the activities that keep her motivated. She also offers valuable advice and practical tips for managing lupus and staying positive. Tune in for an inspiring conversation!

    17 min

  2. 2024-12-12

    Elizabeth's Story, Strategies For Work-Life Balance, and Navigating Workplace Accommodations - PART 2

    In part two of our series, Elizabeth Lo Serro, an Integrative Nutrition Health Coach, delves into managing Lupus flares at work and in relationships, balancing career goals with health needs, and how Lupus has impacted her productivity and personal connections. Elizabeth also shares her hopes for better patient-centered care in Lupus treatment and discusses exciting upcoming projects. Join us as Elizabeth offers insights and encouragement for those navigating life with Lupus. To explore her work and get her free starter kit, visit her website at www.revelinghealth.com.

    13 min

  3. 2024-11-12

    Elizabeth's Story, Strategies For Work-Life Balance, and Navigating Workplace Accommodations - PART 1

    In the first episode of this two-part series, we sit down with Elizabeth Lo Serro, an Integrative Nutrition Health Coach, who shares her journey with Lupus and how it has shaped her career. She specializes in supporting overwhelmed women with Lupus to reclaim their vitality and confidence. Tune in as she discusses strategies for managing work-life balance, workplace and school accommodations, disclosing health conditions to managers, and managing work and commitments while going to in person appointments. To learn more about Elizabeth’s work, upcoming projects, and her free starter kit, visit her website at www.revelinghealth.com.

    13 min

  4. 2024-08-28

    Shared Stories - Joe Gallagher and Alex Gnydjenko

    In this episode of the Shared Stories Podcast, we feature two inspiring lupus warriors, Alex Gnydjenko and Joseph Gallagher, who openly share their journeys with lupus. They discuss the challenges they've faced, their strategies to navigate life with the condition, and how they've found resilience and strength along the way. The conversation is filled with valuable insights and practical tips for others living with lupus, offering hope and guidance for those on a similar path. Tune in to hear their stories and gain inspiration from their experiences.

    43 min

  5. 2024-05-23

    Life with Lupus – Heidi & Sunita’s Stories

    For Lupus Awareness Month this May we are featuring two stories from lupus warriors: Heidi Nielsen and Sunita Mandi. Heidi shared her story during our Lupus Ontario Gala speaking about how important it is to be your own advocate, while outlining her various symptoms and treatments. “We must find what works best for our bodies.” To view the video referencing Heidi’s story: https://www.youtube.com/watch?v=uIj8rFBgEZA Sunita spoke about her journey, focusing on the challenges of the past two years. Advocating for herself, trusting her rheumatologist, exploring new treatments, and leaning on her support team has brought her to a healthier place in her lupus journey. Join us for these fascinating stories. If you are looking for a support group to join, visit www.lupusontario.org/support/. For more information about lupus, visit www.lupusontario.org.

    28 min

  6. 2024-01-09

    Social Prescribing - Benefits For Your Health Journey and The Health System

    Hello everyone, coming up on the Lupus Ontario podcast, we talk about Social Prescribing! What it is, all the aspects of support for an individual that it entails, how social prescribing is delivered and go through examples of how social prescribing can benefit you in your health journey. We also speak about how Social Prescribing can benefit the entire health system including hospitals and primary care.    We also mention the Alliance for Healthier Communities. If you would like to find out more about the Alliance or Social prescribing, you can visit https://www.allianceon.org/ or simply search for Alliance For Healthier Communities online. Hopefully as you listen to this episode you gain some practical takeaways on how you can use the principles of social prescribing in your everyday life, as well as ways to get involved in your community to help encourage others to make connections and support them in their health journey. Question? media@lupusontario.org www.lupusontario.org

    32 min

  7. 2023-09-18

    Transitioning From Pediatric Care to Adult Care in Lupus - Dr. Stephanie Wong

    Our conversation today is on the Transition of Care - from Pediatrics to Adult Care. We are pleased to be joined by Dr. Stephanie Wong and Nameerah Hasan for today’s conversation. Dr. Wong is the 2022-2023 Lupus Ontario Geoff Carr Fellow. Having completed her MD at the University of BC, Dr. Wong is expanding her clinical experience at SickKids Hospital in Toronto and also attending the transition clinics at Mount Sinai and Toronto Western.  Nameerah Hasan is a lupus warrior. Contracting double pneumonia and experiencing a month-long hospital stay at the age of 12, Nameerah began exhibiting other hallmarks of lupus such as fevers, muscle and joint aches, migraines and blood clots. She was treated by the incredible team at SickKids Hospital and eventually diagnosed with SLE and Antiphospholipid Syndrome. Enjoy the conversation!

    35 min

  8. 2023-08-11

    Organ Damage in Lupus - Dr. Zahi Touma, UHN Toronto

    In this episode we speak with Dr. Zahi Touma, Director of the Lupus Program at UHN in Toronto, Ontario about organ damage caused by lupus, but also damaged potentially caused by treatments for the disease. Please send us your lupus questions: media@lupusontario.org Note: this podcast is not intended to convey health information specific to a person's health journey and is intended for educational purposes only. For concerns about your specific health journey, always contact your physicians and/or medical team.

    40 min
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Ratings & Reviews

5
out of 5
4 Ratings

About

We seek to raise awareness and education of Lupus globally by speaking with medical professionals, physicians, researchers and patients to better understand the lupus journey, diagnosis and treatments. For more information about Lupus and Lupus Ontario, please visit Lupus Ontario at www.lupusontario.org, or follow us on Instagram, Twitter, Facebook or YouTube. We'd love to hear from you! If you have topic suggestions for the podcast, reach out to us at media@lupusontario.org.

Information

  • Creator
    Lupus Ontario
  • Years Active
    2021 - 2025
  • Episodes
    22
  • Rating
    Clean
  • Copyright
    © Lupus Ontario
  • Show Website
    Lupus Ontario Podcast

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