Invisible Not Broken - Chronic Illness Podcast Network

Hosts: Monica and Eva

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Invisible Not Broken - Chronic Illness Podcast Network Podcast

The podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain. "Explicitly Sick Podcast" with Monica Michelle + "[Human]care Podcast" with Eva Minkoff Be Kind. Be Gentle. Be A Bad Ass. Hosted on Acast. See acast.com/privacy for more information.

2 DAYS AGO

Author of “Finding A New Normal: Living Your Best Life with Chronic Illness”: Suzan Jackson

Monica Michelle is joined by author Sue Jackson. Sue lives with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Lyme disease. In this episode, Monica and Sue discuss: Sue’s pathway to diagnosis Parenting with chronic illness and parenting a child with chronic illnessManaging ME/CFS from diagnosis to creating routinesUsing books to cope emotionallyWriting a book while having chronic fatigue TIMESTAMPS00:46 Sue’s diagnosis and how she manages her symptoms 13:03 Parenting with a chronic illness 25:02 COVID-19’s impact on chronic illness 30:35 Books as a form of escapism and connection 42:00 The challenges of writing and the importance of routines with chronic illness The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

50 min
4 SEPT

Using Self-Portraits to Represent Chronic Pain

Monica Michelle is joined by artist Kyrianna Bolles. Kyrianna lives with chronic pain. In this episode, Monica and Kyrianna discuss: Kyrianna’s struggle to be accommodated for her pain throughout school yearsHow Kyrianna uses her portraits to help represent other’s chronic conditionsThe communities Kyrianna has built, from a college support group to an artist collectiveKyrianna’s favorite tools for art and chronic pain TIMESTAMPS00:00 Intro to Kyrianna 10:45 Kyrianna’s self portraits 24:42 Kyrianna’s Support group 33:40 Animus 45:57 Kyriannas favorite support tools The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

1h 0m
12 AUG

Dory’s Corner: New Podcast intro with Host Nick Clemmons

Monica Michelle is interviewed by consultant and content creator Nick Clemmons. Nick recently started the blog Dory’s Corner with Invisible Not Broken. A companion podcast hosted by Nick will be released soon. Nick lives with Sickle Cell Disease. Monica lives with Ehlers-Danlos Syndrome, POTS, MCAS, and Fibromyalgia. In this episode, Nick and Monica discuss: Monica’s diagnostic history and her relationship with her disabilitiesHow Monica learned to advocate for herselfLack of media representation influencing abled people’s perspectives of disabled folksHow Monica’s family functions around disability TIMESTAMPS00:42 - Monica’s history and relationship with her disabilities 13:06 - How Monica found her voice *Trigger Warning: Mention of SA* 31:40 - Media representation 45:09 - Monica’s family The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

1h 0m
5 MAY

Disability Access in the Education System and How to Support Disabled Folks’ Needs with Nick Clemmons

Monica Michelle is joined by consultant and podcast host Nick Clemmons. Nick lives with Sickle Cell Disease. In this episode, Monica and Nick discuss: The ways disabled folks are often forgotten in education infrastructureHow Nick navigates societal limitations to achieve his goalsDisability representation in the mediaKnowing how to realistically offer help to disabled folks TIMESTAMPS00:42 - ADA, Title IX, and disability access in schools 20:08 - How Nick makes and achieves opportunities 28:40 - Media and disability 40:42 - How to respectfully be concerned about someone else’s needs The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

54 min
15 APR

Vulnerability, Resiliency, and Advocacy with Tim Reitsma

Monica Michelle is joined by consultant and podcast host Tim Reitma. Tim lives with Crohn's Disease. In this episode, Monica and Tim discuss: Tim’s resiliency through managing his Crohn’sThe importance of self-advocacy, especially in the workplace Tim’s podcast why he shares stories of those with invisible illness TIMESTAMPS00:47 - Tim's diagnosis 06:31 - How and why Tim applies self advocacy 15:41 - Why Tim started his podcast 22:42 - Invisible condition etiquette 31:00 - What HR can do better for employees with invisible illness 39:31 - Tools Tim uses to care for his Crohn’s outside the home The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

47 min
19 MAR

Tech and Disability: What VR Offers the Disabled Community with Sunny Ammerman

Monica Michelle is joined by artist and disability advocate Sunny Ammerman Sunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum". In this episode, Monica and Sunny discuss: Sunny’s complex disorders and how she copes with themEverything VR provides from accessible gaming, social platforms and the potential for better online education.Various VR/AR games and their gameplay Sunny’s VR support group TIMESTAMPS00:45 - What VR/AR offers for chronically ill and disabled folks 11:57 - Sunny’s conditions and how she copes with them 17:55 - Features that make VR games accessible or inaccessible as well as different games and their play experiences 37:13 - The social aspects of virtual gaming 51:32 - What opportunities VR has for the future 1:04:49 - Sunny’s VR support group The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

1h 10m
26 FEB

Reporting on Chronic Illness and Disability with Journalist Julia Metraux

Monica Michelle is joined by Journalist Julia Metraux. Julia lives with vasculitis, mild to moderate hearing loss, and has experienced long COVID. In this episode, Monica and Julia discuss: Julia's diagnosis with vasculitis and how it influences her journalistic lensHow community impacts the mental health of those with chronic illnessHow Julia and Monica find positives and negatives in the internet spaces for chronically ill and disabled folksThe politics of how government, businesses, and celebrities influence the chronic illness community TIMESTAMPS00:32 - Julia's diagnostic journey 07:02 - Julia’s work reporting on the online community of chronic illness 16:32 - The effect of Internet communities on chronically ill and disabled folks 26:46 - How Julia’s illness impacts her work, both in what she writes about and how she manages her lifestyle The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

39 min
5 FEB

Author of “Pain: The Ultimate Mentor,” Physiotherapist Kevin Hunt

Monica Michelle is joined by author & physiotherapist Kevin Hunt. Kevin lives with chronic pain. In this episode, Monica and Kevin discuss: Kevin’s philosophy of pain management as a physiotherapist who experiences chronic pain. The Hexagon Model, a life-management tool for focusing on what’s important to you.Kevin’s idea behind his new book.Using pain as a guide. TIMESTAMPS00:34 - Kevin’s work as a physiotherapist specializing in the experience of pain 06:44 - The Hexagon Model for managing your life’s needs 14:00 - Putting aside the idea of a “quick fix” 19:45 - Kevin’s personal experience with pain and how he uses it with patients 28:44 - Kevin’s book, “Pain: The Ultimate Mentor” The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

31 min

The podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain. "Explicitly Sick Podcast" with Monica Michelle + "[Human]care Podcast" with Eva Minkoff Be Kind. Be Gentle. Be A Bad Ass. Hosted on Acast. See acast.com/privacy for more information.

Creator

Hosts: Monica and Eva
Years Active

2017 - 2024
Episodes

218
Rating

Explicit
Copyright

© Monica and Eva
Show Website

Invisible Not Broken - Chronic Illness Podcast Network