3 集
Perspectives in Sickle Cell Disease Obsidian HG
-
- 健康與體能
Perspectives in Sickle Cell Disease brings together people affected by this condition and specialist hematologists to shed light on this widely misunderstood condition, bringing the guidelines to life and helping healthcare professionals improve their practice by understanding the patient experience.
The Perspectives in Sickle Cell Disease podcast is a three-episode series with the first one created to mark Black History Month 2021. It is a collaboration between EHA and Obsidian Healthcare Group, a global provider of medical education.
-
Doctors Reflect
In this closing discussion, Dr Jo Howard and Professor Léon Tshilolo reflect on what they have learned from their conversations with people affected by sickle cell disease and sickle cell trait, and discuss the present and future of sickle cell disease treatment across the world.
-
Raising a child with sickle cell disease
In the second episode, a mother and daughter affected by sickle cell are joined by hematologist Professor Léon Tshilolo for an interview with Mandi Watty-Miller, an individual with sickle cell trait. They discuss the experience of raising a child with sickle cell disease, navigating the world of online misinformation about the condition, and how to improve communication and trust between doctors and patients.
-
Episode 1: Living with Sickle Cell
In this first episode, consultant hematologist Dr Jo Howard has a conversation with two individuals affected by sickle cell disease (SCD) and sickle cell trait (SCT). They discuss the impact that the condition has on their personal and family lives, common misconceptions about the SCD experience, areas where treatment frequently falls short, and how to raise awareness further.