Effective health research is built upon equitable partnerships between researchers and communities. Join Dr. Kim Ozano and PhD student Bea Egid, from the Liverpool School of Tropical Medicine, as they interview expert researchers from across the globe who engage with communities in their research. If you are interested in how different research methods and disciplinary approaches can be used to co-produce knowledge and solutions to complex challenges in global health, this is the podcast for you.
Each series in this podcast has a disciplinary, topical or contextual theme and a guest-host from a partnering institution. If you have a theme that you would like to be explored on the podcast, please let us know below in the comments below or contact email@example.com or firstname.lastname@example.org.
Intro music: Mike Donnelly
Logo: André Jahnoi Dallas
S8E1- Supporting the Mental Wellbeing of People Affected by Chronic Health Conditions - Acting for Change
In this episode, we hear from Dr Rugema Lawrence from the University of Rwanda and Dr Julian Eaton from the London School of Hygiene and Tropical Medicine and CBM Global Disability and Inclusion. Together they discuss the links between stigma, discrimination, mental wellbeing and chronic health conditions including Neglected Tropical Diseases (NTDs), how these issues are currently being addressed with communities and the importance of ensuring mental health is part of an essential care package.
Guest host for this series
Dr. Oluwatosin Adekeye
Assistant Director of Clinical Psychology, Department of Psychiatry Ahmadu Bello University Hospital Zaria Kaduna
A social scientist with varied experience in both clinical and research aspects of health among communities in Northern Nigeria. As a Clinical Psychologist, his work has been both on mental and behavioral disorders and the effects of chronic disease on the well-being of patients and caregivers. As a Social Scientist, he just concluded a study that documented the well-being of people with stigmatizing skin diseases and established a care and support group within the community. More recently he is working on developing a well-being tool for parents and children with disability.
Dr Julian Eaton
Mental Health Director at CBM Global and Assistant Professor at London School of Hygiene and Tropical Medicine
Julian Eaton is the Mental Health Director for CBM Global Disability and Inclusion. He works with a team focused on improving access to care and support, and promoting the voice of people with psychosocial disabilities in low and middle income countries. He is an Assistant Professor at the Centre for Global Mental Health at London School of Hygiene and Tropical Medicine, where he is currently leading a number of research projects looking at strengthening community-based mental health care, reform of public mental health systems in Africa, and Neglected Tropical Diseases. He leads the http://www.mhinnovation.net/ (Mental Health Innovations Network) at LSHTM, and is Chair of the Bond International NGO Mental Health Group. Julian trained as a psychiatrist in London where he now works, after living and working in West Africa between 2003 and 2017.
CBM Community Mental Health homepage:
Blog on community participation:
Dr. Lawrence Rugema
Lecturer, researcher and Consultant University of Rwanda – School of Public Health
Dr Rugema Lawrence is a public health professional at the University of Rwanda. Most of his research work has focused on mental health and reducing stigma related to mental illness. Currently he co-leads implementation research on Podoconiosis in Rwanda under NIHR funded Global Research Unit on Neglected Tropical Diseases in collaborator with the Brighton Sussex Medical School. In this particular research, community health workers are critical to in reducing podoconiosis related stigma. Coordinate rapid community health needs assessment through outreach program to inform policy.
S7E4 - The East African citizens' perspective on NCDs
In this week's episode we hear from Detricia Pamba, a patient advocate for people living with diabetes and Prof Kaushik Ramaiya from Shree Hindu Mandal Hospital, Tanzania. Together they paint a vivid picture of what life is like for people living with non-communicable diseases (NCDs) in East Africa and what is needed to improve long-term, ‘humanised’ care for patients living with NCDs.
Multi-Media Journalist, Editor and Content Creation Executive, Mwananchi Communications Ltd
Detricia Pamba is the Content Creation Executive at Mwananchi Communications Ltd, Editor for Mwananchi Scoop and Features writer for The Citizen. Her journalism experience extends on health, business and money management, women and youth, with a mix of arts and entertainment. She is a Type 1 Diabetes patient since 2011 who advocates for the awareness of diabetes in Tanzania through her writings.
Prof Kaushik Ramaiya
CEO, Shree Hindu Mandal Hospital, Tanzania
Professor Ramaiya has been actively involved in research on diabetes for many years and specialised, among other topics, on glucose tolerance and cardiovascular disease risk factors and mainly focused on Indian communities living in Africa. At present, Professor Ramaiya is working with children who have Type 1 diabetes, gestational diabetes, metabolic syndrome and cardiovascular complications of antiretroviral drugs in HIV/AIDS and Diabetes/TB interaction. As part of the Respond Africa Partnership,, he is working on CD NCD Integration models (MOCCA Study) and will be overseeing metformin intervention in HIV patients with IGT (META Trial).
S7E3 - Engaging with East African governments to address NCD care
In this weeks episode we have a conversation with Professor Sayoki Mfinanga, Director and Chief Research Scientist for NIMR Muhimbili Cenre, Honorary Professor of Global Health at Liverpool School of Tropical Medicine and Muhimbili University of Health and Allied Sciences in Dar es Salaam, and Adjunct Professor at Nelson Mandela African Institution of Science and Technology, Arusha. Professor Sayoki shares key learning about:
engaging with East African governments to address NCD care
expert patients who have suggested new ways of working that have challenged professionals to rethink their knowledge base
the importance of strengthening primary health care.
Professor Sayoki Mfinanga
Director and Chief Research Scientist, National Institute of Medical Research, Muhimbili Cenre Tanzania
Professor Mfinanga is the Director and Chief Research Scientist for NIMR Muhimbili Cenre, Honorary Professor of Global Health at Liverpool School of Tropical Medicine, Honorary Lecturer at Muhimbili University of Health and Allied Sciences in Dar es Salaam, and Adjunct Professor at Nelson Mandela African Institution of Science and Technology, Arusha, Tanzania. He is leading several scientific research networks in Africa. He is Deputy Director-of Respond Africa, as well as Deputy Director for Afrique one ASPIRE consortium, and Coordinator of TB node of excellence in East Africa under East Africa Consortium for Clinical Research (EACCR2).
S7E2 - The economic impact of NCDs on East African communities
In this week's episode, we will be talking about the economic impact of non-communicable diseases or NCDs on east African communities. Guests include Dr. Steven Waititi, a Patient representative on Respond-Africa Partnership and author of “Conquering HIV and AIDS: My personal experience of living with HIV” and Josephine Birungi, a Senior Research Scientist based at Medical Research Council/Uganda Virus Research Institute (MRC/UVRI) in Entebbe. They discuss:
Financial/economic barriers for patients and communities affected by NCDs
What having an NCD means for patient finances
How integrated care addresses these problems
Dr Josephine Birungi
Senior Research Scientist, MRC +UVRIand LSHTM Uganda Research Unit
Dr Josephine Birungi is a Senior Research Scientist based at Medical Research Council/Uganda Virus Research Institute (MRC/UVRI) in Entebbe. She is currently working on a number of research project within the Respond Africa Partnership, as study lead in Uganda. Projects include
INTEAFRICA which is evaluating a novel approach of integrated clinical management of HIV-infection, diabetes, and hypertension in Tanzania and Uganda and INTECOMM which is evaluating community based integrated care for people living with HIV, Diabetes and Hypertension.
Dr Steven Watiti
Patient representative on Respond-Africa Partnership
After studying Medicine at Makerere University, Kampala, Uganda, Dr. Watiti, was a medical officer, Rubaga Hospital, Kampala from 1985-1988. He practiced medicine privately from 1988-2004 at Entebbe Road clinic and JOY Medical Centre Ndeeba, Kampala. From 2004, he has been working at Mildmay Uganda, a leading HIV and AIDS service organisation. An HIV activist and ardent advocate for improved and sustainable health for all, Dr. Watiti believes with hindsight that he acquired HIV between 1985 and 1986 while working as a junior medical officer. In 2000, he began ARVs after contracting tuberculosis, cancer (Kaposi’s sarcoma), and meningitis. In 2006, he started his weekly column on HIV in New Vision, Uganda’s leading daily newspaper. His column appears Mondays under the heading: “Towards zero: with Doctor Watiti”. He has published two books on HIV: “HIV and AIDS: 100 Commonly Asked Questions” and “Conquering HIV and AIDS: My personal experience of living with HIV”. Dr Waititi works with the Respond Africa partnership as an expert patient ensuring that patient needs, views and voices are heard and considered and addressed when designing and implementing research projects.
S7E1-Embracing the challenge of non-communicable diseases (NCD) in the East African communities
In this series we are talking about responding to the challenge of non-communicable disease in East Africa together
In recent decades, rates of non-communicable diseases (NCD), such as diabetes and high blood pressure have risen sharply in sub-Saharan Africa and are now linked to approximately 2 million deaths per year. Countries across the continent are rapidly looking to address this new epidemic, but this is difficult with much of the healthcare system still focused on the treatment of communicable disease, such as HIV. This podcast series will explore many aspects of the problems related to NCDs across sub-Saharan Africa, including how African and European researchers from the RESPOND-Africa group, and healthcare providers and governments in East Africa are working with local communities to better understand the issues related to NCDs and how we can best address their care. In particular, we’re interested in how integrating the care of NCDs with other, currently well treated conditions, like HIV can benefit the patients and local healthcare systems by improving care whilst saving them both time and money.
In this week’s episode we hear from Dr Flazia Zalwango from the Medical Research Council/ Uganda Virus Research Institute and LSHTM and from Dr Anu Garrib, a consultant in public health medicine working at LSTM in the RESPOND Africa/NIHR Group for the prevention and management of HIV-infection and non-communicable diseases. Our guests discuss:
Barriers to engaging community groups across the life cycle, including children, adolescents, and older people to inform prevention, treatment and management of disease conditions like NCDs.
How to best engage policy makers in research uptake
The problem of NCDs in sub-Saharan Africa and how they are being addressed currently
How communities can be involved in addressing the problem of NCDs going forward
Why and how can integrated NCD and HIV benefit these communities
Our guest host for this series is Dr Joseph Okebe
Senior Research Associate, LSTM
My research looks at how primary healthcare services for people living with chronic health conditions such as diabetes, HIV-infection and hypertension can be improved. We recently completed a study in Tanzania and Uganda where we looked at the impact of having all these services together in the same clinic affect patient’s retention in care and control of their health conditions.
Linkedin: https://www.linkedin.com/in/joseph-okebe-a049399/ (https://www.linkedin.com/in/joseph-okebe-a049399/)
Dr Anu Garrib
Principal research associate, RESPOND-Africa partnership, LSTM
I am a consultant in public health medicine and have been working at LSTM in the RESPOND Africa/NIHR Group for the prevention and management of HIV-infection and non-communicable diseases in Africa since 2017.
My current research focusses on evaluating strategies for the integrated delivery of HIV and non-communicable disease care, as well as clinical studies on the prevention of diabetes. The study on integration of HIV and NCD services was a feasibility study aimed at determining if an integrated delivery of care for these conditions was acceptable to patients and healthcare workers, and involved extensive engagement with these groups to determine how best to structure the service. Although the clinical trial is a very different kind of study, the continued engagement of patients is critical as we try to determine how best to support patients so that they are able to continue the trial treatment for an extended period. Wider communication within the community and engagement with community leaders about aims of the trial is really important to pre-emptively address concerns that patients and their families may have...
S3E6 - Mary Mpakibi, A journey of strength, courage, and leadership from a TB survivor
In this episode we hear from Mary, a TB survivor who shares her inspirational journey from initial sickness to embarking on multiple complex treatments, lengthy isolation, recovery and finally to unending dedication to offer support, positivity and hope for others living with TB. Key learning and lessons in this story for researchers, policy makers and global health planners.
Retention Officer and TB expert champion, Kawempe Home Care
My name is Mpakibi Mary, am 28 years and currently staying in Kyebando, Kawempe Kampala Uganda. I am working at Kawempe Home Care (KHC) as a Retention Officer and TB expert champion. KHC is a community Based Organisation caring for people living with HIV/AIDS, TB cancer and other health related illness.
I also work as a cab, Community Advisory Board member with Makerere Lung Institute and a member of Uganda Country Advisory Group (UCAG) under the Light TB project bridging the gap between researchers, health facilities and the communities.
Some of my contribution are attributed to TB case notification through contact tracing and Community sensitization and screening which contribute to the Total TB cases identified at Kawmpe Home Care and other health facilities as shown in reports attached to the links