26 episodes

Hosted by online magazine Parkinson’s Life and supported by Parkinson's Europe, this free monthly podcast explores the reality of life with Parkinson’s – and shares ideas on how to live well with the world’s fastest growing neurological condition. Join us for honest conversation, useful information and inspiring stories from around the world. #ParkinsonsLife #Parkinsons.

parkinsonslife.eu

The Parkinson's Life Podcast The Parkinson's Life Podcast

    • Health & Fitness
    • 4.4 • 18 Ratings

Hosted by online magazine Parkinson’s Life and supported by Parkinson's Europe, this free monthly podcast explores the reality of life with Parkinson’s – and shares ideas on how to live well with the world’s fastest growing neurological condition. Join us for honest conversation, useful information and inspiring stories from around the world. #ParkinsonsLife #Parkinsons.

parkinsonslife.eu

    Tackling key questions about Parkinson's and sialorrhea (drooling)

    Tackling key questions about Parkinson's and sialorrhea (drooling)

    In this episode, we focus on sialorrhea. Also known as drooling, this is a common symptom experienced by people with Parkinson’s.

    UK-based David Bateson, who was diagnosed with the condition in 2015, explains how sialorrhea has impacted his speech, working life and interactions with others.

    He is joined by Dr Francesca Morgante, a neurologist based at St George’s, University of London – who has been working with David for several years.

    Together, the pair tackle key questions around sialorrhea – and share insights on how to manage it.

    This podcast has been sponsored by Merz Therapeutics. The content of this episode was up to date and accurate at the time of recording in June 2023. The episode represents the attendees’ own opinions and experiences. This episode has been reviewed by Merz Therapeutics.



    Parkinson’s Life magazine is produced by Speak Media on behalf of Parkinson’s Europe, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit www.parkinsonseurope.org.

    If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care!

    • 32 min
    How to manage 'off' periods in Parkinson's

    How to manage 'off' periods in Parkinson's

    Following our previous episode on what to expect with ‘off’ periods in Parkinson’s, this episode focuses on potential management methods.



    Canada-based Barbara Salsberg Mathews, who was diagnosed with the condition in 2020, shares her personal strategies for tackling ‘off’ states and the impact these have had.



    She is joined by Dr Silvia Rota, an Italian neurologist and clinical research fellow who sheds light on various treatments and approaches that may be beneficial.



    Together, our two guests explore how different tactics can help people to take better control of their ‘off’ periods – and why open communication is key.



    This episode was funded by pharmaceutical company Bial. The content of this episode was up to date and accurate at the time of recording in October 2023. The episode represents the individual views and experiences of the podcast attendees.



    Parkinson’s Life magazine is produced by Speak Media on behalf of Parkinson’s Europe, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit www.parkinsonseurope.org.



    If you like what you’ve heard, please rate and review – it helps make sure others can find us.



    If you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care!

    • 36 min
    What to expect with 'off' periods in Parkinson's

    What to expect with 'off' periods in Parkinson's

    In this episode we focus on ‘off’ periods – when Parkinson’s medication is not as effective as it should be, and symptoms become more difficult to manage. 

    US-based Bill Bucklew shares how his ‘off’ periods have evolved since he was diagnosed with the condition in 2012, and how they play a role in his daily life. 

    Joining him is Dr Valentina Leta, a neurologist based in Italy who highlights the importance of increasing awareness around this important topic. 

    Together, our guests explore what people should know about the different types of ‘off’ periods, how to identify them – and how they can impact people in the Parkinson’s community. 

    This episode was funded by pharmaceutical company Bial. The content of this episode was up to date and accurate at the time of recording in October 2023. The episode represents the individual views and experiences of the podcast attendees.

    Parkinson’s Life magazine is produced by Speak Media on behalf of Parkinson’s Europe, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit www.parkinsonseurope.org.

    If you like what you’ve heard, please rate and review – it helps make sure others can find us.  

    If you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care!

    • 32 min
    What you need to know about apomorphine pump treatment for Parkinson’s

    What you need to know about apomorphine pump treatment for Parkinson’s

    In this episode, we find out what it’s like to manage daily life with an apomorphine pump. Apomorphine is a type of liquid dopamine agonist that is primarily used to treat people living with a more ‘advanced’ stage of Parkinson’s.

    UK-based Bob Taylor explains how the treatment has helped him adjust to his “rollercoaster” journey with the condition, since he was diagnosed more than two decades ago. Joining him is Liz Taylor, his wife, who has supported him as a caregiver throughout his experience.

    They talk to Dr Tove Henriksen, a neurologist from Denmark, who says that in 30 years of treating people with Parkinson’s, she has never grown tired of her work. Together, our three guests explore the challenges and potential benefits of using an apomorphine pump.

    This episode was sponsored by Convatec, and Tove has been paid by Convatec to provide information for this podcast. The information in this podcast is given for information purposes only and is not a substitute for advice from your doctor, pharmacist, or other healthcare professional. Opinions expressed within this podcast are those of the individuals and not necessarily representative of Convatec.

    Parkinson’s Life magazine is produced by Speak Media on behalf of Parkinson’s Europe, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit www.parkinsonseurope.org.

    If you like what you’ve heard, please rate and review – it helps make sure others can find us. 

    And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care!

    • 29 min
    Freezing, moving and cueing: understanding gait and Parkinson's

    Freezing, moving and cueing: understanding gait and Parkinson's

    In this episode, we explore gait impairment – a common symptom of Parkinson’s that can involve slowness, muscle stiffness and freezing – and how it impacts people living with the condition.

    Our first guest is David Little, who lives in Carlisle, UK. Having previously worked as a firefighter, David was diagnosed with Parkinson’s back in 2005. David has experienced first-hand the effects of gait impairment in his day-to-day life and says he’s keen to challenge the misconceptions that can surround the condition.

    He is joined by Martina Mancini from Italy, who works as an assistant professor in the neurology department at the Oregon Health & Sciences University, in Oregon, US. Martina has worked on numerous studies about gait impairment – and has also investigated the role wearable devices can play in treatment.

    David and Martina discuss what causes gait impairment, share advice on managing these symptoms – and explore how current research is addressing this topic.

    This episode was funded by Charco Neurotech, the ­­company behind CUE1 – a wearable medical device designed to help alleviate gait impairment and support movement in people with Parkinson’s.

    Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com.

    If you like what you’ve heard, please rate and review – it helps make sure others can find us.

    And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

    • 30 min
    Getting involved in Parkinson's research

    Getting involved in Parkinson's research

    This episode explores what it means to take part in Parkinson’s research – from finding out more about clinical trials, to completing surveys about life with the condition.

    Our first guest is Amelia Hursey, who lives in London, UK. Amelia recently joined the European Parkinson’s Disease Association – the only European Parkinson’s umbrella organisation – as Research Manager, and is passionate about informing members of the Parkinson’s community how they can learn more about research.

    She is joined by Karl Wouters, based in Beerse, Belgium, who has worked in corporate communications and disease management programmes. Since being diagnosed with Parkinson’s six years ago, Karl has taken part in clinical trials – and is particularly enthusiastic about the importance of bridging the gap between researchers and patients.

    Also joining is Shafaq Ali, a dentist who live in West Yorkshire, UK. Diagnosed with Parkinson’s in 2019, she is currently exploring the idea of taking part in research – and is looking for options to get involved that work for her.

    Amelia, Karl and Shafaq discuss how people in the Parkinson’s community can find out more, explore some of the different ways of taking part in research – and share why asking questions is key.

    This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions.

    Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com

    If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu.

    • 44 min

Customer Reviews

4.4 out of 5
18 Ratings

18 Ratings

Parkinson’s is a pain ,

Sialorrhea

My husband and I listened to David’s Podcast episode and found it very helpful. Thank you.

lindon47 ,

Medication - Wearing off/on

Good afternoon I have just listened to a podcast about the above. I found it to be very comforting and a breath of fresh air. I know exactly what your talking about. Thank you for sharing 🙏

the listening gardener ,

Amazing, emphathic and useful

Love how mainly people living with Parkinson interview each other, So encouraging, honest and empathic! The Three Questions special episode is definitely my favourite so far!

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