Power to the Patients

Brandon Li
Power to the Patients

Power to the Patients is a LinkedIn Live and podcast series hosted by Power where clinical research leaders across sponsors, sites, CROs, and patient advocacy groups discuss patient centricity in clinical trials. We explore the bottlenecks in today's systems, challenge the status quo and talk about future opportunities for innovation. Looking for a clinical trial? Visit us at www.withpower.com

  1. 14 JUN

    AliveAndKickn: Raising Awareness about Lynch Syndrome

    Today, we sit down with Robin and Dave Dubin from the AliveAndKickn Foundation, who share their inspiring journey with Lynch Syndrome. Robin explains the genetic intricacies of this hereditary cancer predisposition, emphasizing the crucial role of genetic counseling and the proactive measures taken for their children as previvors.   Dave, a three-time cancer survivor, offers an account of his experiences, shedding light on the motivations behind the foundation's establishment and the significance of patient advocacy. Together, they reveal how personal battles can transform into movements that champion patient-centric approaches in the healthcare landscape.  Topics Discussed:  (00:00:00) Introduction  (00:01:10) Robin’s background  (00:05:07) Screening for Lynch syndrome   (00:07:08) The history of the foundation and what it does   (00:09:10) The biggest challenges in raising awareness for Lynch Syndrome   (00:11:12) What is most effective in educating patients’ families on Lynch Syndrome   (00:12:25) Interacting with larger biopharma and biotech companies pursuing research in this space  (00:15:43) The vaccine for Lynch Syndrome  (00:19:29) Increasing awareness for older patients  (00:22:24) How the foundation tries to educate the clinical community  (00:26:43) The countries the foundation focuses on  (00:28:49) Helping patients communicate with their families  (00:32:46) How people can get involved and support AliveAndKickn  Links:   Robin Beth Dubin   Dave Dubin

    35 min
  2. 7 MAY

    Empowering Patients through Digital Platforms in Clinical Trials with Sasha Sinclair

    In today's episode, Sasha Sinclair discusses the current challenges and emerging solutions shaping the future of patient recruitment and engagement in clinical trials. Sasha has a comprehensive background in clinical operations that allows her to share an informed perspective about how digital strategies and improved education can transform the landscape of clinical research, making it more accessible and inclusive for patients everywhere. She talks about the problem of patients not having access to trials and how to approach it, the new patient recruitment strategies she's excited about, and how the patient's journey affects the decisions made along the way.   Topics Discussed: (00:00:00) Introduction  (00:00:56) Sasha’s background and her current role  (00:02:38) Why patient recruitment is such a struggle currently  (00:03:59) The ceiling on the percentage of providers that could feasibly do research and why it's limited  (00:04:50) How to crack the problem of patients not having access  (00:06:27) What an informal exchange of knowledge is and how it works for the patient  (00:08:13) How Power's platform plugs into the broader ecosystem  (00:10:39) What modern patient recruitment means to Sasha  (00:12:19) The core components Sasha looks for in a modern patient recruitment strategy  (00:14:56) New strategies and approaches Sasha is excited about in patient recruitment strategies  (00:16:54) Piecing together tools for recruitment strategies  (00:20:06) How to think about the incremental investment to be made in recruitment  (00:23:06) The proactive versus reactive approach at the beginning of studies  (00:24:50) Understanding the patient journey and the decisions that get made as a result  (00:26:18) How to think about patient self-advocacy as a sponsor running trials  (00:27:15) How a comprehensive effort from all stakeholders could change the game in research  Links:  Sasha Sinclair

    29 min
  3. 25 JAN

    Integrating Patient Experience in Clinical Trials with Farah Meghji

    How much do you know about the behind-the-scenes process of clinical trials? Our guest today, Farah Meghji, has a unique perspective on the matter through her role at Roche Canada, where patient experience sits at the heart of every stage of solution development. We're thrilled to share her insights on balancing the urgency in clinical trial development with the necessity of embedding patient experiences from the start, transforming the way we think about patient-inclusive culture. Farah also elaborates on how Roche Canada is revolutionizing patient education materials to be more accessible and user-friendly. Topics Discussed: (00:00:00) Introduction (00:00:46) What Farah’s current role entails (00:01:18) The initiatives that Farah’s team takes on  (00:02:13) The patient journey that spans R&Ds through post-marketing (00:03:36) What being the chair of the above-brand patient council entails  (00:05:19) Examples of things implemented to further the patient experience (00:06:41) The differences in patient education communication in Canada (00:07:58) How Farah thinks about the patient experience from the R&D side of things (00:13:18) Analysis of the top barriers for patients as they think about trials (00:16:06) Specific initiatives to address barriers to patients (00:19:04) Trends in where patients are going for information and how they’re using the internet to take control of their situation (00:22:40) The approaches to finding empowered patients today (00:24:20) What Power could do to have the most impact (00:31:08) How Farah hopes to see the industry evolve (00:35:32) Farah’s final thoughts for the audience Links: Farah Meghji

    37 min

About

Power to the Patients is a LinkedIn Live and podcast series hosted by Power where clinical research leaders across sponsors, sites, CROs, and patient advocacy groups discuss patient centricity in clinical trials. We explore the bottlenecks in today's systems, challenge the status quo and talk about future opportunities for innovation. Looking for a clinical trial? Visit us at www.withpower.com

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