#6 Giving Back: Batten's Disease and Befriending

Bereaved Parents' Club

Lynsey lost both of her beautiful children to Batten’s Disease, a rare and complex disease that is always fatal. In this episode, she speaks with grace and compassion about her family’s journey through these terrible losses, and how she is now able to help others facing similar challenges, as a peer befriender. 

To find out about the Batten’s Disease Family Association, click here.

To buy Poppy’s single, When You Were With Me, follow this link. To listen on YouTube, click here

This episode is dedicated to Ellie Mae and Caleb.

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