Talking With Tech AAC Podcast Rachel Madel and Chris Bugaj

This week, we share Rachel’s interview with Chantelle Hutchinson (@dysphagiacommunity)! Chantelle is a Speech-Language Pathologist who works with adults with acquired brain injury and progressive neurological conditions. She shares about some of the factors that make working with clients with acquired brain injuries, like traumatic brain injury (TBI) and stroke, unique, including: how AAC needs can be different, the impact of frequently changing communication partners, the value of getting to know the client before writing goals, and more!
 
Before the interview, Chris and Rachel chat about why podcasting should be considered and supported more often as a form of professional development. When we make education more engaging, it leads to better outcomes and retention!
 
Key Ideas This Week:
 
🔑 Some people who have a TBI or stroke may not understand that they are communicating differently or their communication partner is not understanding. This can impact buy-in, because the client may not see much need for the device if they are not aware of the communication breakdowns.
 
🔑 We don’t always target building awareness about communication breakdowns for a client with a TBI or stroke. It takes a balance, because if a client is totally unaware, it can impact their ability to know when to use strategies (like AAC), but being highly aware of communication difficulties may lead to lower mental health outcomes overall.
 
🔑 A therapist working with TBI and stroke needs to keep in mind the client’s cognitive profile -  some may never get to the point where they can initiate a conversation, no matter how much you practice the skill. In that situation, try and consider if the client’s needs are being met naturally and how you can best support them given their cognitive profile.
 
Links from This Week’s Episode:
 
Talking Mats: https://www.talkingmats.com/
 
Visit talkingwithtech.org to listen to previous episodes, find new resources, and more!
 
Help us develop new content and keep the podcast going strong! Support our podcast at patreon.com/talkingwithtech!

This week, we share part two of Rachel’s interview with Tiffany Joseph! Tiffany is an autistic mother of three neurodivergent teens, as well as an educator, advocate, and a part-time AAC User with inconsistent verbal speech.  She shares about her experience as a gestalt language processor, how she thinks AAC could help students mitigate their gestalts, her perspective on Spelling to Communicate, and more!
 
Before the interview, Chris and Rachel answer a listener question about “seasoned SLP‘s” in the listener’s school district who said that “high-tech AAC wasn’t appropriate for kids with lots of behaviors.” Chris and Rachel discuss the question, noting that behaviors are often reduced when a student has a device, and they wonder whether those “seasoned” SLPs should reconsider their openness to new ideas.
 
🔑 Chris’s motto  is “education instead of restriction,” meaning we should teach people how to use new things (like AI, etc) rather than just try and restrict or block them in the schools. In his experience, you can restrict a particular app or website but it’s better to teach students to use the tool in a better way.
 
🔑 Tiffany said it would’ve been really helpful for her communication growing up if she could’ve had a device that displayed the first half one of her gestalts, followed by different logical alternative endings that she could choose from to help her mitigate her gestalts.
 
🔑 Tiffany believes that spelling to communicate is a valid form of communication and doesn’t believe it should be  controversial. She feels that, similar to “body doubling,” where the presence of a familiar person can help us regulate and focus, having a familiar partner facilitate communication is really valuable. Tiffany says that having a person there for to help coach the motor plan doesn’t make S2C invalid.
 
Visit talkingwithtech.org to listen to previous episodes, find new resources, and more!
 
Help us develop new content and keep the podcast going strong! Support our podcast at patreon.com/talkingwithtech!

This week, we present Part 1 of Rachel’s interview with the amazing Tiffany Joseph (@nigh.functioning.autism)! Tiffany is an autistic mother of three neurodivergent teens, as well as an educator, advocate, and a part-time AAC User with inconsistent verbal speech.  She explains more about situations when verbal speech becomes difficult, the ways that writing text out before hand helps her, strategies she uses when she has trouble with verbal speech, and more!
 
Before the interview, Chris and Rachel discuss a listener question from a parent of a teen who wants more authentic inclusion for her child, but she feels like encouraging more authentic inclusion is not very achievable. Chris and Rachel discuss the difficulty living in a world that isn’t universally designed, how we can use IEP accommodations to support UDL, cultivating belonging through inclusion, and more!
 
Key ideas this week:
 
🔑 People will point out when someone doesn’t talk as much, and it often feels uncomfortable for that person. Not everyone talks all the time, but there is often an unspoken judgement when people are described as “not talking as much.” Sometimes it feels to Tiffany that she always has to be doing something extra, like talking, for others to feel happy.
 
🔑 Tiffany is a dyspraxic multi modal communicator with inconsistent motor plans, including with inconsistent verbal speech. Difficulty with motor plans can include routine activities, like brushing her teeth. Some people have entire bodies like this, while other people have only parts of their bodies with these kinds of motor difficulties. You can get really anxious in social situations when your speech and motor plans work inconsistently.
 
🔑 Be thoughtful about saving a student’s energy for learning & communicating, and try not to overdo repetitive daily tasks you know they can do. There isn’t an unlimited well of energy available, so we should be thoughtful with what we are asking someone to do. For example, don’t want to focus on handwriting so much that it limits progress on spontaneous communication.
 
Visit talkingwithtech.org to listen to previous episodes, find new resources, and more!
 
Help us develop new content and keep the podcast going strong! Support our podcast at patreon.com/talkingwithtech!

This week, Chris and Rachel interview Bob Sagoo! Bob is the father of Harchie, an 18-year-old young man with cerebral palsy who uses an AAC device with eye tracking to communicate (along with other modalities). Bob shares about Harchie’s AAC journey, Bob’s work to get Harchie mainstreamed in school, Harchie going to college, and more!
 
Before the interview, Chris and Rachel talk about delivering fun experiences while teaching about language with AAC! They share about why we need to bring playfulness and a playful energy, and some ideas for ways we can bring the fun, like humor, music, dressing up, painting, and modifying games!
 
Key ideas This Week:
 
🔑 Parents need to feel empowered - in any situation, parents are the expert when it comes to their child. It’s Ok to respect specialists for their experience and knowledge, but when it comes to your child, you are the expert. You are their advocate and speak on their behalf until they are able.
 
🔑 It’s for OK not to be OK. There is often a lot behind the scenes going on within families that we don’t see, especially for families of children with complex bodies. We need to give parents grace when working with them - if they don’t do something we recommend, there is probably a reason other than “they don’t care.”
 
🔑 Bob says the feeling he gets when he wakes up at three in the morning, of “I don’t know what my kid is going to do after I’m gone,” doesn’t really go away, but it can be helped a lot by taking the time to reach out and find out as much as you can. That will help you become as informed as possible as you learn about what your child needs.
 
🔑 If parents are feeling overwhelmed by information about their child’s needs and don’t know where to start, one good place is to connect with other parents of children with special needs,  They can help you get started moving in the right direction, and anytime you’re going through something difficult, knowing you’re not alone can be very powerful!
 
Visit talkingwithtech.org to listen to previous episodes, find new resources, and more!
 
Help us develop new content and keep the podcast going strong! Support our podcast at patreon.com/talkingwithtech!

This week, we hear Chris’s interview with Beth Moulam and Joanna Holmes! Beth is a master student, former Paraolympian, a Trustee of Communication Matters (a branch of ISSAC), and patron of a charity called One Voice. She is a multi modal communicator who often uses AAC devices to communicate. Joanna (@mummyvsaac on Instagram) is the mother of Lucy, a 9-year-old multimodal communicator with a complex medical history that includes a genetic component. They share about Beth’s AAC journey, the importance of a language rich environment on AAC development, the multimodal nature of communication, and more!
 
🔑 Beth doesn’t feel she will ever reach her final communication destination, because she is always learning. Learning to use AAC is a labor of love, it takes hours of practice and lots of resilience for the user, families, and their support networks.
 
🔑 Beth and Joanna both emphasize the many modes of communication a complex communicator uses to communicate.  A person’s communication “system” is more than the AAC app a person uses, it is everything that person does to communicate with others.
 
🔑 There is a popular misconception that getting an AAC device will lead to lots communication. You also need the language to use it, which for some is a long jump. Learning to use AAC for most people isn’t like flicking a switch, its like building a house - it takes a team of people, doing their best to do things in the right order, learning nail-by-nail, to use AAC together.
 
🔑 Beth had a communication rich home environment as a child, including being read to daily and having phonics on her bedroom wall that she discussed with her mother. She believes this was really important to her literacy and ability to work with AAC at a young age.
 
Visit talkingwithtech.org to listen to previous episodes, find new resources, and more!
 
Help us develop new content and keep the podcast going strong! Support our podcast at patreon.com/talkingwithtech!

This week, Chris interviews Daniel O’Conner and Bradley Haven of All Access Life! All Access Life is a nonprofit that showcases the latest trends and movements in adaptive products and assistive technologies on their website allaccesslife.org. Daniel & Bradley share about how they met when Daniel was Bradley's Aide in high school (Bradley has nonverbal Dyskinetic Cerebral Palsy), how they came to decide to create a nonprofit together, and how they developed their mission to share information about adaptive products. They also discuss Bradley’s AAC journey and how the technology has progressed from the switches Bradley used as a teenager to the current eye tracking he uses on his TD Pilot device.
 
Before the interview, Rachel shares about a family who had a very strong emotional reaction to having their child’s voice changed from a child’s voice to a teenager’s voice, and why we need to include the family and give lots of advance warning if we want to make a change to voice output for maturity purposes.
 
Key Ideas this Week:
 
🔑 We should try and spread the word about current accessibility gaming options, like Copilot with the Xbox Adaptive Controller, that allow people like Bradley to play video games.  Accessable gaming opens up social opportunities and allow users to engage with friends and family in new ways!
 
🔑 A lot of companies don’t think about the fact that people with disabilities use their product. Big companies like Microsoft embracing inclusive design with their Xbox Adaptive Controller helps move the field forward, but there is more work to be done!
 
🔑 Bradley says “nothing about us, without us,” meaning he wants companies who create products to get feedback from actual people with disabilities at every step of product creation.
 
🔑 Playing video games in schools shouldn’t be a carrot at the end of a difficult task, but rather something woven in (e.g. tallying up classroom scores on Rocket League to practice addition) to make learning more engaging.
 
Links from This Weeks Episode
 
Miles Harvey - Esports Research and Its Integration in Education (Advances in Game Based Learning)
 
How to Use Copilot on Xbox