In this episode:
- Fanny shares her diagnostic journey to her diagnosis. She is from a large family in Chicago.
- A large family meant a lot of family gatherings for Fanny, and she refused to let her mobility issues keep her from them. This is an issue that affects a lot of people with mobility issues, especially during the holiday season.
- With her mother not speaking English, when Fanny was a child, she learned early to advocate for herself as she translated for her mother during doctor appointments.
- Fanny shares her experience during college. She knew a large campus would be impossible for her, so she found a college in Texas where the building was only three floors and not as expansive as other campuses.
- She shares about overcoming other people's perceptions. And how she learned to overcome her embarrassment of using a wheelchair.
The National MPS Society exists to cure, support, and advocate for MPS and ML.
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資料
- 節目
- 頻道
- 頻率每月更新
- 發佈日期2022年12月27日 上午9:00 [UTC]
- 長度39 分鐘
- 集數11
- 分級兒童適宜