Todd was diagnosed with Cystic Fibrosis at a young age. He lived a relatively normal life through his teens and into University. Recently, being hospitalized, he was given Trikafta and saw a massive improvement. Listen to his story. Bonus, during the taping of this podcast, the Cystic Fibrosis drug Trikafta is now approved in Canada for Doctors to prescribe. This is a HUGE victory, but there is still more work to be done. The drug is available, but depending on your insurance provider, there is a cost.
WHAT CAN YOU DO TO ADVOCATE FOR ACCESS TO TRIKAFTA?
Stand up and make your voice heard. We need a commitment from provincial governments to expedite price negotiations and then immediate list of Trikafta after drug reviews are completed. Ways that you can help:
- Sign the petition to tell your province to end the wait for life-saving CF drugs.
- Send a letter to your provincial elected official
- Join our National Advocacy Network.
- Share your access stories on social media using #cfcantwait, and tag your elected officials.
- Write to and meet with your provincial and federal elected officials. CF Canada’s advocacy toolkit will help you have these conversations.
- Sign up for ‘The Advocacy Brief’ e-newsletter to get advocacy updates, including news about access to Trikafta, delivered straight to your inbox.
Information
- Show
- FrequencyMonthly
- Published23 June 2021 at 06:40 UTC
- Length14 min
- Episode3
- RatingClean