Its Not All About ME Its Not All About ME

It's not as bad as I thought it would be! We're back after a little break with a walk and talk ep. We chat the stress, guilt and frustration of trying to maintain a schedule and keep appointments when you have a chronic illness. How do you adapt to the new normal and how on earth to you become cool with that? My old life - I wish I knew how to quit you. FANCY PICKING UP THE TAB FOR THE COFFEE? Support the show at https://ko-fi.com/inaam MUSIC – Feeling sunny by Scott Holmes from Free Music Archive. Contact us on the show at:
@0allaboutme
itsreallynotallaboutme@gmail.com
Thanks all!!

Episode 29 The loneliness of the chronic illness experience

As the world begins to explore getting back out into the world after months of isolation, we take a moment to think about those who will, once again, be left behind and missing. On a cheerier note, we have a bed of nails so all will be well.

MUSIC – Feeling sunny by Scott Holmes from Free Music Archive

Contact us on the show at:
@0allaboutme
itsreallynotallaboutme@gmail.com

Thanks all!!

Episode 28 – One Family, Four kids with ME feat Sean and Niamh Henneberry

Some time ago, 14 year old Sean got in touch asking if he could come on the show and share his experience of having ME (Myalgic Encephalomyelitis). As we were getting organized to have our chat he revealed that all four kids in his family have the chronic illness. In this, first of two special episodes, Sean and his sister Niamh share their struggles and hope for the future.

Sign up to Sean’s Youtube page to get announcements about his stop motion animation at https://www.youtube.com/channel/UC93CCTn640Kgv8CfGURybOA/about

MUSIC – Feeling sunny by Scott Holmes from Free Music Archive

Contact us on the show at:
@0allaboutme

itsreallynotallaboutme@gmail.com

Thanks all!!

Episode 27 – Older, Wiser, Kinder

We are back from our “baby break” and ready to go. After a brief chat about life with ME and a new baby, we chat about our strong response and reaction to the recent tweet from Brianne Benness (@bennessb) that said “The distinction feels contrived, but my mental health really changed when I stopped asking "why am I so lazy" and started asking "why does my body need so much rest right now?"
*apologies - does contain a little bit of swearing!

MUSIC – Feeling sunny by Scott Holmes from Free Music Archive

Contact us on the show at:

@0allaboutme

itsreallynotallaboutme@gmail.com

Thanks all!!

Episode 26 and then there were three

This week we share our experience of the first ten days of first-time parenthood and explore our hopes and fears as a parent with ME\CFS. Please do get in touch with your experience, tips and support. All will be most gratefully received!

MUSIC – Feeling sunny by Scott Holmes from Free Music Archive

Contact us on the show at:
@0allaboutme
itsreallynotallaboutme@gmail.com

Thanks all!!

Episode 25 – feat. J E Barnard

This week we are joined by writer and very-much all-round great person J.E. (Jayne) Barnard. Jayne shares her long term experience of ME and chats about how it affected the whole family and also how she realized she had to find her own questions, answers and treatment to be able to just get by. She takes us through her process of writing several (award winning) books while living with the full-time job of having ME and offers experience of how she dealt with expectation, responsibility, demand and adrenaline.

The first books in her two series can be found on Amazon and are called When The Flood Falls (Falls Mysteries series) and Maddie Hatter and the Deadly Diamond (Maddie Hatter Adventure series).

Jayne and her books can be found at:
https://www.facebook.com/permalink.php?id=256291734780049&story_fbid=474069513002269
https://www.facebook.com/MaddieHatterAdventures/
@J_E_Barnard and @JayneBarnard1 on twitter

MUSIC – Feeling sunny by Scott Holmes from Free Music Archive

Contact us on the show at:
@0allaboutme
itsreallynotallaboutme@gmail.com

Thanks all!!